Is it normal for TN to breakthru w/ pain only a few days after titrating upward on Carbamazepine?
Posted , 5 users are following.
Is it normal for TN to break-through w/ pain only a few days after titrating upward on Carbamazepine? It was pretty bad, last night-- I'd just raised dose on Wed; it took a few days to get used to lobotomy effects; effects better last night, but then, pain broke through, rather severely.
I have a bit of pain, now... trying to control it w/Tylenol and Fioricet. My PC doc put me on the Carbamazepine. I see him again on Tuesday.
I am beginning to wonder whether this is the drug for me...yes, I could go still higher (I'm only taking 600 mg. per day), but I become a vegetable for the first few days, each time-- and then, the pain breaks through again! Is this normal? I can't take most of those other drugs (have tried them before for other conditions, such as fibromyalgia and arthritis). All this is TN stuff is rather new to me; I haven't even seen specialist yet and been formally dx. (App't on May 1st). I have had this probably since October, but it only got super- bad the end of February; here it is, April (in October through January, I thought the pain was from two extracted, infected teeth).
(Also, the italicization and other word -editing things on that panel don't work on here, for me. )
Thanks!
0 likes, 25 replies
army183 linette61034
Posted
HI L
Great to hear from you
when do you see your specialist re possible MRI and/or some surgical interventions?
Cheers
D
linette61034 army183
Posted
Hi D,
I don't know what he will recommend; he is actually a dentist, but also, a big shot facial pain specialist, in my area, associated with Jefferson Hospital, Phila., PA. Yes, some people from there are also saying to get hooked up to a surgeon... I am taking it one step at a time. Anyway, it's on May 1st (or, 1 May?) Mayday.
I have never had luck with neurologists, in the past (have consulted them for migraine). We just never seem to get along. However, if he recommends one, I will go-- same w/ any other procedure (up to a point!) And then, there is insurance...
And I am still wondering about the connection between migraine and TN in some rare cases? It's more like now, I just want to find out if it's classic TN, Atypical (TN 2), or whatever. Also, have a broken tooth; want to know how long I can let it go, will it exacerbate the TN if I have it out? Etc. Just want a treatment plan.
But I plan to stay on the Carbaz, for the immediate future. My blood work looked good.
Take care,
L.
army183 linette61034
Posted
I think nearly everyone starts their TN journey with a dental specialist
Good Luck
D
linette61034 army183
Posted
Interesting! OK. But he's the big-shot facial doc in my area, too. I'm just glad I'm tolerating the Carbaz, but occasionally, I still get some break-thru pain, and also, occasionally, it still makes me...er... "dopey" (for want of a better word?) I also have migraine, so perhaps, it's a combination of all.
Thanks,
TTYL,
L.