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I was diagnosed with chronic pancreatitis about three years ago. I was terrified of pancreatic cancer, which was what sent me to the doctor in the first place (I had been experiencing left back discomfort and constipation for several months). I was not comfortable with the diagnosis of CP based only on blood tests (elevated lipase) and ultrasound (nothing showing aside from a fatty liver), and insisted on further image testing. I had a CT scan in April 2015, then an EUS in September 2015, both evidently showing a normal pancreas.
This puzzled me (and still does, frankly), as I wondered how I could be diagnosed with CP if the imaging showed 'normal'. At the time, I was having very little abdominal discomfort, however. It has since increased to daily pain/burning/discomfort over the last couple of months, both abdomen and back. Also burning mouth and tongue.
My question is, should I pursue repeating the EUS? I'm wondering how long it takes for imaging to change. It has been over 15 months since the first one. I'm scared that something has changed, and the doctors won't bother with another EUS because I already had one that came back negative. But again, the symptoms have heightened considerably since then. (The only imaging he ordered recently was an ultrasound on Dec 2nd, which supposedly showed a normal pancreas, although how sensitive regular ultrasounds are for pancreas imaging, I don't know. It did show some kind of nodule on my left kidney, though my doctor said the pathologist was 'hedging' in the report, evidently not exactly sure what this 'nodule' was. My gastro forwarded the report to my GP who wants to repeat the U/S in three months.)
I guess my deepest fear is what if it was early-stage cancerhat didn't show on the CT scan or EUS, and now the doctors won't re-order the tests, as the ones from 2015 were negative. It took quite a bit of pushing to get them to order the initial tests. Even though my lipase is consistently slightly elevated.
What should I do? Is fifteen months a long time ago? Am I due for another EUS? Also, my CA 19-9 was up to 25 on my most recent lab work on Dec 2nd. It was 23 in April 2016 and 16 in May 2015. Under 34 is normal. But mine has gone up each time.
Thanks. Sorry about the long post.
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