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Hi all, brand new to the forum and looking for some insight. I tend to be a bit wordy, so please bear with me
I'm a 28-year-old woman whose doctors are quickly gravitating toward the diagnosis of CFS or a related/similar disease.
Background: I have had very little physical endurance for as long as I can remember. All through every level of school and university, I could never keep up with anyone else. Exercising several times a week improved my muscle tone, but never this worsening exhaustion. In my mid to later teens, I gradually had to stop doing everything I loved, and one by one, all of my hobbies all fell by the wayside because I just didn't have the energy and couldn't keep up. Almost every day after classes, I would physically need to sleep for a few hours.
My diet is very refined and has been for more than 10 years. Most people don't understand how I've been able to live with cutting out so much. Yet my weight continues to be persistent (diagnosed with PCOS) despite my every healthy effort. I see several different doctors, and had blood work done about 6 weeks ago, all the levels of which came back within normal parameters.
Back to the fatigue, I can currently sleep as long as 10-12 hours at a time, and often feel the need to nap during the day. Going out to run errands tends to exhauss me. My body feels often like it's made of lead. I get lightheaded more often than I'd like and lose my focus easily, and I just don't feel like myself. I have had periods of months in the past several years where I am just ill... but with nothing diagnosable. Practically needing bed rest for weeks at a time without explanation.
I had a strange few weeks of migrating joint pain about 2 months ago, debilitating pain that bounced from a knee, to a wrist, to an elbow without explanation. I will sometimes (infrequently, but dependent on my activity level) get a pain in a finger joint, for example, that is so severe I have to immobilize it with a splint for a few hours or a day. But overall pain is really not that common.
I could swear I catch every bug and illness that goes around.
The possibility of this diagnosis is becoming more and more likely, and to be honest, I'm just scared. I don't know how I'm going to embrace the future and put my degree to use among other things with this hanging over my head. Denial has gotten me this far but reality is much more frightening.
Any insight is always appreciated. Thank you for taking the time to read.
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