Posted , 5 users are following.
I have been a member of this group for some time and have received support which has been of help to me and I hope I have been able to give some support back to the group.
But I believe we are just a group of sufferers who can benefit from our shared experiences.
I am concerned that some people come on here expecting to receive a diagnoses of their condition in lieu of, or perhaps seeking an alternate to, their qualified doctor or consultant.
Perhaps I am wrong, but I think if I am right then it should be made clear that this is not a source of expert medical knowledge, which is in anyway a replacement or accessory to the professionals.
What we know from our own experiences and have gained from our own studies into our own conditions, may be helpful to others. But I do wonder when people come on here listing their detailed tests and results and seem to expect an expert answer.
0 likes, 5 replies