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is this usual

Posted , 4 users are following.

tracieann
tracieann

Hiya all diagnosed with barrett about 5cm in June I'm on 40mg Omeprazole 20mg morn and 20mg night but this is not enough I'm on 150mg ranitidine morn and night too and sometimes I still get a bit of burning it worries me how much meds I'm on I've got my first Barrett follow up appt in September can anyone give me advice what meds they take I also am really well behaved with my diet thanks everyone hope your all coping

1 like, 14 replies

14 Replies

  • carmel83758
    carmel83758 tracieann

    Posted

    Hi Tracieann. Sorry you are having these problems. The thing is we are all different and what works for one is different for another and no two people get the same problems and symptoms. I am on cimetidine for silent acid reflux. Sometimes it works well, other times it's as if I have not taken any at all. If I take more I get bad side effects. So I supose you have to weight ujp the benefits of taking more as opposed to side effects with everything.
    • tracieann
      tracieann carmel83758

      Posted

      Thanks for your reply Carmel I panic at the slightest bit of burning because that's what made barrett s so different from my other gastritis and I worry what the burnings doing to the cells I really try to behave diet wise no coffee tea or chocolate for two months it's hard I miss my hot drinks and choccy but try to not aggravate it it just seems like a lot of medication would be interested to hear what others are on thanks again Carmel83758
    • stella19032
      stella19032 tracieann

      Posted

      Hi Tracieann, I can only give you my rxperience which I hope will help. I was diagnosed with gastritis, oesophagitis and Barretts in Feb. I was put on nexium 20mg twice a day and developed constant burning in my stomach and also intense burning when I had a cup of tea. 

      I had a follow up gastroscopy at the end of April as my symptoms were so distressing and the oesophagitis and gastritis had gone and the Barretts reduced, so burning isn't always bad. I thought the worst and the news was good. Hopefully it will be the same for you. Sometimes our nerves become over sensitised and that can be the problem x

    • tracieann
      tracieann stella19032

      Posted

      Thanks for your kindness Stella I have bad health anxiety but I know not everyone gets cancer from Barrett s it does worry me at times when it burns lost a fair bit of weight now scared to eat anything major in case it burns I can't have medium cos it makes me itch wonder if Omeprazole isn't working too well
    • carmel83758
      carmel83758 tracieann

      Posted

      Well tracie if you are like me you will get so down and fed up and maybe anxious and times that it would be terrific to be able to have one of your favourite foods as a comfort food to cheer up, so not being able to eat all of these thingds can be a pain too, especially when you need that lift.

      I know what you mean about the panicking etc. I was getting bad headaches and then problems with my nose and eats and sometimes it would go away and then when it came back I always felt ever so low, lower each time. Especialy when peole say to you well go and see your doctor he will sort it. And you think REALLY? Well if he was any good at sorting it then it would hve gone away ages ago so why is it still here?

    • stella19032
      stella19032 tracieann

      Posted

      Oh yes me too, terrible anxiety,hence the insistence on a second gastroscopy. I've felt so low you wouldn't believe it! As of this moment I've lost a stone and a half in weight. I'm having a ph test done next week but know I will be too scared to stop my ppis before hand. 

      I keep holding on to my last endoscopy findings and remembering the pain I was in when everything was ok.

      I'm off to the docs again about something else but already know that everything will be put down to reflux. They close their minds. I'm going to fight my corner though til I get an answer. 

      Hope your review goes ok x 

    • stella19032
      stella19032 tracieann

      Posted

      Ps just wanted to share something one of the docs said to me- the people with Barretts are lucky. It's the people walking around without knowing they have anything wrong who are the ones who are at risk of dying from cancer. The people with Barretts are being monitored and cared for so if cancer does develop (99% chance that it won't), then we will catch it and treat it before it does any harm. We are watching you and taking care of you

      I like the thought of that smile xxx

    • tracieann
      tracieann stella19032

      Posted

      Thank you for your reply Stella yeah it's good to know we are being monitored and watched which helps my anxiety a bit I miss my favourite foods but realise I have to eat to suit my barrett s I get paranoid about losing weight and don't like it when people comment I never eat a solid meal now only teeny versions of it as I can't manage big meals now how old are you if you don't mind me asking it's good we can talk on here take care
    • stella19032
      stella19032 tracieann

      Posted

      Hey Tracieann, I'm 48. According to my doc I had oesophagitis discovered on endoscopy 12 years ago - but was never told about this, bizarre! I think it saved me from 12 years of ppis though!

      I'm on day 1 of stopping ppis in preparation for a ph test nextThursday as I'm hoping surgery will solve my problems. I'm dreading the rebound and the damage it will do.

      This forum is excellent for support. I have had some great help smile x 

  • Power1on
    Power1on tracieann

    Posted

    Hi 

    I also take 20mg omeprazole twice daily along with rantadine as needed which is often my GI Dr has told told me I can take as much 600 mg of the rantadine although I have never had to I also take good ole alka seltzer also the gold version minus the aspirin 

    • tracieann
      tracieann Power1on

      Posted

      Hi Pomeranian thanks for that I take 150mg ranitidine morn and evening with my Omeprazole 20mg morn and night wow 600mg that seems a lot but if they say yes then that's fine I can't believe how much acid we must make can you do you ever get a tingly tongue a bit and I'm not being too graphic I hope do you get pale poos sorry to ask but I do  
    • tracieann
      tracieann Power1on

      Posted

      Sorry predictive text changed your name to Pomeranian from poweronman and I can't fix it
    • stella19032
      stella19032 tracieann

      Posted

      I get a really sore mouth and have freaked about pale poos too. I think it's the diet change that does that xx
    • tracieann
      tracieann stella19032

      Posted

      Thanks for that Stella it just reassuring to know we all have similar things going on take care
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