Is it a thyroid problem?, please help

Posted , 33 users are following.

Hi, need some advice, ive been poorly for last 6 months.  Feeling sooo fatigued, nausea, tinnitus, weight gain, pins and needlesin right arm and  hand daily, sometimes both feet. Muscle pain and weakness, tearful, breathlessness, tight chest. Intermittent sore throat and glands go up and down.

I am only 39 in just 6 months my life has come to a grinding hault, no socialising, no gym just early nights i have terrible night sweats, yet cold hand and feet. wake feeling exhausted.  I am a mum of two little ones who need me, and i have barely enough energy to scrape through each day.

i have had blood tests and was low vitamin d and low ferratin iron but not below minimum levels. im sure its thyroid but dr says test shows normal. Is this area worth pursuing.  I am not menopausal and i do not feel this is anxiety.  Just dont know where to go next.

Thanks for your thoughts and time

1 like, 33 replies

33 Replies

Prev Next
  • Posted

    I am an RN of 30 years and I have always been an analytical thinker. This did not change when 2 1/2 yrs ago I experienced many of the same sx described here.  I have learned that being euthyroid on labs mean MDs do not accept that hypothyroid is possible, regardless if you have hashimotos, low iodine and a goiter which I do.  Labs normal means thyroid normal.  I keep going to different MDs to try and get answers.  I have had complete neuro work up, first one no help (feared MS but ruled out), second one still trouble shooting.  I have had 2 ENTs, 2 PCPs, and cardiologist visits.  Tons of labs.  All that showed up was EBV and thyroid antibodies, low Mg. I am 54 and post menopausal.  I have every sx of hypoT except I am never cold.  I sweat abnormally, like a constant heat shield around me.  Constant tinnitus, fatigue, weakness, legs feel like walking in deep sand or a current most days, sometimes thoughts hard to organize, no deep tendon reflexes, hand stiff when writes.  5 spots on Flair images frontal lobe on MRI brain.  Lumbar puncture pending.  I had other sx initally, many more, but those I listed are what remains.  I have kept about 4 possible causes in my mind and have researched until I am just about over it.  But I am stubborn and not a quitter and determined to get to bottom of this.  I suspected Lymes (husband got sick from rotten deer carcass he was cleaning and some of those bacteria can be sexually transmitted).  I got sick soon after he did, maybe few weeks later.  Achy all over, someitmes very stiff.  Oh yes, I forgot stiff sore neck and headaches daily.  So, bacterial viral infection versus Hashimotos encephalitis, versus hypothyroid....very frustrating.  Now my husband just got dx with prostate cancer, they found 10 mm mass on biopsy.  We are determining whether to proceed with radical prostatectomy versus Proton Radiation therapy.  I cannot help but wonder could that "mass", be an encapsulated bacteria/co bacteria from deer? MDs say no but Im not so sure.  My BP has increased about 20 points over past 6 mo and I have gained about 15 pounds abdm fat.  Poor muscle tone.  Had a test where you breath in meter for about 15 min, measures basal metabolic rate. MD said my metabolism was so slow I would have to eat less than 1000 cal daily to lose weight.  I will keep this updated pending LP and new ENT appt.  Sometimes my tshirt has wet spot when I dont wear bra is when I notice it.  I wonder if I could have central or secondary hypothyroidism, how is my HPT axis.  If pituitary or hypothalmus malfunctiong, my TSH wont be elevated which seems to be the GOLD standard I have been told (by numerous MDS) and that is why they assume it cannot be my thyroid. 
    • Posted

      Sounds like you might be having a problem converting T4 to T3. In this scenario one has hypothyroid synptoms but blood tests show normal or over dosing with thyroxine.

      I vited for hildegard's

    • Posted

      Sounds like you might be having a problem converting T4 to T3. In this scenario one has hypothyroid synptoms but blood tests show normal or over dosing with thyroxine.

      I voted for hildegard's reply because I thought it was very comprehensive, well written, thoughtful and caring. I would though consider anti-depressants as a last resort as the symptoms of depression are similar to those of thyroid disease and once you are diagnosed with depression there is a danger doctors will stop looking for another cause.

      I prefer the book by Dr Peat field as it recognises that a significant minority (15%) of hypothyroid patients treated with thyroxine still have hypothyroid symptoms.

      A good website is tpa uk. You will need to register to get access to their treasure chest of articles - it is well worth the effort.

