Is looking for some advice

Hi Kirsty sounds like your really going through it at the moment. Only advice is to contact crohns nurse at hospital and ask for earliest appointment. In meantime keep up fluids and try just having liquid diet... Good luck

Hi Kirsty, I'm sorry to hear you're going through such a rough time, and having your health issues play off each other must be tough.

I'm (hopefully) coming to a diagnosis after 5 years of issues and it's looking like Crohns. One thing that has helped me so much over that time is my diet. Initially trial and error through banning dairy, gluten etc, but then the Low FODMAP diet as recommended via a referral from my gastro specialist. The Low FODMAP diet took me from barely functioning to living a life with greatly reduced symptoms - for me that meant cramps, pain, dierreah, fatigue, mouth ulcers and reflux related symptoms.

I'm not a specialist and everyone is different but my dietitian said its the gold standard diet for gastrointestinal issues such as IBS and IBD. You may want to explore this option with a dietitian. Alternatively removing the foods the diet suggests is a good start e.g. all gluten, dairy, apples, onions, garlic the list goes on. I personally found acidic food such as fruit caused problems, definitely no alcohol or red meat. It's different for everyone but soft food that's easy to digest is a good recommendation e.g. we'll cooked rice, white meat or fish, boiled veg.

For background info only use the official Monash university guide (there's a book including recipes too) or a paid for phone app that tells you everything. There's info online but it's not always accurate, whereas Monash created the diet following their research.

I hope this helps and would be good to hear if diet does help. It took 48hours to help if it will.

Good luck in your journey.

Matt

First of all let me say that I am sorry to hear the way you are feeling. As soon as you get a diagnosis then you can start receiving the appropriate traetment. I believe that there are a lot of new medications about now, it is just a matter of finding the one that suits you.  I hope that this happens soon and that you get some relief, Keep me informed of your results.

Hi Kirsty

If you a running a high temperature and struggling to even drink I suggest you seek medical attention asap!! I only suggest this as a high temp usually indicates infection and if drinking is difficult dehydration will occur.

These things need to be addressed immediately and your other symptoms may be explained in the process.

I really hope you feel better soon. Sounds like you're having a nightmare right now.

Let us know how you go.

Hannah