Is your fibromyalgia progressive?

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hi there all. I wanted to ask everyone with fibromyalgia if their symptoms came all around the same time or did they get more and more things popping up with their fibromyalgia over the years. I am asking because my rheumatologist said that fibromyalgia symptoms come on suddenly and you do not get other symptoms from it down the road. I keep getting different thing popping up. After my vision, fatigue and dizzy spells a few months later I started getting a burning pain in my muscles like I climbed a bunch of stairs. Then I started getting muscles twitching and now numbing patches all over my body.

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  • Posted

    Hi Christina,

    It's not ment to be progressive but mine seems to be the same as yours with different added symptoms every month. Iv even considered that I had lymes disease but got checked and its not. (symptoms very similar) get that checked just to rule it out. I feel like there is always something more serious going on because I get weird symptoms like blurred vision, heart palpitations and very fatigued easy but they just keep putting it down to fibro.

    I think once they put a label on it they will blame every symptom on fibro. Iv got it about 5 years now and things seem to be getting so much worse. Let me know if you find a better or different diagnosis.

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    • Posted

      This sounds like the symptoms of CIRS, it has all the symptoms of Lyme and Fibro. A uniqie symptom in CIRS is electric shocks. Might be worth looking into. Best of Luck

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    • Posted

      Hi Christina,

      Yes I get shock feelings too, get them in my brain specially when I'm trying to sleep, often get them in my feet that travels up my whole body. It's weird and try explain it to someone else they think it's weird because they don't understand. Was in A&e with chest pain that shoots out like a pain shock that goes down my arms, it was scary and horrific experience. It's going on a few months now and the Dr's can't find anything wrong so there putting it down to fibromyalgia. I can see myself paying rent in the hospital because I'll be in and out with different symptoms thinking something more serious is going on, specially new symptoms. Very frustrating to say the least.

      Iv taking part in some fibromyalgia research studies you should look them up online and take part most are done through online questionnaires. The more research that's done the quicker we get a cure.

      I hope some miracle happens soon x

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    • Posted

      it is not cirs,because i don,t get any electric shocks,anywere on my body, while i am typing this out i can feel my burning sensation on myupper arms ,and they are getting tight and slo in my calfs,so i am drinking some tonic water,it wsa my physio and gps told me to use it before the cramps start,also my neck isgetting stiff and burning,and some of my joints are sore now so will have to stop typing. thank you judith from southport

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  • Posted

    I've had lots of new symptoms, but didn't necessarily think they were related to the fibro. but more due to aging. My aching feet symptoms happen either when I drive a lot (due to the braking) or when I've walked at the Wellness Center (20 mins). One cause of burning and numbness in extremities can be due to pinched nerves in the spinal column. When the discs wear out, the vertebrae collapse and nerves can get caught. I have 4 vertebrae that have totally collapsed and sometimes have numbness in the fingers. In the feet, it's more like tingling, burning pain. Magnesium (cream, lotion, spray, bath salts, or oral supplement) will help the muscle twitching. I take it orally, but also have various topicals that help too that I get on Amazon.

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  • Posted

    with my fibromyalgia it started like the flu,every muscle,tendons and joints were all very sore, had no temp took some cocodamol it them went away,then it came back again it was all over my body it was in my neck arms quads calfs and feet,

    then i got tingling in my fingers and numness in my middle fingers,that has now gone to my other fingers and now i get the burning sensation in my shoulder muscles also i get cramps,but my physio told me to drink tonic water it is the quinie,which has helped alot my gp has given me co-codamol 30/500 that is script

    only,butec pain patches 20 and 10 mcg they have to to changed every 7 days.

    also large voltarol gel also i find physio is helping,you can also get facial problems

    headaches dizzyness stiffness specailly in the morning trouble walking i have another problem called clonus it is like, MS AND PARKINSON and arthrtis as

    well i had a muscle and conduction tests done judith from southport

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  • Posted

    Rheumatologist is the doc that treats and understands fibro..too many Drs have no clue..

    i have had fibro for over 30 years, with very many and varied symptoms ...including 14 years of vertigo 24/7 it was horrid..only left me last year..,so to answer your question the differing symptoms certainly do not come earlier on, they come all the time...soooo different to, fir me that is..thats why its important to have the right doctor that knows about fibro otherwise they just keep on treating you for separate issues..be blessed christina..have a lovely weekend❤

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    • Posted

      i have no vertigo at all but i have just started with burning in my upper muscles,and numdness in my left leg i have had so many XRAYS MRI SCAN,BLOOD TESTS, AND MUSCLE AND CONDUCTION TESTS,

      JUST had my blood tests back this afternoon the only thing that was still low was my vitamin D it had gone down to 35 it has gone up to 61 should be 75 like this week i have been very busy, i know by sunday my fibromyalgia will have flared up . judith

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  • Posted

    there is nothing called disease until you take in to your mind and then fear manifest to pain and fatigue.

    this is a result of not acting on any sort of changes in the body, then manifest in to secondary stages.

    changing life style is the only known way to get rid of it. fasting is one of the best and safe way to get rid of these symptoms.... read more about fasting, involve yourself with activities in nature like gardening. start a vegan life then within 3 months it will disappear.