    • Posted

      Hi Gina, inknow ypu said ypu had lots of tests, but i wondered whether you have been tested for B12 deficiency? Also is your Ferritin level at least 70-90? One needs Ferritin at this level to be able to process thyroxine. Vit D deficiency is another one to get checked. Worth reading Dr Peatfield's book.
    • Posted

      Hi Gina. If you're still reading this site I'd be interested in conversing as a lot of your symptoms are similar to what I've been suffering over the last couple of years. Like you I have had many many private specialist consultations and tests, and the closest I've got to a diagnosis was the finding that I have an MGUS, though I've been told this should be symptom free! I'm a 45 year old male who lives in Oxford. Thanks
    • Posted

      Hi Gina, Your story sounds like mine.  Been a nurse 30 years and searching for answers.  Dx with hashimotos over 22 years ago but became ill after 3 tick bites.  Was initially treated with doxycycline but became very ill.  Saw a lyme doc after 2 years of symptoms, lyme was negative which many lyme tests give false negatives.  Did have some bartonella and h-pilori.  Felt better after treated but in 3 weeks after getting the flu, symptoms returned gradually.  Couldn't afford to continue seeing the lyme doctor but found out about MTHFR and lots of other things.  Seems the lyme (which I probably have) & bart tanked my immune system.  Please let me know if you found any answers.  Can't even mow my grass any more and it's really tanked my immune system so looking for answers before this turns into a full blown disease process.  Oh, my thyroid stopped tolerating T4 rx alone (wasn't converting T4 to T3 well) and now having issues with T3 rx too.  Waiting to see new endo who prescribes natural thyroid support.  Also have new onset vasculitis which appears to be agressive.  Have heard stories from others about cyst formation and insect-borne pathogens. Originally was misdiagnosed with fibromyalgia (in US) which is common with lyme disease.  Hope you and your husband are feeling better and his prostate is healed.

    • Posted

      Nale same symptoms... Difficulty structuring thoughts... Do u drink coffee?
  • Posted

    I've been researching this same thyroid question too.

    About 3 weeks ago I woke up on a Sat. morning feeling like I had the flu but no fever, aches or pains.   I had to leave and when I got back home I laid down for a while but still didn't get any better. 

    I wake up in the morning feeling nausea's and heart palpitations many times start in.  I've had the palpitations all my life but they would briefly occur and has not been any problem.   I also noticed at times it was difficult to breath like I couldn't get my breath.   All of this has sent me to the ER four times.   I've had numerous blood test, ekg's, and even did a cardio stres test and nothing definitive has turned up.  The answer I get is it is anxiety.   This totally baffles me because not a thing has changed in my life to even make me think it is anxiety related.  Nothing with my job or family life.  The doctors want to push taking Xanax and I have fought this.  There has to be a reason why out of no where this has occurred.  Some days I feel somewhat okay but maybe the next day bam it hits.  I notice ringing in my ears too.   My fear is to get on Xanax and possibly covering up a real issue such as a problem with my thyroid.   The cardiologist prescribed 25 mg of a beta blocker and increased it to 50 mg a day and the palpitations still occur.  First I thought it was some throat infection and possibly ear but nothing points to that.  One ER visit they did see a slightly low potassium level and gave me some potassium to take and that did nothing.   Some mornings I cough until I gag but nothing discharges.  I am slightly dizzy in the morning but no headache.  From the symptoms I ahve read for me it sure looks like a thyroid problem.  I also notice not  being all that excited about doing any thing.   I took a few days off from work and laid in bed all day from feeling tired.           

  • Posted

    The truth of the matter is that adequate thyroid function plays an important role in maintaining good quality of life as we age and staying free from pain and disease. Our basic bodily functions, general well-being, appearance, energy levels, mental function, emotions, and even our very sanity all depend on adequate thyroid function. Because symptoms that affect physical appearance often show up initially (and can be so distressing), let’s look at them.

    - PHYSICAL APPEARANCE -

    As we age, we certainly want to take advantage of everything that can keep us youthful, attractive, and svelte. Who needs plastic surgery when maintaining good thyroid function is a cheap, noninvasive way to stave off accelerated aging? When you take a close look at the impact low thyroid function can have on all parts of your body, you’ll realize that you need to take your thyroid seriously in order to age gracefully.

