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Hi, I have posted on here before but I have had enough of how unwell I have become and have no where to turn.
About 3 years ago I developed these random ‘flare ups’ of pain that weren’t too intense and lasted for around 2-4 days. I wasn’t too bothered about it at the time as it only happened twice a year if that and the pain wasn’t too bad. However last year it got so much worse. The pain was so intense I was rolling around the bed in agony and I went to the toilet over 20 times in 24 hours. I lost 4kg in a week. I started to develop blood in the stool and mucus. This flare up lasted a whole month.
This year however it has gotten even worse. I have had 3 flare ups this year already and the pain was so bad I was admitted into hospital needing morphine as Co-Codamol didn’t touch the pain. I have had small amounts of blood each time and loose stools. In my recent flare up I lost a almost a stone in 3 days which doesn’t seem possible. My GP has prescribed me Prednisolone in the past to try and see if it helps in any way and I found it did. I have seen a Gastroenterologist who originally thought IBS so I tried the low FODMAP diet and Buscopan and Mebervine during a flare up which didn’t help the pain at all. The diet also didn’t help as I don’t find food triggers my symptoms. I have had lots of tests. The tests I have had are
-Upper Endoscopy which showed lax hiatus
-Colonoscopy last year when I wasn’t so bad which was clear
-Small Bowel MRI- Clear
-Ultrasound- Ovarian cysts
-CT Scan- Mild thick wall appendix with appendicolitith , feceal impaction in Cecum and ovarian cysts- Appendix was removed and Cysts have disappeared
-Flexible Sigmoidoscopy- Clear except reactive change which means some inflammation
-Calprotectin test come back high
-Blood test shows Anaemia
As the majority of my tests come back negative is there still a chance I could have Crohn’s as I feel my symptoms are too severe for IBS and I’m sure you don’t get blood, anaemia or inflammation with IBS, but the Gastroenterologists are confused and think it’s ibs as nothing definite has shown up. I don’t know what else I can do I am awaiting a Capsule Endoscopy but I worry this will come back negative too and if it does I don’t know what else I can do as I know there’s something wrong with my body and I honestly can’t live like this.
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