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Is it fibro?

Posted , 4 users are following.

Comfused74
Comfused74

Been extremely tired last 6+months , memory poor , concentration poor , feel as if i have the cold alot , feel sick often but never sick , joint pain , chest pain etc .Had an underactive thyriod for just over a year , blood tests show everything fine altho i thought b12 was low at 247 but doctor says my red blood cells are not enlarged so not low b12 , went for 2nd opinion and that doctors uped my thyriod tablets even tho results said thyriod was fine , after 5 weeks on up'd thyriod tablets things were not improving maybe even getting worse i went back to doctors and seen yet another doctots who looked and my records for past while and now thinks its fibromyilgia, i just want to feel normal.and dont want to just say its this if its not as i think maybe my pain should be much worse if its fibro , thanks

2 likes, 6 replies

6 Replies

  • Buzbi
    Buzbi Comfused74

    Posted

    I was undiagnosed for 7 years and when i got diagnosed in 2014 it was a relief that i had been diagnosed with fibromyalgia instead of me thinking im a hypocondriac.

    I experience neck and shoulder pain, all joint and muscle pain, morning stiffness, hot and cold sweats, chronic fatuige, episodes of feeling nausea and even lose my voice i get laryngitis alot whilst having a flare. Every day is different with fibro some days you have a good day and others are bad. I would ask that u see a rhuemetologist they can do the checks and diagnose you hun.

    • Comfused74
      Comfused74 Buzbi

      Posted

      Thanks buzbi i get the hot sweats as well but just put that down to my age and a long term sore throat , im just scared of getting misdiagnoused and not ever feeling "normal "

  • hope4cure
    hope4cure Comfused74

    Posted

    Having fibro is a treatable disease. See your rheumatologist.,there are

    many meds to help..

    also low on vit B & b12 or D can cause many issues along with thryoid .

    there may be a couple of things going on . Hope they can be sorted out soon and your feeling better with a proper positive diagnosis.thats the main issue feeling secure with proper care so it can be managed and move on to living life eliminate the worry..

  • kiki74
    kiki74 Comfused74

    Posted

    Unfortunately, it can take a long time to get a correct diagnosis. There are several ailments that are symptoms but it is more a diagnosis of exclusion. So many of the symptoms fit different diseases that they have to rule them out first. They (PCP, RA and ID docs) drew 25 vials of blood and ran every test they could before my pcp helped diagnose me. I felt like I was a crazy human pin cushion.

    I suffered migraine, tmj, cfs, joint pain, tingling in hands and feet, restless leg syndrome, muscle weakness, night sweats, and ibs. They tried meds to help manage my symptoms but I had side effects so I changed my diet and started taking supplements. It has been helping. Don't give up hope! We are here if you need us.

    • Comfused74
      Comfused74 kiki74

      Posted

      Thanks kiki74 , this has been going on for about 2 years all together going to doctors with different things , just over a year ago i had full bloods after being tested for so many individial things to rule them out when finally got told it was an underactive thyriod , symtoms did calm down when tablets started but had a really bad cold/infection at christmas and since then its just got worse and worse and after more bloods this is whats come forward , never thought about it before but went on some sites the last couple of days and have so many symtoms its unreal , memory and brain fog are the most upsetting for me as i feel like im losing it sometimes , hopefully can get some answers soon ,again thanks for your reply
    • kiki74
      kiki74 Comfused74

      Posted

      No problem. I have been where you are and it's frustrating not knowing what is going on. I did the same as you. Went on sites and helped diagnose myself.

      As for the fibro fog, it can come and go just as the other symptoms. There was a time that if my GPS want on, I couldn't find my way home. I even used to go to the doctor and have her tell me results in person and record it on my phone so I could play it back to remember what she said. Routine helps too. Just remember you are not alone.

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