Is this right

Posted , 10 users are following.

I hadnt been to my doctor for over a year, he had said he would put me in touch with a rheumatologist to get me help with fibro then said he hadnt realised that person retired and hasnt bother more.

2 weeks ago i had been feeling really unwell, more than normal, after been sent to A & E they couldnt find anything after bloods, heart etc tested.   The doctor called me back and commented I had been in ^some state" during my last visit.  I said the pain is just awful and I am struggling to cope generally, especially as I have to work 5and a half days a week. He just said sorry but there is nothing he can do for me.

I dont know where to go now or what to do, I feel like a ticking time bomb

1 like, 10 replies

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10 Replies

  • Posted

    Hi.

    I dont go to doctors anymore because they just say there is no cure , you have to live in pain for the rest of your life.

    I am living working doing everything in pain with no support from anyone.

    Its terrible.

    I hope you find something that works for you.

    For me nothing works at the moment

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  • Posted

    I'm a bit confused here.... You haven't been in touch with your doctor for over a year and you have suffered that long waiting for him to come through with a Rheumy he recommends? And so, that person has retired and now the same doctor says, he can't help you? 

    Not sure where you are, but I'm sure there's more than one Rheum around and there's pain clinics and neurologist and all sorts of medical people that can help you. You need to see someone that takes an interest in your situation and helps you through whatever referrals he/she deems necessary to get a handle on your issue. You haven't really described your issues other than you were "really feeling unwell" .... at what point were you diagnosed with fibro?

    My advice is to start all over, right from the beginning. Any Primary Care Physician that says, he can't do anything for you, shouldn't be practicing medicine. There's always help out there, no matter what the malady is. Your issue is somewhat confusing as your history of this situation is unclear. I hope  you feel beter soon and get the proper medical attention from so many caring physicians out there. 

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  • Posted

    Hi...then insist on him referring you to another rheumatologist, research in your area and find another. They will be the ones to diagnose the fibro if you have it. But you do not say what your symptoms are. You are just saying you feel unwell. Do you have pain?
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    • Posted

      Unfortunately where we live it is very very hard and a huge wait to see a Rhumatologist once your go referrs you..after that it’s great...we could travel 209 is but we still couldn’t see one for a year, even privately..😍😍

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  • Posted

    This is soooo wrong on many levels,  really feeling for you Sorrentogirl, insist on seeing a Rhumatologist they are the ones that diagnose this rotten condition, at least if you find you do have it..,there is peace of mind straight away, then you can deal with it the best way you can, 😱don’t take no for an answer, this is your body, take control of your health, we nearly all have had to. Be blessed and have a lovely day..😍😍😍🙏

    keep in touch..

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  • Posted

    it's just the way it is, it's awful, you go to the docs, he says you;ve got ten minutes and can talk about one thing, but if it's fibro, how on earth do you pick the one thing, it's just crazy. After 10 years of seeing GP and 18 months of seeing a rheumatologist I finally got diagnosed with Fibro with psoriatic arthiritis, and only last week got prescribed something that might actually help a little with the fibro, before that it was all just NSAIDs, sulfusulazine and I was still really struggling to get through each day, they say fibro isn't progressive, but I am not so sure. Now on gabapentine, let's hope this helps, not holding my breath though.. I find you just have to keep knocking at their door, I even had to say to my rheumy are you sure it's not Fibromyalgia. My best advice is right every single little ailment down and take it with you to the GP / Rheumatologist, when I sit in front of them I just can't remember every little thing that hurts and that can be part of the reason you never get a full diagnosis, I wrote it all down took it with me, showed it to him and then he said yes, it's definitely fibro ... you just have to keep on being heard - I had that same issue, the GP said she would refer me to a rhumatologist, I called about 6 months later and said I hadn't heard anything, and she hadn[t even done it....good luck, keep on keeping on ..... X

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  • Posted

    Are you in UK?

    You're entitled to 3 things if so. 1. Second opinion

    2. Referral to a consultant

    4. Change of dr's

    It's horrendous that you're left in pain because a go doesn't know and can't be bothered referring you. I had this for years being treated like a hypochondriac until i got an ms diagnosis. Good luck I feel for you. 💜

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    • Posted

      Well said bic! Couldn't agree more. Defo seek a second opinion and if that doesn't get a referral to a Rheumatologist, then change Doctors.

      Good luck. Hope you get to see a Rheumatologist sooner rather than later because I know with me having seen so many different specialists over the years with various symptoms, it was the Rheumatologist who finally gave me the diagnosis of Fibro. While it wasn't such great news, (because at the moment there's no cure), it was a sort of relief because it meant that I wasn't going mad after all lol

      Still, my hospital notes certainly looks colourful with so many different specialists having seen me over the years Opthalmic Consultant because of dry eyes, Neurologist because of the permanent headache, Cardiologist because of the palapatations and an Orthopaedic Surgeon because of joint pains and carpal tunnel in both hands, (surgery for both of those)finally a Rheumatologist who I understood was just dealing with my osteoarthritis, until one visit when he asked if I had any new pains so I mentioned my base of thumb pain. He replied, 'oh that's just your Fibromyalgia'. I said my 'Fibro what?' So he explained what it was and this was the first I knew of it but he said I'd had it for years! lol He proved his point by gently poking some of my tender points during his explanation. I just wish I'd known years before.

      Sadly, I know pretty much everything there is to know about the blooming disease now though and STILL getting new symptoms! Oh joy.

      Good luck Sorrentogirl.

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  • Posted

    Try and get your gp to refer you to a pain clinic at least. I was back fall to my doctors and was sent to the pain clinic, it was from there I went to a Rhume. The consultant I saw there was so helpful and understanding. They also take blood to test for things that could be aggravating your problems. My test picked up raised calcium levels which can cause muscle pain. I really do hope you get some much needed help. Take care xxxxx
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