Is this my lot in life???

Hi June

Firstly you need to get it into your head that you WILL recover and will certainly see improvements over time. I know you may feel like this will never be the case and it is so hard when you feel so low but it is essential that you stay as positive as possible and not let "this thing" get on top of you.

I have learned (after 4 years) that I need to listen to my body and try and understand what makes me tick a bit more.

Most people on here have been highly active people and now the most bebilitating and depressing thing is that you just want to get back to the way you were before this happened and you cant which is maddening. That is what I find hard but I am nearly 70% back and I am back to running (when I feel well enough) and try and really work on hard on focussing on positive things in life.

I have just ended a realtionship which has set me back but I found that being with someone who doesnt understand it all and things made me more ill and that in itself set me back more.

It is a catch 22 I think...the symptoms you are feeling make you down and depressed and anxious and yet all these things heighten your condition.

What I say now daily (when I am feeling really bad) is tomorrow is another day and that it can only get better with each day.

It is such a cliche but people on here will all tell you that you need to rest and eat healthy and do things in life that make you happy...if need be remove those things that make you unhappy where you can.

You will get better in time. I dont have the answers as I am still searching for them myself but know that you are not alone on here and we are all behind you 100%.

I am much better than I was and if I could only clear my head and the fog and dizziness and constant shaking I feel 24/7 I can live with the tiredness and pains in my neck and back.

I have a monthly massage which really helps. I take Q10 tabs and B1 Thiamin daily for my nervous system - to be honest not sure if these are helping or not but I keep taking them. I have stopped drinking altogether as it makes me so ill for weeks it just is not worth it.

I am going to try Reiki next and I do a yearly detox for about 6-8 weeks and take all additives and live on basic staple foods which does seem to help a little.

The most important thing is to not give up hope and try and change your mindset which is the hardest thing to do - and remember that you are not alone nor are you making it all up or going crazy which a lot of people would have you beleive!

I hope you stay strong and you will get better :-)

take care

Dawn x

Hi jelelly , first can I tell you  that there will be better times than now !! You have to go through a transition & get to a point where you accept the new you ! Please don't think its your fault in anyway you are ill & not only are you ill but you are suffering illnesses that are not understood ( it's much more understood now than 14 yrs ago when I was diagnosed !!)  first you need to get your hubby on board ( if you want to ?) he needs counselling to understand your illness , I went on a 3 month chronic pain coarse one afternoon a week & one session we had our partners with us & every question they had was answered , it was great to meet others in the same situation as us , we were not alone !!!! I still meet up for lunch with two couples we met that day , love seeing them no judgments !!!!  

You need to get to as many drs as possible explore every avenue , physio, counciling, medication , it will take time , you need to grieve for the old you ! It dosnt help you any  wishing you were that person ! There's no reason why you can't be happy with your life but it will take time !!  Can I reassure you we've all felt the way you do today , you are not going mad !! It takes a very strong person to deal with cfs & fibro !! You are strong & you will be in a better place I promise !!!!!!!

good luck & take care dawn xxxxxx

Poor you June. I really sympathise with your situation. I worked for the NHS and the stress and working conditions was terrible. I eventually lost my job too. I've had a stressful l

Poor you June. I really sympathise with your situation. I worked for the NHS and the stress and working conditions were terrible. I eventually lost my job too. I've had a stressful life and have read that this can contribute to CFS, ME and Fibro. It is a beautiful sunny day today and I just managed a walk, first in two weeks. It felt so good to be out. I am really tired now so I must rest but it has been worth it. Winter doesn't help matters, especially on wet, windy and overcast days. The sun is such a tonic! I hope you will be encouraged by others on this forum, knowing you're not alone 😊 X

I have recovered. A forum friend urged me to join the group because so few who have recovered stay on the forum. I have written my testemony a couple of times. I had a search but did not find either. However I noticed that in the first few screens of the Group Discussion list there are two Discussions asking virtually the same question.

The key factors for me were

Getting the air right - avoiding air polution. We moved house.

Getting the food right - all food tested

Getting the exercise right . Do NOT push yourself as that will set you back.

Please, if you have the energy, browse the other discussions. They are very informative. Please private message me if you want my testemony and do not find it in your browsing. I posted them sometome this month, Jan 2015.