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Is there a charity or organisation to help Achalasia sufferers ?

Posted , 6 users are following.

deborah07844
deborah07844

I have Type 3 Achalasia and have been very fortunate to have a diaganosis ,but many seem to struggle ,does anyone know of an organisation that has been set up to advice and help people with this very rare complaint ? 

 

0 likes, 6 replies

6 Replies

  • janski
    janski deborah07844

    Posted

    Hi Deborah,

    There is a Meet Up group that meets in London every month or so for Achalasians !  Go into meet up and you will be able to join us 

    All the best

    Jan

  • MLONDON
    MLONDON deborah07844

    Posted

    Hi

    i was going to tell you about the London meet up group but I see that janski has already posted that there is a meet next weekend Sunday ..you say you have type three not seen that discription before.

  • janski
    janski deborah07844

    Posted

    Hi there,There  are certainly lots of different procedures for Achalasia. I help to run a help/discussion group for Achalasians.....we meet in London every month or so. 

    Google...Meet up groups....and look for Achalasia and you should find us.

    We meet in London as that is central for everyone...... Be great to see you at a meet up session?

    All the best.

     

  • Shivashiva
    Shivashiva deborah07844

    Posted

    Thanks Deborah. Would have really liked to attend but I live in Sydney.
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