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Is this Fibromyalgia

Posted , 8 users are following.

crystal80296
crystal80296

 I have these symptoms for over a year and each time it's a little different.1. I get burning back of head usually back of left side neck at the base of my head then it goes up to my top of head. 2. I get dizzy or drunk like feeling, usually with a bowel movement. 3. confused feeling, lots of gas. 4.My back of the left side between my should blade and spine has a constant pain. 5. I crack in weird places I never used to. Example, the back of my head makes a cracking noise. Sometimes my chest will pop. 5. Burning in my abdomen, sometimes. 6. Pain by my heart or breathing, usually when I have to poop or pee. 7. Feeling like I have poor circulation when I sleep or awake in the morning. I will often wake up because of numb body parts.  8. jaw pain or jaw burning. 9. I will get like heat or burning in chest to face then, I sometimes break out in a rash? I get red bumps on my skin, often. This comes usually with my hot face feeling. It kind of prickily. 10. tingling in hands of both. 11. I get weird beating or heart beat beats faster sometimes. 12. I feel nausious when I drink water, often. Or when have to poop, sometimes. 13. short of breath at times. 14. Floaters in the eyes. 15. head pressure or eye pressure. 16. Tired arms, usually left arm. 17. If I push on my chest with my fingers at the right time, it will hurt so bad MORE than normal with just a push. 18. I bruise so easily on my legs. 19. twitching in different areas more than norm. 20. I find pain in certain area of my body that should not hurt. 21. crawling skin on head at times and, muscles moving or slightly tightening for no reason on my upper body. 22. Tooth pain all of a sudden, then goes. 23. I feel different in my mind.    I have been to the E.R. a lot, it's annoying. They usually do not find anything wrong. I went to my Doctor she said nerves and I have ibs irriatable bowel. I have a heart ultra sound looks good. I have bad tooth decay. I had a bad tooth infection 1 year or 2 ago. I used to drink a lot of energy drinks and WAS addicted to pain killers for about a year. All my basic blood work came back normal. I had an allergy test my Doctor said I don't have any.  Of course I was diagnosed with anxiety. I say of course because, it seems like a trend that most people have, Thanks, for your time.

2 likes, 18 replies

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  • janet26165
    janet26165 crystal80296

    Posted

    Hi Crystal. Fibro affects us all differently. Some of your symptoms sound like they may be fibro.

    I would make a list of all your symptoms as above and take it to your next GP appointment.

    Ask your GP if you could be sent for a second opinion by a rheumatologist, they are the usual people who can diagnose fibro.

    Good luck, take care and gentle hugs

    • crystal80296
      crystal80296 janet26165

      Posted

      Thanks for your reply. Thank you for the information, I will ask my doctor next time I go in. They look at each individual symptom not as a whole thing, you know. I am just getting tired, I have 3 kids and, I am only in my early 30's. Thanks for the hugs, sure could use thembiggrin. Hugs to you too.
  • kaz_40
    kaz_40 crystal80296

    Posted

    Hi crystal I agree with what Janet said write down all your symptoms, and see if she would refer you to see a rheumatologist. normally its the rheumatologist who diagnoses fibro and thats after ruling out other conditions like rhumatoid arthritus. the rheumatologist I saw sent me for a bone scan bloods taken and he did a pressure point test all over my body. their are 18 pressure points I had the full 18 when tests came back it showed low vitamind. It took me 10 years to get a diagnoses that was after many many tests andd seeing different specialists. Hope your gp will refer you good luck take care
    • crystal80296
      crystal80296 kaz_40

      Posted

      Thanks for your comment. I will ask my Doctor to refer me to a rheumatologist. Wow, that's too long for a diagnosis, sorry about that. I hope you are feeling as good as you can now that you know what it is.

