Is the light in black tunnel.?
Posted , 4 users are following.
Hi everyone,all parts of my mouth is covered with white and red patches ,tongue,cheeks , whole mouth ,also throat burning,me ,6 months ago my dentist notes white patch on my right cheek,5 months after that, I was diagnosis of Lichen Planus, spred very fast last few months , I’m scared to death ,I’m on 500 mg Betamethasome steroid for riinsing my mouth 4 times a day,2weeks now ,seems still spreading ,is so scary ,and no cure .what should I do..I give up coffee ,spicy food and sugar,Is someone here who had hole mouth with similar condition to mine,and doing good ? Sorry for my English.
0 likes, 5 replies
suzy89574 maria17676
Posted
Think many of us are experiencing the same issues. Go on low lectin diet and now I’m starting to take Tumeric for inflammation. I have been dealing with this for 8 years now. No fun and very scary cause there is the whole cancer association too! I welcome any suggestions cause I do suffer from anxiety since being diagnosed with this!
Hang in there! Deep breaths and meditation!
maria17676
Posted
Hi Suzy ...Thank you for really,I using tomeric with coconut oil every morning I suck for 15 minuets ,and spitting out ,I done one week only of that ,yes anxiety is big think ,I was under stress for last 3 years because my 12years son was diagnosed with scleroderma ,he was on steroids infusion for 6 months ,and on imunosupresant 9 months.He done well is in remission over one yer ,but I paying for my stress now.."?
dan62204 maria17676
Posted
. But this stuff is a life saver. GL
dan62204 maria17676
Posted
Hi Maria1767,
I feel your pain. Have had it in my mouth over the span of my life and on my hands and feet. Got so bad in my mouth i could not brush with a tooth brush on the sides and lost some teeth. My Primary Doc suggested using Chlorehexidine Gluconate 0.12% oral rinse USP. The blue stuff the Dentist gives you to wash your mouth out. Well after twice a day and about two weeks I got it under control and almost gone with occasional flares i still use it to keep it at bay if you will. Swish it around for about 30 seconds to a minute and don't drink or eat anything for about an hour. I never used the steroids and sounds like it isn't working. I thanked her , my Primary Doc) over and over to this day for the idea.
It's your health and mouth, ask for a script and try this rinse . Not saying it will work for you but it is cheap and also refreshing for the mouth. Stings the cheeks a little but it is a good sting.. I still have it on my hands and feet some and flares occasionally as i have Lupus auto immune thing. For that i use a salve to dry it out and quell it. I can only try to point you in the right direction. Wish you well and fast healing.
Dan
maria17676 dan62204
Posted