Is this fybro real?

Posted , 5 users are following.

Are we being 'fobbed off' with yet another 'easy diagnosis'?. I have had painfull fet since I had to have drugs for Atrial Fibrilation. I don't sleep more than 4 hours without waking up with painfull feet, lower legs and I can only last 4 hours if I have 2 paracetamol before I go to sleep. I have had a stent in recently and have yet to find any improvement but I have had a chest infection and a bad hip, ( I am 64) but have always been very active. I can't see a Podiatrist because I have to pay private, and as a 'poor' penshioner, I can't afford it, even after working for 44 years.....

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15 Replies

  • Posted

    Hello Vaughan,

    Tend to think this Fybro is real, especially as many doctors are reluctant to diagnose it. The diagnosis is one of elimination, and not easy. For me it has been pain and sleep problems. You are putting up with a lot. I see, but I don't have any answers - sorry. You have the same surname as me, Vaughan, so I wondered about your ancestry.

    Take care, Anne

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  • Posted

    fibro was first used as a medical term in the 1ww for unexplained muscle spasms

    with pain. any how yes it is real but its only because our prehistoric minds are out of control .fibro is caused by truma medical, accidently,emotionly,illness,

    look in to the retraining of the brain on the net its explained better there.this is  whatrazz is what i am doing , to hopefuly recover from this terriable condition . .

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  • Posted

    I don't think that fibromyalgia as you have hip pain singular more likely from the way you walk and lower limb is more likely an effect of the heart and meds

    report the legs to gp and as the nurse for an abi to check you vascular performance.

    raise your legs very high when resting and as night raise end of bed

    hope this helps

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    • Posted

      Thanks for that Gillian, it's worth a try!..I've been to my 1st Cardiac Rehab session today ( after a stent implant in Nov) it went OK I think, see how I feel in the coming days. best to u ..
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  • Posted

    It's real alright..,100s of differing Symtoms too, it's not too easy to diagnose either.,,everyone on this site says the same..:-) xxx stay positive and strong,,I'm 64 too. Had this for over 20 yrs....many other issues others...stay positive if you will be blessed..:-) xx Australia 
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  • Posted

    Hi Vaughan

    It sure is real...I were diagnosed 3.5 years ago..and are most deffinatly worse now.

    I am on Paracetamol and Oramorph it only takes the edge off the pain..


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  • Posted


    just picked up

    you do qualify for nhs podiatry because you are a pensioner 'at risk'

    the pain in your feet is because of your af during the day the heart has to work v hard to cope with af and the veins to return all this irregular and excess pumping so when you lie down you get restless feet and legs

    raise your legs at night it helps

    raise the heel the side of the bad hip put some card about 3-5 m cut in a D shape under heal

    What's meds are you on for af? I have had af and cadioversions 6 times and some meds work better than others but talk to your cardiologist arrhythmias clinic explain restless legs as they need to know that you are having this reaction

    have you tried something similar to amytrypteline taken in small doses as prescribed its very good at assisting with sleep and leg twitching

    look on your local nhs podiatey arena there's usually info on referral criteria and sometimes self referral

    does your other foot not on bad leg roll in at all ?

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