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Is this fybro real?

Posted , 5 users are following.

vaughan72062
vaughan72062

Are we being 'fobbed off' with yet another 'easy diagnosis'?. I have had painfull fet since I had to have drugs for Atrial Fibrilation. I don't sleep more than 4 hours without waking up with painfull feet, lower legs and I can only last 4 hours if I have 2 paracetamol before I go to sleep. I have had a stent in recently and have yet to find any improvement but I have had a chest infection and a bad hip, ( I am 64) but have always been very active. I can't see a Podiatrist because I have to pay private, and as a 'poor' penshioner, I can't afford it, even after working for 44 years.....

1 like, 15 replies

15 Replies

  • anne90395
    anne90395 vaughan72062

    Posted

    Hello Vaughan,

    Tend to think this Fybro is real, especially as many doctors are reluctant to diagnose it. The diagnosis is one of elimination, and not easy. For me it has been pain and sleep problems. You are putting up with a lot. I see, but I don't have any answers - sorry. You have the same surname as me, Vaughan, so I wondered about your ancestry.

    Take care, Anne

    • vaughan72062
      vaughan72062 anne90395

      Posted

      Just realised about the ancestry? we're a family with roots in South Yorkshire ? - hope it's not inherited 'smog' effect from the 50's & 60's?.
  • tiswas24537
    tiswas24537 vaughan72062

    Posted

    fibro was first used as a medical term in the 1ww for unexplained muscle spasms

    with pain. any how yes it is real but its only because our prehistoric minds are out of control .fibro is caused by truma medical, accidently,emotionly,illness,

    look in to the retraining of the brain on the net its explained better there.this is  whatrazz is what i am doing , to hopefuly recover from this terriable condition . .

  • gillian81509
    gillian81509 vaughan72062

    Posted

    I don't think that fibromyalgia as you have hip pain singular more likely from the way you walk and lower limb is more likely an effect of the heart and meds

    report the legs to gp and as the nurse for an abi to check you vascular performance.

    raise your legs very high when resting and as night raise end of bed

    hope this helps

    • vaughan72062
      vaughan72062 gillian81509

      Posted

      Thanks for that Gillian, it's worth a try!..I've been to my 1st Cardiac Rehab session today ( after a stent implant in Nov) it went OK I think, see how I feel in the coming days. best to u ..
  • christine26761
    christine26761 vaughan72062

    Posted

    It's real alright..,100s of differing Symtoms too, it's not too easy to diagnose either.,,everyone on this site says the same..:-) xxx stay positive and strong,,I'm 64 too. Had this for over 20 yrs....many other issues too..like others...stay positive if you can...you will be stronger...be blessed..:-) xx Australia 
  • Flowerlady
    Flowerlady vaughan72062

    Posted

    Hi Vaughan

    It sure is real...I were diagnosed 3.5 years ago..and are most deffinatly worse now.

    I am on Paracetamol and Oramorph it only takes the edge off the pain..

    Regards...Anne...neutral

    • tiswas24537
      tiswas24537 Flowerlady

      Posted

      use magneisum oil for pain relief works as well as most painkillers and causes less problems . relaxation daily also helps because the muscles become relaxed so less tenseion less pain . .
    • vaughan72062
      vaughan72062 Flowerlady

      Posted

      Paracetamol last thing seems to help me sleep for about 4 - 5 hours. Thanks Anne.  confused
    • vaughan72062
      vaughan72062 tiswas24537

      Posted

      Do u know if magnesium oil is OK with Warfarin as some topical things like Brufen are not?.
    • tiswas24537
      tiswas24537 vaughan72062

      Posted

      i dont know hun not being medical i wouldnt like to say .

      best put in a search or ask your gp .but they proberly wouldnt know

      i asked mine about using it he just shurged his shoulders and said we only do one afternoon on minerals and vitamins .

    • Flowerlady
      Flowerlady tiswas24537

      Posted

      Hi again Tiswas....Not heard of Magneisum Oil where is that purchased from? If you don't mind me asking..Thanks...Anne...
    • Flowerlady
      Flowerlady vaughan72062

      Posted

      Hi Vaughan...Glad something helps you..and you are getting more sleep than me. I am very lucky if I get 3 hours... Keep Well...Anne...
    • tiswas24537
      tiswas24537 Flowerlady

      Posted

      iv seen it in  tescos in the medical section .or you can buy it on line
  • gillian81509
    gillian81509 vaughan72062

    Posted

    Hi

    just picked up

    you do qualify for nhs podiatry because you are a pensioner 'at risk'

    the pain in your feet is because of your af during the day the heart has to work v hard to cope with af and the veins to return all this irregular and excess pumping so when you lie down you get restless feet and legs

    raise your legs at night it helps

    raise the heel the side of the bad hip put some card about 3-5 m cut in a D shape under heal

    What's meds are you on for af? I have had af and cadioversions 6 times and some meds work better than others but talk to your cardiologist arrhythmias clinic explain restless legs as they need to know that you are having this reaction

    have you tried something similar to amytrypteline taken in small doses as prescribed its very good at assisting with sleep and leg twitching

    look on your local nhs podiatey arena there's usually info on referral criteria and sometimes self referral

    does your other foot not on bad leg roll in at all ?

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