Is it CfS?
Posted , 4 users are following.
Hi all
Just after some advice,
I have been suffering for over 2 years with periodic flu like pain. It comes maybe every 6 weeks and puts me out of action for 3 days. I have migraine type pain, bone pain esp in legs, fever, sore throats, ibs worse, back pain, ear pain etc. I've tried tracking it to see if it has any triggers such as monthly cycle and although this does seem to impact the only thing that generally has occurred is that I've done to much. Not run a marathon or anything but over the course of maybe a week I maybe have not stopped properly, e.g. This week I got back from holiday, cleared out garage which was a full day job, went for several long walks, had stress of selling house, packed a bedroom, went shopping for day, being mum to 12 year old with autism in school hols (I'm not saying this is a lot for most but for me it is) cut grass etc and, and then maybe 2 days later I can feel it coming on. I've been for blood tests and nothing shows up, I even went for a scan of ovaries as have pain there quite a bit but all fine. My GP isn't sure as feels I would be in constant pain if it were CFS or fibro but I still think it might be? Any advice hugely appreciated. I have had so much time of work and need to get this sorted.
Thanks c x
0 likes, 2 replies
emily71446 chloe44713
Posted
Hi, I have me/cfs and have had it for a few years, I am in usually always in some pain with flares where I get really unwell and bedridden. I do know that there's mild moderate and severe ME. Everybody who has it is different and some people struggle with fatigue more than the pain and vice versa. They can diagnose you with cfs/me if you fit the criteria (if you look on nhs direct it gives you abit of info) Usually blood tests will all come back fine and you usually have to have had unexplained symptoms for 4/6 months before they consider a cfs/me diagnosis.
I hope this helps and that hopefully you'll be able to find the answers you're looking for
Emily
debi67304 chloe44713
Posted
Hi Chloe, you sound a lot like me. When I went to an M.E. therapy group, we learned that lots of people who have M.E. push themselves too hard. They taught us to break down any tasks into smaller parts. It's frustrating and everything takes longer than you'd like. if you had glandular fever, you'd be told to take things slowly for 6 months at least in order to properly repair from the illness' damage. Try thinking of it as the same thing and cut yourself some slack. I hope this helps you as it helped me. When the M.E. course therapist asked " What do you do if you run out of space on your list of jobs for the day ?" I said, turn the page over, apparently I was wrong, you should be writing smaller lists ! Best of luck, perhaps you can find a similar course