Posted , 4 users are following.
Was diagnosed with LS about 7 years ago and have the time as now retired (ex NHS Senior manager) to help with any research or contribute towards a trial. I can't find any relevant trials in UK. I would especially like this to be added to the 100,000 genome project if there is a clinincian out there wanting to do this. I just feel that it should not be a big problem to find a solution to LS that probably affects far more people than those diagnosed
3 likes, 5 replies