Is there such a thing as Prednisone withdrawal?

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Diagnosed with PMR and started taking Prednisone in April of 2017. Started at 15 mg and decreased gradually and stopped taking it June 27. On July 6, I started having diarrhea, stomach cramps, chills, nausea and complete loss of appetite. Talked to a triage nurse today who says it sounds like a viral thing and I should start feeling better in a day or two. I cannot remember the last time I had a virus and I'm 81 years old. Could it possibly be Prednisone withdrawal?

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  • Posted

    Hi Roxanne, My endocrinologist told me that since I have Cushings Syndrome from 10 months of Prednisome that my adrenal glans are probably less than half the size because of the long term steroids and that it will take a full year once I am able to slowly taper off to get them back to a normal size and normal function. 

    A few days ago I went from 7'5mg to 7mg as per my rheumatologist & on day 2 I noticed bad pain on the outside of my legs ,above and below where my knee is . The next morning it took me 15 minutes to get my legs off the bed since the pain was excruciating . I got back back in bed & was freezing cold for 2 hours with the shakes & shattering teeth.Then I got warm & my temp. was 101.5 & I thought I had the flu. When I got to the bathroom which took forever since I was in so much pain in my side legs & now my shoulders it took me 15 min. to get up from the toilet with tears in my eyes from the pain. When the usual symptoms of the flu never came I realized my body was reacting from going down just point 5 mg & I went back up to the dose I've been on for months. Four hours later I was in pain but was no longer crippled with it. Now I realized my body isn't ready to go down a half mg. . Early on when I got PMR & most likely GCA I did get a 102 temp with the horrible chills & I read that on rare occasion some get a fever of unknown origin with these diseases. Every other time in my life prior to getting these I always had the flu following the chills & high fever but now I know if I don't get the flu symptoms that it is the PMR or GCA. Two days later I can get out of bed & walk again with pain but I think that will soon go away. Good luck on finding out if it is your adrenal glands needing more time to get back up to normal size & function.

    • Posted

      Sorry to hear about your problems. I really didn't know this could happen to your adrenal glands.My rheumy will put me back on Prednisone if it becomes necessary.

  • Posted

    Thanks Roxanne. I was glad my endocrinologist told me what Prednisone did to my adrenal glands since my rheumatologist never told me. It is very important that we know that since our adrenal glands are so important to the human body functioning normally and if long term steroids shrink them down to a small size & now longer functioning since the Prednisone takes that away ,many don't know what is wrong with them when they don't go off the steroid very slowly for about a year which gives the adrenal glands time to grow back to a normal size. SO GLAD FOR THIS SIGHT TO SHARE INFORMATION WITH EACH OTHER SINCE WE ARE ALL GOING THROUGH SOMETHING THAT MOST OF US HAD NEVER HEARD OF PMR & GCA UNTIL WE GOT IT .I went to 4 doctors before I was diagnosised.

     

    • Posted

      I also went to four doctors before I was dignosed. This site is wonderful.
  • Posted

    Ask f it could be Adrenal Insufficiency and I would not delay.  Prednisone suppresses the HPA and age considered also it could potentially suppress your adrenals from doing their work without supplementation.  I am not a physician and can only speak from personal experience and that is what happened to me.
    • Posted

      How did your doctor treat your adrenal insufficiency?  What reduction plan did he suggest?  Did he switch you to hydrocortisone?  Have you been able to get off prednisone?  Etc.   I have adrenal insufficiency and have been waiting to see a specialist (waiting 4 months so far....ugh) and I’m looking for suggestions of what I could try while I wait. 
    • Posted

      Thankfully, I did not have Adrenal Insufficiency. In fact, I don't know exactly what I had except I managed to get myself dehydrated. Was told to start eating and especially drinking or they would have to put me in the hospital with IV fluids. I was also told no need for antibiotics. So I did everything I was told to do and got over whatever it was. I want to thank everyone who offered advice.

       

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