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Hi, I'm hoping someone could advise me on the symptoms I'm feeling at the min. Apologies if this is long winded but I want to make sure I explain in full.
I'm 31 and have been signed off work for 4 years now. Originally I was signed off with exhaustion, but then both my mental health (borderline personality disorder and social anxiety disorder) and my skin condition (hidradenitis supperativa) both flared up and took priority to the doctors and DWP. I've always suffered with things they've never been able to explain, such as:
- unexplainable bowel issues
- random eye twitching and muscle spasms
- continuous sleep issues
Nobody has ever investigated any of these and just dismissed them.
I was diagnosed with fibromyalgia in Jan 2015 following a shoulder injury, but the rheumatologist did say that it was impossible to diagnose anything else because dermatology had me on Infliximab infusions which could be masking other symptoms.
I came off infliximab in September and since then it's been unbearable. I have suffered constant headaches, joint pain, suffered with confusion and struggled with words. I've lost all energy and even a short walk to the local shop has me in bed for all of the following day. I've had to turn the brightness down on my TV and phone and my curtains spend most of the day drawn to help alleviate my headaches. It's like a hangover that just won't go away.
I've been sent for blood tests, ultrasounds and an MRI scan on my brain so far. My GP is unwilling to tell me what she thinks it might be and has just said she's been in contact with my rheumatologist and psychologist regarding the problems and they're using the tests to rule things out. Does this sound like CFS??
I'm hoping to get an official answer and solution from the GP soon, although I don't know what good it will do. I'm not allowed to take any anti inflammatory medication or strong painkillers because of the medication the mental health team have got me on, and I'm allergic to steroids which rules them out too 😔
Sorry for going on for so long but I'm so frustrated with it all.
Thank you in advance x
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