       

  • brenda42506
    brenda42506 crystal80296

    Posted

    Sounds familiar. I was in & out hospital a lot with anxiety. Really bad panic attacks. And all your symptoms with neck snap crackle pop. And back feeling like needs popped all time with back pain. Burning in head/ throat problems/ thick clear mucus in throat/ joint pain/ bone pain/ tenderness/ numbness I wake up with. You have Lyme disease or Rocky Mountain spotted fever. I was finally diagnosed in 2013 with Rocky Mountain spotted fever
    • crystal80296
      crystal80296 brenda42506

      Posted

      Thank you for your reply. I never saw a bulleye rash. I don't think they always occur. I am in Michigan, and this was around fall. What tests did they do to comfirm it? I was kind of thinking that it was lyme too it has similar symtoms as fibro. I hope for some real answers from the Doctor, I am getting tired. 
    • brenda42506
      brenda42506 crystal80296

      Posted

      I'm not really sure what test they did on me but I've test positive every time they have tested me. And I never got bulls eye rash either.
  • derek1979
    derek1979 crystal80296

    Posted

    even though most of the symptoms you have described sound like it could be fibro to be on the safe side i would go to your gp for test to rule out other possible causes and 1 of your symptoms concearns me which is the breathing and chest pain you need to ask your doctor for an ecg and blood tests to rule out any possible heart condition it could just be costocondritis but you have not mentioned anything about your ribs mainly the 4th,5th, and 6th ribs feeling tender which is why i would strongly advise you see you doctor for further test good luck and let me know how you get on and i will keep my fingers crossed for you
    • crystal80296
      crystal80296 derek1979

      Posted

      Thanks for your reply. I have had many ekg's they always came back normal. I did have a heart monitor for a day. I guess something like I have an extra beat or something but, it's common and normal the doctor said. When I push on my upper ribs like the1,2,3 they hurt sometimes. I will keep in mind your comment. Thank you.
    • kaz_40
      kaz_40 crystal80296

      Posted

      Thats the trouble with fibro Crystal80296 every test you have comes back normal. I have had breathing problems and chest pain had tests done both came back fine. fibro can cause breathing probs and chest pain. fibro affects your entire body from head to toe. it affects each every one of us differently. it does sound like it could possibly be fibro. your gp needs to rule out other conditions. then send you to a rheumatologist they are the people that normally diagnose fibro. Its funny you mentioning an extra heart beat Im the same. take care gentle hug 
    • faye______00403
      faye______00403 crystal80296

      Posted

      Probably your extra heart beat is Premature Ventricular

      Contraction.  (PVC's) I had that a few years back and it scared me

      half to death but I had no pain.  Doctor explained that it is

      very common and a benign condition.  Doesn't mean that

      anything is wrong with your heart.   A couple of years later

      I was put on blood pressure meds and I don't feel that

      extra beat anymore.....

    • derek1979
      derek1979 crystal80296

      Posted

      it could be costocondritis go to your gp just to be on the safe side and good luck
    • crystal80296
      crystal80296 derek1979

      Posted

      Thank you for your reply. How long can you have costocondritis? I have symtoms for over a year. The first time I noticed any real symtoms, we were driving and we were going around corners and turns and then my hands started tingling. I felt I couldn't catch my breath then, I was hyperventalating (sp) I have been feeling different mentally during the time. I went into E.R. she said my keytones? were high at the time. Went to another place said I was fine. Then after, any feeling on my hands would be exagerated. I also as many, have been diagnosed with depression. Thank you all for your comments it means a lot.
  • deb97936
    deb97936 crystal80296

    Posted

    You have written up a list of my own issues with Fibro...   I used to get the odd IBS but not so much any more.  I put it down to stress of the constant pain, coupled with the anxiety it brings, all at the beginning when you live with NO diagnostic and no-body (doctors) are listening, and being treated like a Hyperchondriac.

    I have cold pain in my left side of face at times, tighting of the minor muscles over the back and mainly the left side of head into face.  The click and clack when I move, and sometimes very painfully!

    I suffer with issues through out my whole body, inside and out, eye's, ears, mouth, my tongue, head, whole of spine inclusive neck!... all my muscles, bones and joints.

