Is this really Acid Reflux i'm experiencing?

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Hi, for the past 4 months I have been suffering daily severe symptoms with breathlessness, burning and pressure sensation in my back and chest, pressure in my throat which makes me want to cough, burping and most recently tiredness. These don't necessarily occur after food, i have the breathless and pressure feeling all day every day.

I went to a private hospital for tests under my medical insurance as my NHS GP couldn't give me all the tests i wanted for peace of mind as i'm an extreme worrier and after Googling my symptoms i was in tears! So 2 weeks ago i had blood tests, allergy tests, a CT scan on my heart and lungs, a lung function test and an Echocardiogram. I had the results last week which thankfully shows my heart is absolutely fine but i have mildly inflamed airways in my lungs and the doctor advised the most likely cause is Acid Reflux and this is causing the breathless feeling. The doctor has advised i take Lanzoprasole 30mg daily and a steroid asthma inhaler to reduce the inflammation for 3 months.

To be honest, i'm concerned that this isn't caused by acid only because most of the threads i have read on here are from people who only experience symptoms from food. As soon as i get out of bed and start walking around i start to get the pressure feeling in my chest and i've just had enough of it. Does anyone else have symptoms like me? I'm constantly thinking about what i could have wrong or if it is acid, what damage it is doing to me! I know it's only been a couple of days on the medication so shouldn't expect it to work straight away but can anyone tell me of any other self help medications that i could take to make it go away quicker? I'm really at my wits end and it's all i think about.

Thank you

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  • Posted

    HI am so sorry to hear ur symptoms.  But first of all I have to say it doesn't matter what we are going through this battle is not ours is god.we will one day feel healthy and normal again just luke everybody else. . U know I have a stomach oain for almost 3years now and I went through all kind of test u could think of jet still nothing found.  Then 2 weeks ago I start having a soar throat, coughing, bitterness in my mouth and a neck pain sometimes chest pain so I went and look up what all that symptoms is for I found out that I may have a serious Acid reflux and it bother me I eat and in the night is so uncomfortable trust me . But I make an appointment with my GI doctor so I will find out when I go there next month. I just wanna say to u keep the faith and believe that god is there for us not against us. I wish u luck. 
  • Posted

    I have had GERD issues in the past and have had my gall bladder removed.  I have been on 40mg Nexium daily for about two or three years.  I actually was feeling that all things were under control until around mid to late May 2014 when I had an attack while sitting in my office that felt much like a gall bladder attack.  At that point my GERD systems seemed to have come back full bore.  I had an almost constant metallic or acid taste in my mouth and wondered if my GERD just was in a stage of heightened sensitivity.  I could not eat much of anything and if i ate more than a fistful in size of portion an even odder thing happened to me,  I reacted as if I had a hangover.  Sudden dehydration and feeling sick in the stomach.  I did not know what was going on.  I Googled acid reflux and hangover and saw this thread and it made me feel better.  Or at least that I wasn't crazy.  I scheduled an endoscopy with my doctor and found out that what I have been suffering from was Bile Reflux.  The images from my endoscopy showed a lovely green slime in my esophagus and it was bile.  The Doctor said that since the gall bladder was removed that my system was not processing the food as quickly and that the bile used to process it out of the liver was backing up and eventually coming back up through my stomach to my esophagus.  He prescribed Cholestryamine, which is actually a cholestrol lowering drug.  But it is a resin mix that you put in juice and drink it and it binds the bile and flushes it out of your system when you go to the bathroom.  The binding of it helps your esophagus heal.  Its not a fix to the bile reflux but it allows your esophagus to get better so that your lifestyle changes (which I already had been doing regarding food) will help you remain stable.  I will always have the issue but I have to control it.  Looking into attending some meditation classes so I can control my emotions (which are pretty low key anyway but why take chances).  I appreciate this thread and hope that my input might help.
  • Posted

    Hi tinkerbell  

    It all started 20 years ago, I thought I'd heartburn, i went to the chemist and purchased Zantac,was taking them for weeks to relive the pain from the burning sensation I was getting.The guy in the chemist said to me I shouldn't be taking these tablets every day !!

