Is there a charity or organisation to help Achalasia sufferers ?

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I have Type 3 Achalasia and have been very fortunate to have a diaganosis ,but many seem to struggle ,does anyone know of an organisation that has been set up to advice and help people with this very rare complaint ? 


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  • Posted

    Hi Deborah,

    There is a Meet Up group that meets in London every month or so for Achalasians !  Go into meet up and you will be able to join us 

    All the best


  • Posted


    i was going to tell you about the London meet up group but I see that janski has already posted that there is a meet next weekend Sunday say you have type three not seen that discription before.

  • Posted

    Hi there,There  are certainly lots of different procedures for Achalasia. I help to run a help/discussion group for Achalasians.....we meet in London every month or so. 

    Google...Meet up groups....and look for Achalasia and you should find us.

    We meet in London as that is central for everyone...... Be great to see you at a meet up session?

    All the best.



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