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    • Posted

      any activity will bring on my fibromylgia,hoovering,dusting putting the washing in the machine, putting it on the airer,shopping is getting alot

      harder,i try and walk but the most i have done all day is 135,but i have other health problems such has clonus,which is on the same has MS and PARKINSONS shakes in both legs hands arms,neck and head judith from southport

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  • Posted

    I started having symptoms when i was 15, of curse i did not know at that time what it was. i remember describing it as a "unreasonable pain". it was only on my upper body, arms, shoulders, neck. and i had sleep problems. i remember, because I'm from Israel, that carrying a firearm was unbearable it was so painful on my neck. nobody knew what it was so i just got used to living with the pain. and then suddenly when i was 25 my whole body burst with pain one morning! it was horrible, everything hurt and my body would be all stiff in the morning like it is covered with ice. it took me about 4-5 years till someone diagnosed me and then i realized that it started gradually 10 years earlier... and new symptoms always come and go. so i think its really not right to say that fibromyalgia comes suddenly. really not.

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    • Posted

      in my case it was,the only thing was i started to feel tired and fatigued after my mums death she had cancer 3 times, and i had to look after her for over 20 years and holding down a full time job doing 47 hours i left that job and i worked for a care company i was only there for 3 months and i was at a clients

      house and i did,nt feel right, when i got home i rang my gp saw him the next day

      and he knew what my problem was so i was signed off every 2 weeks i told him

      what had been happening,he said that it was a sign that my body was closing down,then my hair started to come out,theneszcema was behind the knees and under arms,,then i had incontenance problems,the doctor did,nt put me on anything he wanted to see how i went without,then i started with the spasms in my legs,hands and arms and the head and neck,after having bloodtests done ,xrrays,mri scan and muscle conduction test and a full physical and other tests the consultant said it was not coming from my brain but my spinal cord.

      then i was under a pain spcialist and because i was having anxiety /depression very bad,then when i woke up one morning i was vert sore all over my body,took my temp that was normal, and my blood pressure was normal i took some co codamol and it went,but i took a diary every day and i put down every thing that was going on in the diary then i decided to go to my gp and told him what had been going on so he did a full exeaminationi had to keep a diary of

      what was going on with my body,and i had to see him every 3 weeks,then i went to Aintree hospital,the to walton had muscle and conduction test done,it

      showed things wrong in my right leg upper left arm and neck and also i am spasms next the others stop and it was clonus which was coming form my spinal cord,thn the fibromyalgia came on bit by bit,just come out now with 3more smyptoms which are burning in the muscles, numbnessss on my

      left foot and my left finngers ,,and it canalso effect yourr spelling and

      writting. judith from southport

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  • Posted

    my name is judith i have others things wrong i have arthrtis and clonus,

    that is simular to ms and parkinson,i had lots of tests done from blood

    tests xrays,mri,and a muscle and conductions,it showed i had problems in my

    upper arm and leg,while i was having the teswasts done my legs went into spasms

    i saw a consultant i had a full medical from top to bottom and the consultant said it

    was coming from my spinal cord then later on the same year i woke up with like

    flu symptoms all over my body took my temp that was normal ,b /pressure was

    normal,took some co=codamol next day it had gone,but i monitored in my diary,

    what was happening,so i went to see my gptold him that i have been monitoring what was happening ,with me it was very sore muscles.tendons, and joints,how long it had been going on for,then i got tingling in my right fingers and numbness,

    it then went to my neck it can also make your legs weak your quads very tight,

    i did have 22 symptoms,but over the last few weeks i have had numbness in my

    left foot,and in my left fingers and it can also play havac on your spelling,

    and you can get angry annoyed and frustrated,every body can start differently

    my consultants and gps have put me on, co=codamol 30/500. butec pain patches

    20 and 10mcg and voltarol geland i also have physio twicee a week,and diazepam

    2mg x 4 that is for the clonus there are 60 symptoms i now have 25,judith from

    southport

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  • Posted

    I started with writers cramp, then 6 months later I fell ill, had a fever, then all fibro symptoms hit me. All problems were fairly consistent for about 19 years. Of course they would all flare up if I overdid physical work, but you learn how much you can do, and of course I quite often overdo it and have to suffer the consequences. After 19 years I knew I was deteriorating again, but it was not the Fibro getting worse, it was onset of Polymyalgia Rheumatica, which is different from the problems you are experiencing. PMR is a burning type pain in the neck and hip area, but I do not experience numb patches.

    I have read recently that you can have a Fibro flare up, but for me the problems were consistent., unless I overworked and aggrevated the problems.

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