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Is LS hereditary

Posted , 8 users are following.

wendy49087
wendy49087

I just found out my mother had it.    I and my son both have auto immune disorders.   Mine is under active thyroid  and my son has ulcerative colitis.  Do we need to get checked out 

0 likes, 18 replies

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  • patricia86334
    patricia86334 wendy49087

    Posted

    Hi,Wendy,

    My mother and grandmother both had LS....so it can be hereditary.  However, when my mother had it and grandmother, it was called Leukoplakia...white patches.  I have had the white patches for years and years but no other symptoms, then two years ago I had what my dr. thought was a terrible yeast infection, and a year later another terrible yeast infection....but it wasn't a yeast infection either time as I now know...so I don't know if the white patches always are LS or become LS or if LS just becomes acute..not sure if I spelled that right....

    I suppose if you  have white patches on your bottom area, it would be a good idea to go to a dr. for diagnosis.    Then again, I can't say I know for sure if LS always always starts with whitening of skin areas....I am sure others on this forum will add more information for you.

    • wendy49087
      wendy49087 patricia86334

      Posted

      Thank you so much Patricia.   I will head to the doctors and have a chat.   Will also talk to my son.    I don't have any symptoms uet but trying to learn about it in order to act if any symptoms occur 
    • patricia86334
      patricia86334 wendy49087

      Posted

      There are lots of letters h ere already written by women who have been dealing with LS for years and  years.  If you read through those, you will already answer a lot of your own questions, and also be armed with some questions for the dr. if  you decide to go for a checkup.  I only found this forum a week or so ago and have learned so much more than my dr. told me, and learned even better ways to use the steroid ointment than my dr. told me, and other ways to lessen the worry and fear.  So read all the letters before you do anything else!
    • patricia86334
      patricia86334

      Posted

      by the way:  the link to the entire LS discussion is under the "Related Information" link down below this box....that's where you will find lots of info.  If you already know that, sorry.  I only mention it in case you hadn't noticed...
    • wilmatm
      wilmatm patricia86334

      Posted

      Thanks patricia. I might have been told but forgot how to find it till now. Will look there too. I too have my monthly checkup with my Womans Dr tomorrow. 
    • wilmatm
      wilmatm patricia86334

      Posted

      Hi patricia. Are these patches areas on skin with no pigmentation?  Also my father had terrible eczema on his body for years and then ten years ago i heard my brother had to be circumcised because his foreskin was  stuck which caused painful sex. My dads eczema looked like white scaly patches on his skin and it drove him insane at times. 

      Wilma

    • Morrell1951
      Morrell1951 wilmatm

      Posted

      My gynae said psoriasis and LS are 'related'. I have both. Psoriasis can be white scaly patches. Your brother's stuck foreskin is classic male LS. My grandfather's 'eczema' sounds like your dad's.
    • wilmatm
      wilmatm Morrell1951

      Posted

      So would it be fair to say its a family genetic problem? My daughter has skin that scars terribly and although very slim her body is covered in stretch marks. I just wonder if its all connected some how. 
    • Morrell1951
      Morrell1951 wilmatm

      Posted

      I suspect bad skin runs in families. My sister has terrible psoriasis on her scalp.
  • Morrell1951
    Morrell1951 wendy49087

    Posted

    Wendy, it would be a good plan to see a gynaecologist or a dermatologist. If your GP doesn't diagnose LS, that doesn't mean you don't have it. Many GPs are not aware of it.
    • wendy49087
      wendy49087 Morrell1951

      Posted

      Thanks for that Morrell. Is it something you carry and can be diagnosed prior to spots  appearing!
    • Morrell1951
      Morrell1951 wendy49087

      Posted

      No, it's usually a visual diagnosis and biopsies only detect active disease. You really don't want a biopsy if you don't need one. Any skin trauma can trigger a flare in LS patients. (It's called the Koepner phenomenon.) It hasn't been proven to be an auto-immune disorder, but at this point it appears likely, especially since it often happens to people who have other auto-immune disorders. Very little research has been done, since it's quite rare and mostly happens to women, who often suffer in silence. There's no funding for any major research on LS now.
  • dakangelk8
    dakangelk8 wendy49087

    Posted

    My aunt has LS My Father had ulcerative colitis 

    Think his was because he was a roaring drunk though 

    It's all linked with hormone levels, auto immune in my opinion.  X

    • wendy49087
      wendy49087 dakangelk8

      Posted

      It is a shock and worry  as my mother had LLS  I have an under active  thyroid iand rheumatoid arthritis. my son was diagnosed with ulcerative colitis when he was only 19. I think it will be a trip to my dermatologist soon 
    • patricia86334
      patricia86334 wendy49087

      Posted

      hello Wendy...would you explain what LLS is?  I know what LS stands for, as, unfortunately, I have it!  But I am not familiar with LLS...thank you so much,
    • patricia86334
      patricia86334 wendy49087

      Posted

      Oh, I'm glad it was a typo!  I thought maybe you had a more severe case of LS and it had to be called LLS.....cheesygrin
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