Is this related to PMR

Posted , 11 users are following.

Was diagnosed with PMR in April. I was put on 20mg Pred and it cleared it. I'm now down to 15mg for the last 3 weeks but the last two weeks now my hands and wrists hurt really bad every morning and I struggle to do anything, it usually eases or clears by about 10 or 11 then sometime come back late at night.  Anyone else have problem with hands and wrists or is this not related to the pmr?

Alan

Alan

0 likes, 7 replies

7 Replies

  • Posted

    Pretty soon to be dropping to 15 mg. But aside from that, I too have had my condition migrate into my wrists and hands. My rheumatologist is speculating but I might have late onset rheumatoid arthritis or LORA as it's known. Not exactly what any of us want to hear
  • Posted

    I have also developed pain in my fingers, hands and wrists! This started about 2 months after my diagnosis in December.
  • Posted

    pain in fingers, mainly between first and second joint, not in joints. Occasionally in wrists. Depends how much I use my hands. Appeared about a year into treatment. Subsides a couple of hours after daily pred. Pain in upper arms was sharp, screaming, pain, deep in muscle, whereas pain in fingers is more diffuse and general and tolerable. As I type (1am) its simply a hardly noticeable stiffness. At 3mg/day pred.
  • Posted

    I've had PMR for two plus years ... taperd to nothing after a year but at low doses I began to have stiffness in hands (fingers mostly).  I didn't know it was related to PMR as my shoulder and other pains had disappeared.  A week after a flu shot in December 2015 I got a relapse of arm pain and went back on prednisone (25 mg) and have slowly tapered to 8.  Graduallly the stiffness reduced but it's still lurking in there.  For example, this morning I had stffness in one finger.  The stiffness was in the mornings (or after a nap in middle of day) and couldn't close hands around anything smaller than an orange. Gradually with hot water and time ( usually 6+ hours) I could make complete fist.  Not sure if this is anything like yours though as pain wasn't the biggest component.  I'm told that PMR in fingers is more of a tendon problem rather than in the finger joints proper.  Hope this helps.
  • Posted

    I've had PMR since March 2015. Started at 20mg pred, now down to 3.5 mg. I have pains in my hands and wrists since I was on 7 mg, but I live with it. My rheumy said to soak my hands in hot water and Epsom salts in the morning, and it helps! I'm not sure I should be accepting my aches and pains and attribute it to me getting older (I'm 65), or to up my pred. I really want to be off this med (as everyone on here does), so I just accept the pain and go on with my very active life!  Every time I decrease my dosage, I become much more aware of the aches and pains and wonder if it's a flare, or just the everyday "niggles"!

    try the Epsom salts and warm-hot water!

  • Posted

    Yes I also had pain in fingers with weak wrists which lasted till mid morning.  I take pred at 5am.  I stayed on 16mg for 4 weeks, down from 30mg in 5 months and then tried to drop to 15mg.  Couldn't do it comfortably, so dropped to 15.5mg and pain and stiffness disappeared.  I am now staying here for 4 weeks so I can only drop very slowly although my rheumy wanted me to drop much quicker down to 10mg.  Think that will take till Christmas now but want to be virtually pain free and slow pred is the answer!

     

  • Posted

    I won't go into my history other than one of the first places pmr hit was my hands. I found pains came back in afternoon so within the first weeks i split my dose. I take now am and 3:00p.m. i take 5mg in the afternoon and when i reduce i reduce the morning dose.

    Soon i will reduce just 0.5mg in the afternoon. Splitting the dose for me really helped with controlling daily pain.

    Hope this helps

    Mariane

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.