Is this fibromyalgia?!

Posted , 6 users are following.

This is a bit jumbled as ive just wrote in my notes bits of stuff i have... 

JUST WALKED LITERILY 5 mins from getting off bus and walking up the street to home MY LEGS HIPS AND BUM CHEEKS ARE HURTING SO MUCH ALL THE MUSCLES UNDER MY SKIN AND AROUND BONES ARE SO SORE STRECHED STINGING PULLING tighhtness pain!!! Im sick of this everyday all the time its not normal!!!!! 

In bed have to rotate sides i sleep on as hips and back stiffen and ache bad 

Upset stomach offen, bloating, cramps, diareaha 

Symptoms all the time! - and above just from walking few mins to bus/from bus everyday and thing i do its this pain and tightness and tingling slightly numbness but it varies from warm burning tingles fuzziness to like yesterday and now its all the same but its a cold feeling of tingling like cold water running down legs  

In the bath when shaving my legs my hand cramps so bad i have to stop, and hold heavy shopping bags walking from bus (5mins) home they do the same but not as bad as when shaving 

On waking stiffness in hips back legs like wooden legs

If im walking the hour to school and hour back twice a day my hands puff up and go blotchy and sting and tingle 

And if i sit or lay for a while even standing it aches and is stiff and its like all muscles are stretches and burning

When ive been sitting even for 10 mins getting up is like im 80 years old have to hold back for a min and push so standing quicker - also my knees always stiff when been sitting for even a short time feel like will give way as stiff and takes a min to straighten up. 

Migranes on and off 

And throbbing pain in left temple

Feel like been hit by a bus

Feel wobbly bit fizzy sometimes 

Arms legs like lead

So heavy draggy feeling all over 

Tingling all over aching burning fuzzy feeling and also all the same but cold feels like running cold water down my legs and knees 

Restless legs and cramp in left calf 

Tiredness, someday just have to lay down for couple hours as feels like i just shut down

Feel like i have flu everyday the aching 

Forgetful alot 

drop things for no reason its just like it flys out my hands 

Had a hernated disk L5/S1 in 2013 mainly S1 that lasted 4 months and ruptured onto spinal nerves (physio rob told me that)

Have had light numbness down left leg and little toe ever since then 

Have been on cocodamol 30/500 ever sonce then and have amitritaline 50mg at night for nerve pain

Diabetes type 2 (diet controlled)

High blood pressure (ramipril 10mg 1 every morning) 

Vitamin d low was on high levels from gp (now ok)

I thought id become latose intollerent 9 years ago but now i believe its due to maybe fibro too 

2 likes, 12 replies

12 Replies

  • Posted

    Ive been back to gp for years with same things, and this gp did say he can send me to a specilist so ive bookes an appoinment for next thurs to ask to just be refered as my sister has just yesterday been finally diagnosed with fibro  after 10 years and we both have same synotoms except i get the headache and it hurts all my muscles from Ribs down even when walking 5 mins, everything has been there for 6-9 years gradully more adding and its not normal im 38 and feel 90 years old 
  • Posted

    I’m diagnosed and that sounds like you are describing me a few years ago...ask for a Rheumatologist referral, even if it’s not Fibromyalgia it could be something else autoimmune like or arthritic, or both like me. Hope you feel better soon smile 
  • Posted

    Hello. Sorry to hear that you are struggling with your fibro 😞. When it comes to walking, I can only do about 9 minutes daily, can only do up and down the stairs twice, too painful to do more. However, I've been told to pace myself ( do a little a day, stop before it hurts, then slowly increase.) For example: walk for 5 minutes daily, for a week or two. Then up it to 6 and so on. Not sure if this would help you?.

    Don't worry, you're not alone.😊. Rachel

    • Posted

      Hi rachel x i havent been diagnosed with just feel it is that, as gp from last jan went from doing vit d tests that came back as 14/35mmol so was low and gave high dose vit d3 capsules, had 40,000iu every month for 3 months then still had all symptoms so he gave me another 3 months course of 40,000iu a month so had those 6 months in total, then he put on repeat calcium 500 and vit d3 800iu chalky tabs so then my vit d levels was normal again and all pain still there as that can cause pain he did a anklosing spondyutias (cant spell that) gene test (that was negative) he did a mylenoma test for bone cancer (didnt have that thank god) he did plasma viscostity test that had high level so gave me narproxen for 2 weeks no change on pain just put bp up did another plasma viscoity test (for inflamtion in body) and it went down with antiimflamotries, went back again same pain and no change so said i could try amitriptaline 25mg for nerve pain so did that after 4 months better as in can wake up not needing cocodamol but once been up took kids to school im aching so bad and the burning feelings so need painkillers and hot water bottle on back n legs, so i went back and hes upted the amitritaline to 50mg again better as in i can sleep (i wasnt sleeping in a year on and off allnight shattered allday, so its helping with sleep still wake up but can get 5/6 hours now a night, so i still have it all after an hour of waking again, so hes upted me cocodamol so i can have 6-8 doses a day as its that bad im needing them as i cannot take ibrprofen or narproxen as i have high bp and soon as i take those it shoots up to 154/109 and get awful headache only when bp is in the 90s/100s for bottom number the more dangerous one, my mum had massive stroke due to high bp no one knew she had and my nan died from massive heart attcak so i dont want to risk the anti inflamotries, the last plasma viscoity he did was ok again, just feel lost 
    • Posted

      One of my sisters is 51 she works all dif time shifts, i have 3 friends who are 40/& 2 thats 47, a lady grandma at school is 82 and so fot and walks fast i dont get it in 38 and feel 90 x

  • Posted

    Hello, Toni, sorry you have all this going on. I have those symptoms, have been diagnosed with fibromyalgia and PMR, an autoimmune disease. You’ll have some days that are better than others. It seems doctors don’t really understand what we go through. Only those of us who have the disease can understand because we go through the same things. Hang in there! Always know you will have a good day. Hopefully soon!💗

    • Posted

      Hi linda, Did you have a rheumatologist referal and was it them that diagnosed you? And how long was your appoinment and what do they do while you are there?  X
  • Posted

    Hello, I am 72, live in the US and was first diagnosed with PMR by my GP. He did blood tests and put me on Prednisone which helped. This was in January of 2015.  He always made my appts for close to an hour long, listened really well to all my symptoms and had many other tests done as well including an MRI of my brain. Since pain and stiffness were still present in different areas of my body and other symptoms, he referred me to a rheumatologist and she diagnosed me with fibromyalgia in addition to PMR. She did blood tests, she also did the pain points pressure test on various areas of my body and they all were painful then she referred me to  a spine specialist. Dr. Lairson had MRI done of my back. I do have spinal stenosis and other arthritis problems. All of this took years. My symptoms were present long before I was diagnosed however.
    • Posted

      Thank you linda for taking time to reply to my millions of questions lol, is difficaulty swollon food a thing/symptom cuz i struggle almost every time i eat now this has been past 3 years now like it gets stuck in food pipe and have to not panic and wait for it to go down very slowly and painfully 
    • Posted

      Toni you should get the Dr to check out why you cannot swallow. I don't think that is part of Fibro. Hopefully they can do something about that problem for you.

      ? I have had Fibro for many years, and sadly all your symptoms are similar to mine, but I do hope your problems go away. All the best

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