Is osteoporosis actually without symptoms?
Posted , 12 users are following.
I have felt some weakness in my back. I tire easily and have to rest after standing in particular. There are other issues with my back such as bulging discs, mild scoliosis and arthritis.
I am walking with rests and I am at 15 to 20 minutes daily weather permitting.
Comments welcome from people who identify with my comments or ideas about how I could improve my situation.
I have to be careful not to set off my sacroiliac area which probably comes from the bulging discs bs I do this by sitting on straight chairs or just doing too much like going out.
Hope everyone is as well as is possible depending on your situation.
0 likes, 24 replies
Victoria1959 kathleen65757
Posted
Hello Kathleen. As I understand it, osteoporosis symptoms are mainly 'silent, and slow developing', i.e it is not until something happens that a firm diagnosis is made. Mine was painful knees following spontaneous fractures. Sounds like you are doing well with self management, I do the same with walking, and in particular careful with bending. I suppose everything is a mini risk assessment. You mention 'going out', I think it is important to do some 'outings / social' stuff; Today a friend is picking me up to go out for late lunch and aslo to deliver some chairs to another friend. If there is anyone who could drive you to places, and you could be comfortable in a car, then short distances, to a park, or garden centre (and you would probably need to ensure cushions etc taken for your back, that would - I think anyway - be a delightful experience. I love the open air, and I have acquired a knee rest with handles for getting up, so I can get at those blasted weeds between the paving slabs. It will flake me out. Especially as I shall retain the dandelions, wash and trim, for bunny. I guess as with any ailment, illness, condition, best to avoid it becoming everything. Keep with the walking though - someone mentioned Nordic walking sticks, if you could get to an outdoors place, and try them, you misght find they give additional support. And yes, hope everyone is doing okay. Sunshine, get it while you can!
kathleen65757 Victoria1959
Posted
I don't worry about going out as such as it saves money not to and my husband of 51 years is good company. I made the effort for my daughter's birthday and we both were tired the next day.
We have a large family who are coming for Easter and grandchildren we visit at least twice a year in another state but regular outings for no reason do not appeal to me.
Nordic walking sounds a bit scary actually. I doubt my doctor would approve but I will mention it to her out of interest.
i shop online for everything which is extremely convenient.
i am good at getting up and down which is surprising to me. I find the most important thing is not to set off the sacroiliac which is probably a nerve from the discs. Going out challenges that which is not worth it for me when it does not bother me anyway to be at home.
Skype is great! Hence we Skype the grandkids who are very young and funny!
i have asked my doctor why my back is so bad and she said it is the sum total of the list I mentioned.
i love being online and also we download shows that we like and that is most days for us. I set a time for outdoor exercise which is just going outside for a while. I walk then sit then walk for about 20 minutes.
I can go in the car with back cushions and neck cushion but we do not do that every day but mainly when there is a purpose.
I am not an introvert by any means so I find activities like reviewing programs and playing online scrabble with real people. I comment a lot on Facebook as well on politics and world issues.
If anything is lacking it is probably exercise. How can I make my back better without hurting it more? I have tried physio and Bowen but the nerve stays trapped in the sacroiliac. That is what makes me a couch potato. The only cure is not to upset it.
Victoria1959 kathleen65757
Posted
Dear Kathleen, yes the net is a great window on the world. I have to keep it in perspective though as easy to spend all day and night on it. Reference the nerve, would surgery to free the trapped nerve be an option worth exploring? You could ask your doctor maybe next time you see her. For me, any back pain or aches are best addressed with heat directly onto the area. When I first looked at treatments etc, there was mention of back braces, however from the description you give of your spine, doesn't sound like this would work well for you. Might be more info / pointed advice on a Back Pain forum?
kathleen65757 Victoria1959
Posted
I did try some things a while back with no success. My husband's cousin had an op on one disc and ended up with drop foot. I got a tens machine but it did not work. A lady gave me advice on here which worked for her.
I now just do not set it off as I said. Sitting on most chairs is out of the question. Standing seems to be another no no but some walking using my wheeled walker is okay but limited. Lying in bed is fine which I am thankful for so I get a pretty good night's rest.
I think I could do better with exercises though.
I read online and use an ereader so I vary my online activities. I think used properly the internet is amazing. John Clarke has just died in Australia and I have been downloading his skits he did with Bryan Dawes.
Thank you for your response.
Victoria1959 kathleen65757
Posted
Well, if lying in bed is fine, may be some gentle exercises like leg lifts and holding, knee bending, ankle rotating (can do that sitting as well?). Hesitant to suggest any more, apart from deep breathing, really deep breathing. by the way, the Nordic walking sticks was imply an idea that occurred, I've thought of it as they would give me something to hang onto, however you are getting on fine with your walker it seems.
kathleen65757 Victoria1959
Posted
Any suggestions are good because it sets one thinking.
angela00502 kathleen65757
Posted
I have weakness in my back as well and that's just from standing for short periods when washing dishes or putting the clothes away. I also have pain in my wrists and hips. All due to osteoporosis. I am just about to start a 12 week gym programme and am praying it will help.
kathleen65757 angela00502
Posted
Yes I agree with you about the standing. That is the worst, far worse than walking.
