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So I've had urinary tract infections all of my life. When i was 11 I had one for about two days before telling anyone about it. Apparently I had several before I was 11, but I don't remember any of them. I am now 23 years old (female).
The one I had when I was 11 was so bad, that since then I've always had a little bit of discomfort when peeing, and occasionally burning on the vulva when enough pressure was applied like when I sat on a hard surface for too long. I never told anyone about it until recently because I just thought it was normal.
Well now I'm being investigated for interstitial cystitis, and I've been told its just an excruciating illness that people go through and will have for the rest of their life.
To be honest, that's not what I feel. I only feel pain when I urinate. That pain is more of a discomfort and occurs mostly when I don't drink enough water and starts deep inside but not as far up as the bladder. It almost feels like it's in my urethra and spreads throughout that area and it eventually disappears within 10 minutes and I can go about my normal day. I feel no pain in my bladder unless I haven't had enough water but even then it doesn't hurt that much. I feel no pain when I'm wondering around, doing my thing every day. It's only ever when I pee and an occasional burning when I don't have enough water but again, it is easily tolerable (probably because I've grown up with it). I've been able to lead a normal life with not many issues, apart from occasional panic attacks because I've had over 7 UTI"s already this years, so I fear getting another. Speaking of which, the only time I've ever felt the excruciating pain was when I was actually diagnosed with a urinary tract infection proven to be caused by E.coli.
I was just wondering if interstitial cystitis is always painful? or could I be someone who has it, but lucky enough for it to not be an extremely painful case?
Could it be something else that isn't inside the bladder? \
I am also looking to see if there are any other young women out there around my age who has been diagnosed?
I welcome anyone to respond.
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