Is it post viral maybe?

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Hi all. I had bacterial pneumonia in May this year and was in hospital for 4 days. Since then I haven't been right. It started off with me googling every symptom I had and working myself up thinking I had some awful illness. Doctors told me it was anxiety. As time has gone on symptoms have changed. Here is a list of what I experience. Tiredness, achey sore body all over, weak arms and legs, internal shaking, tingling, sinus pressure, flu like symptoms, sweating, not gaining weight etc etc. I have had lots of blood work, all ok. Tested for rheumatoid arthritis and it got ruled out. I think doctor thinks post viral from the pneumonia although he is sending me for more bloods. He is very good and knows how worried I am. Do these symptoms sound typical of post viral to anyone? Many thanks, Faye xx

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  • Posted

    Morning Faye,

    It is worrying when these symptoms appear and it sounds like your doctor is going down the right lines of making sure It isn't anything else as post viral and cfs/me themselves have no actual test so, it is a process of elimination.

    I think that your symptoms do seem to be on the pvf or cfs/me spectrum but, you have to go down the medical lines of enquiry first and as difficult as it sounds try not to worry. I think the main pointer is that the tiredness is not really relieved by rest when you have these conditions. Other symptoms vary from person to person. And the most Important thing to do is rest when you have pvf/cfs/me.

    There are other posts on here which may be useful to you regarding post viral. and remember, you are not alone, the quest for an answer is often what people are needing and the trips to specialists and gp's can be exhausting in itself!

    Hope that helps

    B

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    • Posted

      Morning Beverley, and thankyou for your fast reply. Yes I have worried so much about my symptoms, especially about things like MS etc. My Dr doesn't think its anything like that but for my peace of mind is sending me for an auto antibodies blood test. I was very ill with the pneumonia and so exhausted afterwards. I have had lots of blood work and my Dr said there's nothing screaming out at him with the results. All been ok. My kidney function was low after pneumonia but back to normal now. I've never been to the drs/hospital so much in my life as what I have these past few months. Thanks again for your help and I hope you aren't feeling too bad. Faye x
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    • Posted

      Morning Faye,

      I know it can be really difficult to not worry when there are so many things happening to your body that seem unexplainable. A friend of mine has cfs/me after pvf and some of her symptoms differ to mine. She has severe chest pains on bad days and her shaking is mostly worse than mine. Her worry too was MS or even Parkinson's as well as thinking she may have a heart problem. Her dr has ruled these out. It doesn't change the symptoms, or how scary they can be at Times but, reassurance really helps.

      I too have never had so much input from the nhs as since getting this! I think you and your doctor are going down the right lines of enquiry to give you reassurance that nothing else is causing your symptoms. There seems to be a link of symptoms with lymes disease from other posts i've read on here, although I've no idea if a link with pneumonia? You could run that past yr dr, Google it if you haven't ruled that out?

      My day yesterday was busy but ok so, am going to rest today. How are you feeling today?

      B

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  • Posted

    Hello Faye,

    I had a long running sinus infection starting in March and continued till May. I thought I was beginning to improve and then over about a two week time period I started getting pretty much all your symptoms. As time has passed my symptoms have changed as well. I am having more joint and muscle soarness, with some muscle twitching. Other symtoms, especially tingling is not as pronounced. I have been to a neurologist, rheumatologist, ENT for sinus, and several GPs. No answers. I have had multiple scans. Nothing. I am going to see a allergist and a Lyme specialist next. I know the lost feeling of worrying something is being missed. Hope you feel better sooner than later. Good Luck!☺️

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    • Posted

      Hey beaner I had followed your symptoms from another post and had to ask if you have improved? I had back to back viruses and then began experiencing EXACTLY what you described. Especially the part of laying in bed and your nerves are constantly pressure sensitive. I have been experiencing that for a month after some of the other symptoms and it is by far the most troubling. Mine are transient as well and move around, but are mostly my left arm as far as severity goes with pressure to my elbow. Any response is greatly appreciated and this is encouraging to read other people with such similar problems that GP's and neuro's have not identified.

      - Josh

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