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Upon taking everybodys kind advice from previous discussions here, i have been in contact with a free specialist based locally who i managed to find online. Although i am yet to have a meet and greet with her, we have discussed my ME/CFS at length and she is of the belief that- as many users on here have told me- i am overdoing it and trying to fight through the pain and fatigue. I work a full time office job, 40plus hours a week with overtime. She has said i should look into taking some leave from work, or reducing my hours. My main concern with this is financially i cant afford to not work, nor can i afford to lose my job. My second issue is that i have tried to talk to my GP about how difficult im finding it at work most days, and it seems to get shrugged off. Or he just puts me on a different anti-deppressant. He doesnt believe taking any time away from work will benefit me as he doesn't want me to get into the mindset of being "ill" all the time. I definitely do not want to give up work, its not like i'm just doing and saying these things so i can lounge around and be lazy for a while. I have worked since i was 13. I've never been unemployed in that time (I am now 25) so this is far from an ideal situation for me. Especially with my partner being out of work at the moment too. But i now see that pretending i am coping or suffering in silence for fear of judgement or losing my job isn't helping me in getting any better. So what do i do from here? How can i get my GP to take this seriously, and help my employer to understand so that they don't get rid of me all together?!
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Hi Sarah - My sympathy to you. You are in a catch 22 situation. You want to keep your job on the one hand but need your doctor's support to help you get the medical help you need and somehow navigate a reduction of work hours in the near future. Is there an occupational health doctor you could see through your work or independently? My first thought is for you would be to find a GP who is sympathetic with CFS. If your employers are aware of your condition are you able to enlist their support and help in this? I wasn't sure from your post whether you had told your employers or not. I can understand if you haven't. My friend was able to take a month off through sickness with a doctors support. There are some doctors who recognised CFS more than other. I hope you can get through this in time. Sue
I worked from age of 17 until 50 and was never unemployed or claimed benefits. I have been diagnosed with M.E for 8 years now this being my 8th year. I managed to work up until 2013/14 quite well all be it part-time hours, until I had a major relapse. I can tell you now nothing prepared me from going to the stage I was relatively mobile, active, able to work with pacing and rest, leading a normal life. I then had to use a wheelchair at times, commode, have been bed-bound, house bound, unable to drive etc, etc. and developing depression.
I would say to everyone when there comes a choice between finance and health, health is priority. Without good health you are unable to work at all. I would suggest that all employers should know if you suffer with this awful condition. You are protected under the Equality Act 2010, and re-adjustments should be put in place to help, support and assist you. You can talk to a disability officer about this. Also, you can claim the Personal Independence Payment (PIP) whether you work or not.
If you do not reduce your hours, and start pacing and getting help you are really putting yourself in a serious vulnerable position.
Visit the Action for M.E. site whereby you can obtain information on how to communicate with employers, family and friends. Also, you can obtain information for G.P's and professionals explaining how difficult it is with someone with this condition, and what they should be doing to assist in the way of benefits, although a G.P does not have to abide by this. However, it is worth finding a G.P. that will listen to you. You really do not want to go down the route some of us have travelled and struggling to get back.
I hope this helps.
I wish well and good luck.
As you may have read from my own recent post I have been in the same position as you and I too am the main earner and can't afford not to work. I think finding a doctor who understands is the first step. Next get referred to Occupational Health and get the reasonable adjustments entitlements. I had some in place and they were making a difference, then a new manager came in and got rid of them all and now I'm in the situation where I'm off work for at least 4 months. I am petrified at losing my job but there is nothing I can do except try and manage my health better now I'm at home.
Best of luck and put yourself first!
Can I just ask Tina what the PIP is as I've not heard of this.
Hope this helps.
I try to get up and do some light work,but I pay for it next day or so.
There is such a range of degrees with ME. Some people throw it off after a couple of years, others tend to get worse. One thing is for sure, if you try and push yourself,you are likely to get worse.. There are medications that should help.
Britain uses Duloxetine. As well as that you need help with energy CO enzyme Q10 and Alpha Lipoic Acid should begin to boost your bodies reserves of energy.
It is the reserves we just dont have with ME.
I do understand your problem with work believe me. I have been there. Trouble is
forcing yourself on could end up leaving you worse off. My suggestion would be to find a level that you can manage with. I get financial help and if you live in the UK you will get benefit as well. ME is a recognised disease now, no longer all in our minds. Whatever you decide , get medical assistance and someone who can champion your cause, and speak for you if nobody around you believes in your stresses mental and physical. Hold on whatever you do.
Down load a report from the internet from one medical site and . Actally run off a few as you may have family and friends who don`t believe how bad you are as well as your medic. The truth is out there to be read or ignored. Some doctors must be lazy or entrenched in paradigms. Which just makes them as stubborn as it is possible to be. Large companies have to move with the times and so should doctors. I would give out as many leaflets as you can and swamp your office with the truth. To get rid of you as you put it would be discrimination in anybody`s opinion. There is no doubt at all in my mind. This type of discrimination runs with sexism, and racism. It is NOT you fault you are ill , in fact if there is a fault it lies with your doctors who will not bother to read the writing on the wall.
My best wishes to you. Good luck and don`t stop knocking on the doctors` door.!!
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