    I made an appointment at the doctors and they booked me an appointment at the hospital to run a few tests,I had a recording box fitted  to me,a small wire up my nose and going down into my gullet,I had to eat and drink with this in place for 24 hrs, I then went back to the hostpital 

    And had the recording box and wire removed.a few days later I got my results back they said it was the highest acid reading they had ever had !!!

    They assumed the wire had gone to far down and it was in the stomach .

    I had to repeat the test again to find out it was still the same.

    The consultant told me I had a hiatus hernia

    They told me I needed surgery it was a massive operation !

    I had the operation at the Bri in Bradford England uk 20 years ago.

    I would say the operation worked at first but over time gradually the acid came back.I had more tests and they said the valve was leaking acid again and I needed the operation again.

    The operation consisted of going through the ribcage and deflating the lung to get to the gullet, I said no this time.It took me a long time to recover 

    From the first op left with a scar the size of a shark bite !

    This operation can be done now keyhole surgery.but not on me because of the scar tissue from the first op.

    For many years I have suffered with this problem,I to get the pains in the shoulders and neck area burning sensation,

    for the last 15 years I have also like other people on here been getting dizzy spells,sometimes I 

    Think I'm going to faint they last for around 20 mins and can last upto an hour for me.

    Here's a few tips I found help me 

    I hope they help you guys to !!!

    Alcohol, chocolate 

    Spicy foods curries chillies  

    Caffeine drinks trigger it of to.

    So avoiding these drinks and foods does help.

    Other tips for you guys is prop up your beds with bricks or blocks,6-8"

    Or if your posh reclining bed.

    Staying propped up helps keep the acid down below !

    I also take losec tablets 30 mg.

    Eating late is not a good thing.

    I searched the earth and the web to look for a cure for many days and nights,

    The best thing I found is organic apple cider vinegar and bicarbonate soda !

    Trial and error,I put two small bottle caps of apple cider vinegar into a glass and put a tip of a teaspoon of the bicarb into the glass, a tiny bit , it will fizz then had a splash of water takes the fizz away.drink it of in one,

    It's no champaign lol 

    Take this last thing at night 10 mins before bed time it will neutralise the acid in your stomach.

    It's worked for me and many other

    People I have spoken to.

    I hope it works for you,and the tips I have given you help,any questions please ask

    My prayers are with you all 

    Regards lee f.

      

    • Posted

      Hey, you can probably help me with some info. So I read about your hernia surgery 20 years ago and I suspect with my symptoms I might have it. I also have Gerd with serious constipation. So today I went mixed up some fiber about to tall glasses and when I was done drinking them I felt something move down from my chest area to my lower abdomen and it became completely full. I went to er because the stomach pain and chest discomfort was so bad a few days before with this same thing and the docs said my lungs were clear. Although I do have asthma very seldom lay this isn't a wheezing feeling that I get although sometimes walking up stares I will get shortness of breath at times. Do you think my symptoms could be a hernia?? I just constantly fell like something is in there it's like sometimes someone is sitting on my chest. Although I don't have any heart burn or indigestion symptoms. Sometimes it feels like when I stand upright all my stomach contents start coming into my chest area..Any thoughts???
  • Posted

    Hi Tinkerbell 32 and to everyone I was just reading something online this evening.  And I found out that there is some kind of operation call Esophyx 2 TIP . For Acid refkux it is not a surgery and it take 1 hour . So u guys might wanna ask ur Doctor about that procedures.  I think am going to do it after I console my Doctor.  I wish everyone good luck .
  • Posted