    Electric zaps across the very back of my tongue are so dam annoying. The Tinnitus all day every day.. and painful stiffness, and pains inside and out.

    After a nasty MVA where I was slammed round inside 4X4 (in two wheel drive at the time) initially at 95km's on a munted shingle road, the GForces are HUGE inside the cab of a car, when the car 360's up into the air gaining speed like a spinning ice-skater, and takes off flying and repeatitively impacts back over front, a mix of passenger front impacts to over in the air to impact drive rear or driver front the over in the to passenger and on and on and on and on.....  A person has their head whiplased at god awful angles, you feel the burning ripping of nerves in the soft tissues and the feel of your spine stretching to almost dislocation then slammed back onto itself, many many times this gets repeated, and then to top it off as your body is thrown round like a high powered bullet recochaeing (splg?) inside the cab your head is forced into the roof, the pillar, the sun roof, windscreen and window frames (because the windows have gone now) and the compression of your spine being forced into your head is HUGE, and this is when you back fractures, breaking verterbrae and squishing up your discs. The repeat performance also when your spine does figure 8's slamming sideways into door panel and consol. and your body is thrown over the head rest and your head hits the lower swab of the back seat.  All this happens with a seat belt still in place, so imagine please, the gravity when you don't have your seat belt in place!  

    Actually I can imagine now that my brain allows me to think and imagine, it didn't for a long time.  As a result of initial undiagnosed back fractures, NO full spinal xrays, NO immediate Head Scan, I am one who has had to live the consquences of of NO Treatment, all thanks to our Lazy NZ Ambulance staff who set me up to fail in the A & E dept here. Doctor ignored me, even the 'Fit/Siezures' I was having.

    My now GP refuses to acknowledge the CNS damage (Central Nervous System) damage that Three other Professionals advocated.  Which even his own colleage agreed is Fibro.  I cannot get my GP to refer me to a specialist.. I am very limited where I am for choice of GP, as there is only one medical centre with 2.5 doctors. The .5 is an occassional Locum.

    I have had all other tests for diabetes, and levels of everything. Normal as usual.

    Yet I am 85% house bound now, in pain all day with the other description of issues described.  Been many yrs now.  Nothing will make it go away.. maybe take the edge off occasionally.

    Some days I have no strength at all to get up steps, it is like there is no energy in my muscles, they are also so very tight and sore. But they are like that from head to toe.

    Sorry it's turned into a bit of a vent.. not a good day here. It's a cupper, tv and couch day, with occassional stretches and a hot soak tonight with a sleeping tablet to aid sleep tonight. To help relieve muscle tension..sleep is good for that! Otherwise like others I don't sleep well, or hardly at all.

    • crystal80296
      crystal80296 deb97936

      Posted

      No, it's okay to vent. With all the frustration of going to the doctor for many years as some have here, and them supposed to know what's going on with you, it's their darn job to, so you can live at least a semi- decent life is nerve wrecking in its self. I am so sorry to hear that. I don't have it as bad as some I wonder how in world do they do it but, it's scary and the pain is like you can't live a normal life but, you look normal so some people don't understand that. I would say see a different doctor but you said something like there isn't many near you. I was reading a little where many car accident sufferers have fibro. I hope the very best for you. I pray you get somewhere in this. I had my doctor say it was all in my head etc. it's like no, I know my body and something is different. Be strong and don't you dare give up!
    • Aphroditeslight
      Aphroditeslight deb97936

      Posted

      Has anyone mentioned, TBI( traumatic brain injury) to you? I have been in three serious accidents. The last one, last April, has totally changed everything in my life. I didn't know what was happening to me and it only gotten worse. Little is known about TBI. I suggest you read up on it. I'm now looking for another state to move to, that has drs better educated with TBI and has other sources of help for people with TBI. GOOD LUCK AND WISH YOU WELL SOON. There are support groups bon dBm, that offer emotional support and people who have TBI that may can direct you where to turn. They've helped me tremendously.

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