Is this a burn out phase
Posted , 6 users are following.
I have now been sick for 7 years and have been on propylthiouracil for 4 years. My symptoms remained bad throughout but now they have altered slightly. I always got body pain, anxiety breathlessness, etc. But now i feel like i have been beaten and bruised. My bp is a little low and i feel a bit woozy. Also very tearful. allergies to perfumes and chemicals through the roof. Chest and palms bright red and i feel so miserable. My left eye has also been mildly twitching non stop for 2 weeks and is making my vvision feel weird.
My thyroid results seem ok TSH 1.3 but my FT3 has gone from 5.8 to 4. Is this the burn out phase kicking in? One minute i boiling hot then freezing cold. How l9ng will this go on for before this thing dies off.
My liver kidneys and ovaries are cystic, I am making lyme antibodies, vasculitis is borderline. Doctors can'tseem to agree wwhat's wrong but maybe my thyroid is causing all this weirdness. I have paid thousands and thousands over the last 7 years and regardless of the PTU I have felt chronic for the entire time. Now thing are getting worse. I feel like I'm dying and doctors just shrug and say that my thyroid wouldn't make me feel this way so I must have an underlying problem. I show them my lyme results and they shrug and say do another lyme test mi aybe it's a lab error. I get weird porphyrin readings and they say maybe it's a lab error. if we remove your thyroidthere's a 5% chance you will feel better.
has anyone else been through weird test results with hyperthyroidism
1 like, 11 replies
renee48912 jeanette25032
Posted
Good luck
linda187 jeanette25032
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jeanette25032 linda187
Posted
I have had all the autoimmune tests and everything is normal. Docs say they haven't seen a case like mine before as it's multi nodular thyroiditis that doesn't uptake and hyperthyroid. I was healthy until I began getting allergies 7 years back and was given a shot of corticosteroids. Within 15 minutes all hell broke loose and i never recoverred. I can't work or drive as my vision seems off and get panic attacks. I feel so ill. My USA lyme test was positive but UK won't accept tests from USA. My UK lyme test was negative and my French one showed p39 antigens which are specific to lyme. I live in the Middle east and from 88 to 96 i was a stewardess flying all over the world. I did suffer from vertigo from 97 to 08 but otherwise health was ok.
should i get a thyroidectomy to see if it helps as my thyroid has nodules anyway.
linda187 jeanette25032
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renee48912 linda187
Posted
Renee
linda187 renee48912
Posted
renee48912 linda187
Posted
Renee
linda187 renee48912
Posted
renee48912 linda187
Posted
Thanks Renee
renee48912
Posted
fern12 jeanette25032
Posted
Lyme disease can affect the thyroid testing, at least the TSH.
It seems to me that you are being over medicated with the PTU.
Twitching can be caused by low magnesium. I would take some every evening and the twitching subsided. Low calcium or low Potassium could also be a problem, but it may be best, particularly for Potassium, if you get it from food. Bananas are rich in potassium, but so is Orange Juice, or other fruits. Potatoes are also high in potassium. If you consume milk and dairy and if you get a banana or orange juice daily, you could try the magnesium pills. Sufficient Magnesium is harder to get from diet, but be careful not to overdose, either.
Having a 5% chance of feeling better with thyroid removal isn't enough to take the risks, in my opinion, and it is not reversable.
I have followed Linda's advice about the Acetyl-L-Carnetine and it has helped me, too. My doctor had me take prescription vitamin D when a blood test showed I was low.