    I have to say I feel slightly relived after reading this thread. I've been having symptoms for months; chest pain, breathlessness, dizzy spells, pain in my left arm, bloating. It all made me really panicky to be honest because chest pain instantly makes you think - it's my heart. I've had tummy scans because of the bloating and several conversations with my GP about my heart/breathlessness but reading this makes me think I quite possibly have a hiatus hernia. I don't get breathless for any particular reason, I exercise regularly and this doesn't trigger the chest pain or anything but sometimes, usually when I'm just sitting watching TV or something, I'll go really dizzy for a few seconds and my heart will race. Sometimes i feel breathless from doing the slightest thing but then I can run 2 miles and be fine. I also have really terrible post-nasal drip which makes me constantly cough and sound hoarse and I feel like I'm always coming down with a sore throat or a cold. When I'm in bed especially my chest pain worsens, sometimes feel it in my back too and I get so worried. I'm having an echocardiogram next week as i've gone private to a cardiologist through a health plan so I might ask if it's possible if they can see any sign of a hernia? I have an appointment with gastroenterlogist later this month too and would love to be able to avoid endoscopy! I had never really considered that a hernia could press on my vagal nerve and cause the dizziness. I also don't get 'heartburn' as such so was thinking, well this can't be gastro related but maybe that's not true!?
  • Posted

    Hey, you can probably help me with some info. So I read about your hernia surgery 20 years ago and I suspect with my symptoms I might have it. I also have Gerd with serious constipation. So today I went mixed up some fiber about to tall glasses and when I was done drinking them I felt something move down from my chest area to my lower abdomen and it became completely full. I went to er because the stomach pain and chest discomfort was so bad a few days before with this same thing and the docs said my lungs were clear. Although I do have asthma very seldom lay this isn't a wheezing feeling that I get although sometimes walking up stares I will get shortness of breath at times. Do you think my symptoms could be a hernia?? I just constantly fell like something is in there it's like sometimes someone is sitting on my chest. Although I don't have any heart burn or indigestion symptoms. Sometimes it feels like when I stand upright all my stomach contents start coming into my chest area..Any thoughts???
  • Posted

    I am so confused - I have all the symptoms of LPR, including PPI's making it worse/not working - The only thing that is confusing me is that the ENT said my throat looks good.  I am having tight throat, burning in throat, throat/esophageal spams, shortness of breath etc etc etc.. Can you have LPR and still have your throat look good from the ENT's look?
    • Posted

      If you have silent acid reflux you wohnt be able to spot that with tests. The tests when they look there will look as though it is ok.
    • Posted

      If you have silent acid reflux you wohnt be able to spot that with tests. The tests when they look there will look as though it is ok.
    • Posted

      When he puts the camera up my nose and down my throat he said all looks normal in my throat. I thought silent reflux shows up on that test by irritating the areas the see with that camera?
  • Posted

    When the doctor sticks the camera down your nose into your throat he will see the irritation due to silent reflux
  • Posted

    Hi tinkerbell

    I  am so glad to know that I am not alone , I have the same symtoms, I was diagnosed a few months back with Barrett's esophagus and hiatus hernia which neither of these should cause these symptoms I have, I too have cried looking up on google and seeing esophageal cancer I'm freaked out and can't get to the bottom of this I'm having a scan next Thursday to look for gallstones but the symptoms don't even match this problem. All I keep thinking about is cancer and that I'm going to die and leave my husband and two boys. I'm at the end of my tether as I also have had this pain for over 5 months and it's really taking its toll on me know. TinkerbellI your not alone

    • Posted

      Hi misstrump

      Thank you for your post. It will be 12 months since all this started and i actually can't remember what it felt like not to have these symptoms now. Scary really. The more i see these discussions, the more i realise just how common acid reflux is. I actually do have 1 gallstone but as you say, the symptoms of gall bladder problems dont emulate what we're both experiencing. My doctor has told me countless times not to listen to ''Dr Google'' but like you, sometimes I just search to try and find solutions and end up reading terrifying information. I've had 2 endoscopies in the last 18 mths but they couldn't see any inflammation or damage.

      Have you tried cutting out certain foods?

  • Posted

    Has anyone got to the bottom of this? 