    HAIR

    Since hair and skin are some of our fastest growing tissues, we often notice slowing metabolism in these areas first. Hypothyroidism leads to hair that is dry, brittle, and dull. It also becomes straighter, finer, and thinner and may even turn gray prematurely. Thin, uneven, patchy gray hair isn’t the look we’re after as we head into our forties or fifties! Another sign of low thyroid function, discovered over a century ago, is the loss of the outer third of the eyebrows. Body hair and eyelashes also often disappear.

    SKIN

    Slowing thyroid function takes a big toll on the skin. The first signs are coarse, dry, sallow, pale, unhealthy looking skin, which also may get very itchy (Owen and Lazarus 2003). This can progress to acne, red spots, boils, premature wrinkling, yellowing or grayish skin, rashes, and even eczema or psoriasis. Adequate thyroid function is necessary for good blood circulation, so hypothyroidism results in inadequate blood flow throughout your body. When this happens, blood is preferentially sent to your brain and vital organs to keep essential functions going. Our skin may be our largest organ, but in hypothyroidism it takes a backseat to survival, and as a result, it isn’t properly nourished and replenished by the oxygen that blood provides. Poor circulation can also lead to the development of varicose veins.

    Skin can also get puffy and swollen, particularly on the face, arms, and front of the thighs due to fluid building up in the connective tissues. This condition, known as myxedema, is a side effect of slowed metabolism. It’s caused by an accumulation of waste products that aren’t effectively removed from the tissues. Connective tissue is everywhere in the body, so this swelling doesn’t affect just physical appearance; it also impacts the function of the glands, organs, and cells as they become infiltrated with this jellylike substance. In fact, this swelling may affect only internal tissues and organs, without showing any external signs.

    FACE

    When thyroid function is low, the face, particularly around the eyes and jawline, often gets puffy; this, too, is caused by myxedema. Reduced kidney function caused by the general slowing of metabolism also leads to fluid retention, particularly around the eyes and in the hands and ankles.

    This is a different type of edema and can be distinguished from myxedema by pressing your finger on it; if it leaves a depression that lasts for a longer period of time than is normal, it’s due to reduced kidney function rather than myxedema. As hypothyroidism progresses, the entire face can develop a coarse look, with swelling or thickening of facial features.

    FINGERNAILS AND TOENAILS

    Slow-growing, soft, ridged, brittle nails with pale nail beds are a sign of low thyroid function.

    The crescent-shaped white area at the base of the nail bed often gets lighter or disappears altogether. This can be due to reduced blood circulation or inadequate protein synthesis, another effect of the general slowing of metabolism in hypothyroidism (Jabbour 2003). Ingrown toenails and fungal infections are also common.

    TEETH AND MOUTH

    Excessive tartar buildup and cavities can be caused by low thyroid function (Noren and Alm 1983). Excess tarter causes red, swollen, and receding gums (which can be made worse by low estrogen), hence the old saying “getting long in the tooth.” Gum recession isn’t always a reliable sign of hypothyroidism, however, as gum disease due to hypothyroidism can also cause gums to become swollen and overdeveloped and extend down over the teeth instead of receding.

    In long-standing hypothyroidism, the mouth can appear large and the lips puffy and coarse.

    The color inside the mouth is often pale, and the palate may be more vaulted than usual (Barker, Hoskins, and Mosenthal 1922). Temporomandibular joint syndrome (TMJ syndrome) is also common as hypothyroidism causes problems with muscles and ligaments. In addition, both edema and clenched teeth due to chronic muscular tension can affect the jaw and cause the pain and muscle spasms of TMJ syndrome.

    WEIGHT

    With hypothyroidism, we don’t metabolize food effectively and the calories we consume turn into fat instead of energy. This weight gain is insidious, and neither diet nor exercise resolves it.

    When weight gain is caused strictly by low thyroid function and not other endocrine deficiencies as well, fat tends to be symmetrically distributed on the body (Barker, Hoskins, and Mosenthal 1922). When low pituitary function is at the root of low thyroid function, weight gain is generally confined to the area from your abdomen to just above your knees. The skin of a person with hypothyroidism also takes on a flabby look, as overall musculature is affected, too. Bear in mind that being overweight is an issue that goes beyond mere appearances, as it increases your risk of many diseases and health conditions.