I did try physio exercises a while back but no result or lasting effect. Be careful with the gym as they can do harm. It must be someone who understands osteoporosis or you could be worse off.
How bad is your osteoporosis! Do you know your tscores?
ChristinaMack angela00502
Posted
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Anhaga ChristinaMack
Posted
Startled that a commercial link has been approved. Maybe I can get the great article I often refer to approved. If you are interested in reading about a study which showed that nutrition and exercise are as effective as medication in treating osteoporosis, have a look at
https://www.hindawi.com/journals/jeph/2012/354151/
Anhaga kathleen65757
Posted
kathleen65757 Anhaga
Posted
I was given massive doses of a drug to pull up a crohns flare years ago too which would have not helped. Crohns alone affects the nutrients being absorbed as well. People are individuals so each person has a unique health story.
Anhaga kathleen65757
Posted
I've only just read about the teeth on one of the bones sites, but had been suspecting it for a while because of what's been happening to me since polymyalgia, prednisone, Vitamin D etc.... I mentioned it to my dentist but he thought that the changes in sensitivity were just the nerves changing. But it seemed odd to me it was all the affected teeth, and the lessening or increasing of sensitivity correlated more than once with my taking, or not taking, vitamins D and K2!
Victoria1959 Anhaga
Posted
Hi everyone, at risk of repeating myself, osteanecrosis of jaw is one of the reported side effects of Alendronic Acid. After a years worth of dental work, that was another reason for me not to take it. My teeth have always been sensitive (worn enamal, and dentine). I'm not sure abot vitamins affecting teeth / sensitivity but lack of surely would be a factor? I use interdental brushes at least three times a day, lots of water, and very rarely and sugary food. Still not got round to Vit K2, another GP ne appointmenxt week, I want to ask about B12 injections.
Anhaga Victoria1959
Posted
Please read up on Vitamin K2 before you talk with your doctor as it seems most of them don't know anything about it. It has been well researched and Japanese researchers have shown that it has a beneficial effect on bone density. Some research Western doctors refer to did not use K2, which is why they say Vitamin K does not help bones. They are referring to a different form of the vitamin.
Victoria1959 Anhaga
Posted
Anhaga Victoria1959
Posted
I take it when something is prescribed it's paid for by NHS? Here I pay for all my supplements and get no rebate from our insurance. At least the prednisone I need for PMR is covered by our insurance and I only have a relatively small co-pay, but as I pay far more for my vitamins that's small comfort!
Victoria1959 Anhaga
Posted
I've looked on Wiki and it would seem the US haven't approved it, yet it has been approved for use in osteoporosis treatment in Japan since 1995. I think I will get a blank look at my appointment!
https://en.wikipedia.org/wiki/Vitamin_K2
Victoria1959
Posted
I looked on Wiki, and just posted the lin, and now my reply is being 'moderated'. So - not approved by US, yet used in Japan since 1995. If anyone wants to look, just Google Vitamin K2 and that should offer you the Wiki link. I don't pretend to understand it all, except - not stored by liver, and generally seems to be a good option.
Anhaga Victoria1959
Posted
They are unlikely to approve an external link unless from national institutes of health or sometimes medscape. You can always private message people, however.
Vitamin K2 is very important because it, and magnesium, are what guide calcium into the bones. Having enough K2 helps reduce or eliminate cardiac and other problems people can have when they take extra calcium. Because our food supply is no longer as healthy as it once was we don't get as much from our diet so many of us will be deficient in it. Even my daughter, a registered dietitian, didn't know about it until I told her. I learned about it from a friend who had been diagnosed with osteoporosis a few years ago, but refused the meds and did a lot of research to help herself find a natural way to heal. By the way, she has been successful. She moved first of all into the osteopenia range, and continues to improve! This has been confirmed by her repeat DXA scans. She has been my inspiration.
Anhaga Victoria1959
Posted
Why would Vitamin K2 need to be approved as a treatment for osteoporosis? It's just a nutrient we should be getting. I do recognize there seems to be a question about whether we should supplemetn with K2-4 or K2-7 or both. In fact it is K2-7 which we get from natto, and which the Japanese found to be important in the lower incidence of osteoporosis in the population which consumed natto as opposed to the population which did not have it as a regular part of their diet. It was noticing this difference which triggered interest by researchers.
Your wikipedia link has been approved.
Victoria1959 Anhaga
Posted
I picked up on the 'not approved by US', but used 'in Japan since 1995', it was a throwaway comment really. Agree that we should (ideally) get all nutrients from our food intake, and here in the UK, some vitamin supplements are prescribed (through the NHS whether or not you pay for them). So if K2, K2-7 is important in lower incidence of osteoporosis, you'd have thhought someone here might have twigged. Not so much an approval as a 'noted, for information'. This is why forums such as these are so vital. I'd have never known about this otherwise.