    I'm getting horrible breathless feelings which can last for hours, it's making me panic 

    It's usually accompanied by dizziness, feeling sick, burping, hot and cold flushes and then afterwards I get really urgent urges to go to the loo and sometimes the feeling I really need to pee too

    I'm lying in bed at the moment trying to calm myself down from this breathless feeling 

    It's strange because I can cycle or go to the gym and feel ok

    • Posted

      Have you been tested for food intolerances?  I started seeing a kineseologist and cut out everything she said I should.  When I stick to the diet it helps and I do notice I get symptoms (same as yours) when I'm naughty and fall off the wagon. She also pinpointed I have problems in my small intestine, probably caused by fungus and unhelpful bacteria.  

      I did test positive for C-dificile several years ago and got treated, so it's possible it's come back or I do have an overgrowth of bad bacteria.  My sypmtoms are very similar to yours, though I have pre-existing ME/CFS and my current symptoms were set off by a bad reaction to anitbiotics and my GP said I have GERD. I was on Lanzaprazole for several months until I wanted to try a more natural route which involved a strict avoidence diet (which led me to the kineseologist as I wanted to get some feedback and more clear guide on what I can eat and what I should avoid.)  

      I slowly weaned myself off the Lanzaparole and mostly stick to the diet, but notice as soon as I stray my symptoms can be pretty unbearable.  If I stick to the diet in the short term it will enable my stomach to heal and I shoud be able to eat relatively normally in the long term and that's what I tell myself to keep me on it.  

      I also take virgin coconut oil to heal my stomach and it supposedly gets rid of the fungus, bacteria and parasite type of thing, etc.  I do find the diet very hard to stick to as I have major bread cravings.  I love bread and find it near impossible to avoid, but it has made a huge difference when I do avoid it. I've had pizza and bread last three days and I juat feel awful like a bad hangover, nausia, dizziness, weakness, burping, hot and cold, frequent peeing and urge to go to the loo and feeling a little better when I've been.  I think the intolerances are caused by an overgrowth of bad bacteria in the gut and I think this all has a knock on effect causing GERD etc if left untreated.  

      Lots of interesting research going on about the gut microbiome at the moment, but the NHS testing is still pretty basic and treatment limited, they don't go into diet at all and it has really helped when I manage to stick to it.  So I think most people give up and go private.  I also had to give up cows milk (weirdly goat cheese tested ok), all sugar, etc  I'm not sure if I'm fully convinced by the kineseology, if it completely solves my issues in 6 months I'll let you know.  What I do know is avoiding trigger foods, definitley helps.  

      If you can get your GP to test you for c-dif and bad bacteria overgrowth, or find a private place (v. expensive tho) or a private lab to test out your gut health if you have no luck with your GP.  My diet is pretty similar to the Leaky gut diet which can be found online.  

      I think in the coming years more research will be done in to the gut microbiome which I think are responsible for so many suffering from stomach problems, IBS, GERD and chronic inflamitory conditions will find it's an imbalance in the gut flora.  A recent study into allergies found those with severe allergies are missing a particular good bacteria in the gut.  

      Hope this helps.  I know the symtoms feel really scary, especially when GP's all to often put it down to 'nerves' when it's more likely due to imbalances in the gut (most likely due to the overuse of antibiotics in medicine and in meat, and less exposure to nature.)  I can't afford the private gut tests at the moment so I opted for a kineseologist, but you could just try the leaky gut diet and see if it helps if you dont have the money for private.  It took about 1-2 weeks to notice a difference with the diet, though it becomes very clear when I don't stick to it these days.  Been on the diet (70%) and off the lanzaparole for about a month and a half now.  I eat a lot of salads and soups and only splurged on the pizza and bread as I was feeling a bit better!

    • Posted

      IF you have what you can an overgrowth - some say candida - why not put it right? Then you can a\ct and eat normally again. Candida often craves bread. You could eat it when you are cured and sorted without a problem. YOu can take black walnut hulls for candida and many other things and go on a strict diet to get rid and then go back to being a happy human.

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