Posted , 4 users are following.
Need some help.
It started last April, I was out jogging and suddenly the world started rotating at 100mph and I dropped to the floor like I was being pushed down. After about 5 minutes the spinning stopped and I managed to crawl home and went to bed feeling washed out, nauseous and my eyes sockets hurt and it hurt to move my eyes. This feeling then lasted a few days and I felt travel sick. It then happened again about a month later when I was getting changed at home, then again whilst sitting on the sofa talking to a friend on the phone and since then I can have one and then nothing for 3 weeks and then I might have two in a week. I once had 7 in a day. I can't find any pattern to when they happen or what I am doing at the time. I have had an MRI and a CT scan which showed nothing nasty. ENT specialist has put it down to migraine associated vertigo and put me on Pizotifen. They make me groggy even though I take them at night. I feel really down. Work are getting annoyed at me as I am supposed to go out on work events and greet people but as I don't know when they will happen and it would be so awful to have a drop attack in front of 50 people I am on lighter duties and I am not supposed to drive. I feel useless. Patterns make me feel odd and jump out at me, lights in shops or restaurants make me feel like I will have an attack. If I am in an anxious situation I feel more vulnerable to an attack. I just don't know what to do. I am on 1mg of Pizotifen but still have attacks, two in the last week, so doc said to increase to 1.5 then 2 if I need it but I already feel so groggy and foggy headed.
Can anyone relate to this? Does it sound like MAV? Doc has referred me to Neurology now and I am back with ENT on March 21st. At first they thought it was BPV then Menieres then Otoschlerosis and now MAV.
Thanks for reading x
1 like, 8 replies