is there anyone who can't get off from PPI

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i am 27yr old male . its been 2.5 yrs i am hooked on ppi . no matter how hard i tried its looks impossible to get off them . i am still trying to get off . its been 4 months i stoped ppi and taking an h2blocker instead. but i have to take 3x150mg zantac to get any sorts of relief. i have heard that after 3 months the rebound subsidized and people can get off from zantac too.

but in my case its 4months and i still can't even reduce my dose to 2 zantac. its painful all the time .

i wish to find people who r like me. i can't even stay 2 hour's without any med . if i don't take the zantac at morning within 2 hours my stomach gets full with acid.

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  • Posted

    I can't get off PPI.  I'm 38 year old, normal BMI and am stuck on 40 mg Nexium daily for what seems like lifelong.  My GERD started in 2015 because of a hiatal hernia.  I eat small frequent meals.  I've tried the wedge pillow, aloe vera juice, mastic gum between meals, digestive enzymes, DGL licorice, apple cider vinegar in water but I CANNOT even reduce the Nexium to 20 mg.  I have also tried hernia self-adjustments.  I get esophageal aches and pains if I do and heartburn constantly, even with cutting down to 20 mg.  I'm just going to enjoy my life and be grateful that the Nexium helps me as much as it does.  I don't rule out trying again to get off of it, but I'm starting to accept that it probably won't work for me.  And I can't get a surgery because the PPIs control my symptoms.  

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    • Posted

      seems horible i feel for you . its very difficult to get off them once you r on them. but my concern is how long you will be able to continue like this. you r 38 and you can't just take this med for 20 more years . side effects of this med will definitely damage some parts of your body whats then ? what if the med stop working ? really this is a terrible condition we have to live with 😢

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    • Posted

      I know!  I've totally been where you are and some days I still am.  I read about people who took licorice and aloe vera or glutamine powder and got off the meds.  I seethe with jealousy and ask why me?  I'm doing everything that they are, so why can't I get off the meds?  I could have easily dealt with some heartburn and acid rebound, but for my esophagus to ache scared me too much and I got back on the high dose of meds.  Maybe my bones will break, maybe I'll get gastric cancer, maybe my kidneys will fail.  Maybe the meds won't work anyway and my esophagus will be damaged.  It sucks.  However, it's possible that NONE of those things will happen and I'll live a healthy wonderful life.  I truly tried everything I could to get off of them and it's not working.  So I came to a place of acceptance.  Right now I'm young and feel healthy and full of life every day.  I just try to focus on that.  In my work at the hospital, I've seen people younger than I who have it WAY worse than I do, so I know how blessed I am.  So I'm just going to have as many wonderful adventures as I can, starting with traveling from US to Italy in September.  I may try to reduce the dose in a few years or I may not.  I commented to say that you are not alone.  And I know there are many more people than you and I who cannot get off PPIs.  

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    • Posted

      wow amazing mentality you have . i wish i have such mind set. its good ppi is working for you , its not working for me anyway. it does reducing acid but it was creating loads of other problems, my esophagus felt dead on them, continuous pressure, regurgitation, globus all the time , it was horible. i am actually doing a bit better now on zantac . my esophagus is 10 times better than it was on ppi, but my stomach hurts a lot , burning all the time, pain in whole body. no medicine is giving me full relief. stress and panic attacks making my life miserable.

      actually i thought i could get off them bcos i don't have gerd problem i was actually prescribed those for wrong reason.

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    • Posted

      gaviscon advance is not available here. i use regular version of gaviscon. not really helping much

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    • Posted

      I also found the normal version not useful (advance makes a huge difference and only available here in pharmacies...but that I think that is because of a  cartel by huge companies importing the stuff here (I currently live in the Middle East)) 

      ​By the way when I was taking ppis I found that omezaprole was burning my stomach (which I had never experienced before) The only ppi worked was rabezaprole ( I believe more expensive than omezaprole hence Drs prefer not to prescribe it)

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  • Posted

    I have the same trouble. I'm 23 and this is my 2nd year on Omeprazol. I've tried many things, but all my simptoms always getting back and eventyally i gave up. Now I'm on 20mg per day, enjoing my life. I don't know how long will it lasts but i'm tired of pain and untasty food.

    However, I hope you will be more lucky and get rid of meds

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    • Posted

      once you r on ppi diet doesn't matter anymore . i am eating untasty food since a year now but it has done nothing. you r only 23 and i don't think you can take this for long time. it will start to show its side effects. i don't do good on them anymore infact i was feeling miserable on them. all sorts of side effects. so i decided enough is enough i am not taking those anymore . i don't know if i will be able to stay off them but i will try. i am actually feeling better off them. my stomach hurts a lot but overall i think things has improved a bit.

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    • Posted

      I'm trying not to eat bad food, sometimes i take ppi once in two days. I'm aware of side effects but it seems like i don't have another choice. I've tryed to get off them few times and that was horrible, i even wasn't able to come to work, that's definatly not an option either. For now I just want to take a break from my illnes, may be later i'll try again.

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  • Posted

    Yes.  I’ve been on Omeprazole 20 mg for about 10 years.  Can’t get off it. I also get regurgitation of food, espohogeal pain/pressure while on 5he PPi, but it at least controls the acid.  Hope to try again sometime, but it’s a vicious cycle.  
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  • Posted

    After endoscopy a couple weeks ago I was put on ppi (rabezaprole) for 2 ,reducing the dose after 1 month from 2x daily to 1x daily. This is inspite of  all the GERD symptoms I have. I was told that inadvisable to stay on ppis indefinitely (by gastroenterologist) 
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