Is looking for some advice

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I am awaiting an appointment for gastroenterology clinic as my GP thinks I have ibd. I have only been suffering since June but my flares ups are more frequent an getting worse am in a lot of pain with it an trying to even drink is impossible. So basically allspice I am looking for his some advice on how to cope with this an if anybody could give me any advice. I have terrible stomach cramps also high temperature I vomit with it an have diahroeea. I have fibromayaliga and intestial cystias which at this moment is proving to be a nightmare with having these other flare ups. Any advice would be highly grateful on how to cope an deal with this problem thank you kirsty x

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  • Posted

    Hi Kirsty sounds like your really going through it at the moment. Only advice is to contact crohns nurse at hospital and ask for earliest appointment. In meantime keep up fluids and try just having liquid diet... Good luck
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    • Posted

      Thank you for your reply I have contacted hospital but was told I will have to wait for next available appointment. I do drink plenty of water only time I struggle is why I have the flare up
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  • Posted

    Hi Kirsty, I'm sorry to hear you're going through such a rough time, and having your health issues play off each other must be tough.

    I'm (hopefully) coming to a diagnosis after 5 years of issues and it's looking like Crohns. One thing that has helped me so much over that time is my diet. Initially trial and error through banning dairy, gluten etc, but then the Low FODMAP diet as recommended via a referral from my gastro specialist. The Low FODMAP diet took me from barely functioning to living a life with greatly reduced symptoms - for me that meant cramps, pain, dierreah, fatigue, mouth ulcers and reflux related symptoms.

    I'm not a specialist and everyone is different but my dietitian said its the gold standard diet for gastrointestinal issues such as IBS and IBD. You may want to explore this option with a dietitian. Alternatively removing the foods the diet suggests is a good start e.g. all gluten, dairy, apples, onions, garlic the list goes on. I personally found acidic food such as fruit caused problems, definitely no alcohol or red meat. It's different for everyone but soft food that's easy to digest is a good recommendation e.g. we'll cooked rice, white meat or fish, boiled veg.

    For background info only use the official Monash university guide (there's a book including recipes too) or a paid for phone app that tells you everything. There's info online but it's not always accurate, whereas Monash created the diet following their research.

    I hope this helps and would be good to hear if diet does help. It took 48hours to help if it will.

    Good luck in your journey.

    Matt

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  • Posted

    First of all let me say that I am sorry to hear the way you are feeling. As soon as you get a diagnosis then you can start receiving the appropriate traetment. I believe that there are a lot of new medications about now, it is just a matter of finding the one that suits you.  I hope that this happens soon and that you get some relief, Keep me informed of your results.
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    • Posted

      Yes this is what I need a diagnosis so I can get myself on the right path to help me and hopefully try an keep these flare ups at bay thank you for your reply and I will keep you informed kirsty x
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  • Posted

    Hi Kirsty

    If you a running a high temperature and struggling to even drink I suggest you seek medical attention asap!! I only suggest this as a high temp usually indicates infection and if drinking is difficult dehydration will occur.

    These things need to be addressed immediately and your other symptoms may be explained in the process.

    I really hope you feel better soon. Sounds like you're having a nightmare right now.

    Let us know how you go.

    Hannah

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    • Posted

      Thank you hannah thankfully I am feeling a lot better today and able to drink it's have explained all this to my GP an have been admitted once b4 to hospital but was told it was probably my fibromayaliga what was causing which I no it isn't. Thank you for your reply. If it does happen again I will be going to hospital as it seems I am not getting any help with my GP thanks again kirsty

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    • Posted

      So glad your feeling better today.

      Can't mess about with temperatures and stuff but I really appreciate how hard it is sometimes trying to get people to understand that somethings not right.....it's scary!!

      Hang on in there and know that you're not alone out there battling for a diagnosis.

      Stay strong

      Hannah

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    • Posted

      Thank you hannah I really appreciate it

      I was scared as I just cudnt bring it dwn but did finally

      It always good to have ppl to talk to especially if they have similar problems

      Kirsty x

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