Is this an ovarian cyst? And does it need removing because so large?!
Posted , 8 users are following.
Hi all. I've just got back from a full abdominal ultra sound scan. For the past year or so, I've needed to pee on a regular basis that seems more often that others, for example I can't hold for very long, and need to pee 1 or 2 times at night. I thought maybe I have a small bladder and so went for a scan to check.
To my complete surprise, a large cyst was found!! It measures about 14 x10 x 9 cm, she said the size of a grapefruit On the scan you could clearly see it pressing on my bladder, which was full as I had to drink for the scan. She was not certain what type of cyst it is, but it is blood filled but no blood flow.
I was really shocked because I never have any pain, I do a lot of exercise, and eat healthily. I'm in my early 30s. My periods are regular and not painful, and I never have tummy pains before/during or after my period. I dont have bloating, and my tummy is flat so no external signs. So I am unsure if this is an ovarian cyst or something else? And I'm really anxious that because of the size it is ovarian cancer, yet I have no associated symptoms (I have a large appetite, normal weight, not fatigued).
I have a referral to a specialist soon, but just wanted any feedback as I am so scared now to know there is something that large inside, yet causing no issues other than frequent peeing! I am also terrified it will affect my fertility (no kids yet but planning to with my hubby). I am unsure if it will need removing, and if so, how.
Please let me know if you have any info or advice!! Thanks so much!
0 likes, 14 replies
Christy123 anna2525
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anna2525 Christy123
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Guest anna2525
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You mentioned that the cyst is not connected to an ovary, which sounds like good news, but that it is near the bladder. I would think that the specialist will get more scans that will give a clearer idea of where it is located; I had both vaginal and pelvic ultrasounds. In the meantime, take deep breaths and try to keep positive thoughts. A cyst that large may need to come out in order for it to stop putting pressure on your bladder, but it may very well be benign. Take care of yourself and keep us posted!
anna2525 Guest
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Guest anna2525
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kt.84 anna2525
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I had mine removed October 2014 via open surgery and had 8 weeks off work to recover. I still have problems now with pain and I had blood cysts that weren't going through as they should after surgery but now I am having further problems with pain and great discomfort I feel there could possibly be another cyst 😕 but until I get to GPS and get referred which takes so long!! It's a guessing game.
My surgery itself was great I had an amazing surgeon who took pictures of my cyst to show me which I took a picture of to show those who wanted to see. An I was out of hospital in 2 and a half days! ☺
adriana36410 anna2525
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Thank you all in advance.
Sugargotthis1 adriana36410
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anna2525
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I also have a referral to an endometiosis specialist in about 2 weeks, for a clearer diagnosis. I am wondering, rather than removal, perhaps the cyst could be drained (or at least the largest compartment) so that I can then try for a baby. This would reduce the risk of having an ovary removed. Also, I have nevver had gyne issues before, and then after surgey they may start, which is what I am afraid of. I guess my biggest fear is infertility. And I keep thinking, what if I had become pregnanct before knowing about this cyst...would it have affected the prgnancy, and if not, then maybe I should leave it and try for a baby?!
So many questions!! I am so grateful to my wonderful husband, I am also really grateful to everyone here who takes the time to read and comment xxx
kelly37526 anna2525
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anna2525
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So overall, I am still in a state of sadness and feel very upset, for now being told it may be endo, and that I should have had kids many years ago. I feel like I have done something wrong! And that all I have done to be healthy by eating and exercising has come to nothing. Sorry, feeling pretty desperate and upset. So I will see my specialist end of the month, and this will probably be to talk about having a laparoscopy to remove the cyst and reduce the scaring on the other ovary. I am so scared my ability to have kids will be reduced or non-existant. I didn't think 33 was that old, but now I feel ancient and helpless!!
Guest anna2525
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jm35710 anna2525
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Do you have any updates on your case? I too was diagnosed with an ovarian cyst that's fluid-filled. I'm a nervous wreck. I don't even know what to think anymore...
Sending hugs your way...
anna2525
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My updates so far......I've got a laparoscopy booked for 25th May. So nervous of my first every surgery! This forum has been amazing in helping to prepare.
I saw the consultant again. He said we need to take a 2 stage approach because of the endometrioma/cyst size (14cm). He said it is most likely an endometrioma, although there is slight chance it could be a 'mucous filled' cyst, but unlikely.
So in lap 1 surgery, he will drain the cyst and attend to any adhesions, as it looks like my other ovary is stuck to my uterus.
Then for 3 months I’ll have hormone injections (zoladex I think) so the cyst can shrink and not be agitated by having periods.
And then another lap to remove the cyst. The consultant said this approach is the best one to try and minimise the chances of needing to remove the ovary, and protecting as much ovarian reserve as possible, However, he did warn me the ovary might already be damaged (which was difficult to hear).
Honestly, I don’t know what to be more nervous of, the surgeries, the hormone injections and side effects, or the possibility that my chances of conceiving might be significantly reduced! So worried about all of it but aiming to stay positive and optimistic.
Has anyone else followed this approach for a large cyst?
Thanks again and I hope everyone is well!