Is this fibro or something else???

I had severe twitching/spasms in my hands and legs early on and still get them in high stress incidents. I am not sure why so many doctors seem to be treating pain with amitriptyline, if you look it up its used for painful disorders but not just pain. I use it as a sleep aid only, its worthless for anything else because it makes you so sleepy! Shoulders are a fibro trigger point but in the entire 15=+ years of my fibro its only acted up 2-3 times max, that doesnt mean you wouldnt I just do not have that as a common pain spot. Are you sure the shoulder pain isnt stress strian on your muscles? I have had to have massage therapy twice for this, I get stressful or hunched from the pain and I get bad in the shoulders. For that my best friend is a theracane, look it up, its magical =D. Your other pain symptoms sound spot on for fibro. 

Dizzy spells, not so sure. Not something I have had myself. Have they done psych tests to determine if they think you might have a conversion disorder? I went through testing for that early on especially since the lack of diagnosis brought on depression. Some of your weird symptoms I dont think sound right but I have hypersensitive skin, which could be what you are experiencing but you are describing it different than I would. One thing I can say for sure. Get a second Rhumatologist. I had to do this in the beginning as the 1st was mad he had to test me because he was not seeing patients and the office screwed up my appt and I insisted on being seen. He did the this ( http://www.health.com/health/gallery/0,,20345635,00.html#where-does-it-hurt--1 ) test by only running his hands up and down my body and saying I was fine, in other words he didnt actually do the test. The next doctor I saw had been dealing with Fibro and Guillian Barre for 20 years(this was in the early 2000s). I tested 14-16 out of the 18 points, you only need 11 for a diagnosis. Not all doctors are good Im afraid.

Hi Lossa:  First of all, I am so sorry that you are going through so many things.  I know how frustrating that can be.  What I would like to know is if any of your doctor's ran any blood tests on you?  Also, do have have any fatigue and/or body pain?  I was diagnosed with Fibro about 11 years ago.  I know for me, I had extreme fatigue and pain over my entire body.  I did experience some of the symptoms you described as well.  My fingers felt tight all the time, which I know now was from inflammation.  I had tingling in my hands and had carpal tunnel surgery on both of them.  I had depression and anxiety also.  The problem is that so many auto-immune diseases have the same symptoms.  Just don't ever give up trying to figure it out.  My 17 year old daughter has been going through similar symptoms and after a year was finally diagnosed with Lupus.  Yes, Lupus sucks, but at least now we know what it is.  Jackie Cirillo

I have been asking myself this same thing. When I talk to people who have fibro they talk a lot about terrible debilitating pain. I dont have that. But I have tons of strange symptoms like you. For me it started with an injury in my ab muscle. Lead to chest pain, back pain, intense pins and needles, electric shock type pains and then numbness, in my legs, muscle twitches, stiffening of my joints (especially in my fingers) and the most annoying is lately this building pressure in my face/ears and numbness in my face. My anxiety which was under control is horrendous now.  Ive been wondering if this is on the spectrum of fibro or if it could be lyme or auto immune. But then part of me thinks it could be all anxiety. Its been really adding to the stress not knowing what is wrong. 

Have you thought about an endocrinologist to comprehensively test your thyroid? Or finding someone who knows about lyme? Its my inderstanding that those two things can be as hard to diagnose as fibro...  I hope you find some answers! Also, keep working out. Not working was actually making all of this worse for me..

did you get to the bottom of what it was? i am going through the same thing. on and off for a tear and a half. spoken to 3 neurologist, seen 2. been to rhumetologist. had MRI and bloods. it can go away for a while then flare up for days again. no one has ever mentioned fibro but the more i look into the symptoms i think it might be accurate as nothing else has been mentioned or found

Usually, I never comment on blogs but your article is so convincing that I never stop myself to say something about it. You’re doing a great job Man, Keep it up.

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