Is this disease in the brain or ears??

I have been dealing with this since 2008 an I had a war perfusion in April an the tinnitus has gotten worse an I agree the dr are not trying to telling you any thing different they are just going by what the other dr had done or told them it post me off everytime I go there not in my body I know what I feel an try to tell him what's going on or what has changed

sadly, no one knows what causes it.

There are many ideas and suggestions, but no one says for sure. I am going with Auto Immune this week. 

Hi. I’ve noticed that there has been an increase in noise recently which coincided with my sinuses playing up due to allergies. Stuffy nose etc. Also I had that really irritating thing that sounds like water plopping on the ear drum. So I have been using my Beconase allergy spray twice a day and the tinnitus has returned to its normal quiet wine. The plopping noise I googled and it seems to be caused by malfunctioning eustacian tubes and I did what the website suggested which was holding my nose and puffing out my cheeks hard. The plopping has stopped!  It may all be coincidence of course but I’ll try anything. 

The relationship of menieres to migraine is so close and overlapping, that some Dr's believe they are one and the same. Regardless of migraine or menieres, why one side? Why does it then go to other side in many people? They don't know, but I also like the autoimmune angle, as well as structural issues in neck and/or head blood vessels being pinched or slightly malformed. A recent study on sudden sensioneural hearing loss implicated risk factors for coronary artery disease (tiny blood vessels in inner ear may get intermittently blocked). I would like to know if anyone with these symptoms of menieres or vestibular migraine had to eventually go on medication to make platelets less sticky (like Plavix) for another reason, but got better with regard to menieres symptoms? I ask because I know 2 people who had to go on this drug, and noticed that their traditional migraines went away (but they never had vestibular symptoms). Perhaps coincidence.

You know, I kind of think you're probably correct in saying that it involves the brain because the brain is the boss! 

Kidding aside, I think what everyone is suggesting like migraine, allergies, depression, malformation, blocked meridians (energies) all play part in this condition. The answer? I don't know! I wish we knew enough about the brain to actually make a change. But, like everyone here you just keep trying different things and combinations of things to minimize symptoms and try to have a bit of a quality of living.

 

I have had this condition since December 2012 and my life has changed - i cannot make arrangements to go out anywhere and i have never felt so tired and fatigued in my whole life - The Tinnitus is actually driving me crazy and it really gets me down.  I have never experienced anything like this in my life.  The pressure on my head/face/ears its as if my head is ready to explode - is anyone else like this.  The doctors don't help just keep saying try this tablet try that tablet .  I just wanted to join and see if other people feel the same way i as i do.  It took the doctors 1 year to say this is what i have , they also thought it was labrynitis.  Not sure how to spell that. I cannot believe there is not a cure for this too

Hi Cathy. I am in the care of a neurotologist at a university hospital in Cambridge U.K.  the clinic specialises in Meniere’s and other vestibular disorders. They are also highly qualified surgeons. I am currently on 24mg x 3 betahistine per day and this has been a lifesaver as my life is now back to normal.