    FEET AND LEGS

    Do you have weak knees, or have you become flat-footed or bowlegged in recent years? All of the ligaments in your body can be affected by low thyroid function. They will tend to relax and can cause conditions like flat feet, weak knees, knock-knees, hyperflexibility of joints, propensity for sprains, and even scoliosis. Early on in hypothyroidism, the knees often get weak. This starts with a feeling of unreliability in the knees, as if your knees might give out if you were to break into a jog or even a fast walk.

    The first sign that your ligaments are being affected is often a flattening of the arches of your feet. When they flatten, your foot rotates inward, which can result in painful calluses on the sides of your big toes and sore, aching feet. Another sign of relaxing ligaments is aching palms (Jacobs-

    Kosmin and DeHoratius 2005).

    VOICE

    Although it can’t be seen, the voice is an obvious indicator of age and health. Due to swelling in the throat, many women with hypothyroidism start to sound more weak and tired. The voice often gets deeper and softer and also more hoarse or nasal. Speech can become deliberate and slow, and as the condition progresses, articulating words may become difficult, causing stumbling over words and slurred speech (Madariaga et al. 2002). These difficulties can stem from swelling of the lips and tongue.

    As with being overweight, changes to the voice have impacts beyond the impression you make on others. The swelling of the throat responsible for voice changes also causes difficulties with swallowing, so choking on small objects is common. If the uvula (the little punching bag in the back of your throat) and tonsils swell, this can cause snoring and an inability to breath through the nose.

    EARS

    Not only does low thyroid function result in chronic ear infections due to lowered immune function, it can also result in impaired hearing and abnormal physical ear placement. If long- standing, hypothyroidism can cause the ears can be set lower on the head and protrude more, while also becoming more swollen or thicker than normal. Overall hearing is diminished and excessive earwax is common (Brucker-Davis et al. 1996). Low thyroid function can also cause tinnitus and result in hearing strange noises, such as clicking, ringing, or buzzing sounds or the sound of running water.

    POSTURE

    As our thyroid function declines, so does our ability to hold ourselves upright. Posture is one of the markers of aging, with stooped and slumped posture being part and parcel of the look of old women. Poor posture may be caused by the fatigue so common in hypothyroidism, or by the bone weakening and osteoporosis that also occur. This slumping is exacerbated when the abdomen protrudes due to relaxing musculature and swelling of the stomach caused by constipation.

    MUSCULATURE

    Few things signal aging more than flabby, diminishing muscles. Our muscles are closely tied to the metabolic process, and when it slows, they start to lose their tone and contours. The weight gain we experience at the same time obscures them even more. But again, this goes beyond appearances.

    Normal activities will become more difficult as the muscles also get tired easily and often feel heavy, and mobility can be impaired by an increased tendency to stumble or experience muscle cramps (Argov et al. 1988).

  • Posted

    One last note.... Hypothyroidism is often brought on my eating poorly and stress as well as genetic factors. Gluten is your worst enemy! Change your diet and reduce stress to keep the immune system strong, as well as the adrenal glands. If caught in time, you can reverse hypothyroidism with a healthy, anti inflammatory diet and lifestyle. Take time to exercise 25-30 minutes 4-5 times a day ( light walks, etc). Nothing strenuous. 

    I am recently sub clinical hypo and refuse to take the toxic, synthetic Cytomel!  

    I found this out after 3 blood tests that my doctor ignored to see the small signs and finally went to a Chinese reflexologist that told me my adrenal glands were not good, immune system was not good and thyroid was low. 

    My 4th blood test revealed a low T3 with elevated but normal mono %. 

    Im a firm believer in Eastern Medicine and not taking a pill the rest of my life. 

    • Posted

      Curious to know how long before you started feeling well again? I have same issue, low T3 but high cortisol. Making symptoms worse.
  • Posted

    Curious to know if you've had progress with root cause of symptoms? I'm having similar symptoms and have been told my T3 is low.

  • Posted

    Your symptoms are very similar to mine and I was diagnosed with hashimoto's thyroiditis +hypothyroidism.

    Sometimes, you can have hashimoto's and still normal T3 and T4 levels. I did have normal results first time then after 2 months my leves were abnormal. Unfortunately, I do not have my results with me to show you.

    I would definetly bother some more your doctor and if that doesn't help I would ask for a second opinion. Ask for a thyroid level check every few months. I have been sick for a year now. Finally, they are figuring out what is wrong with me. Good luck to you!

  • Posted

    jo44570 what meds are you on for your thyroid problem?

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.