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Isn't it strange when you go through all the posts

Posted , 9 users are following.

sylvia17461
sylvia17461

Isn't it strange when you go back through all the past posts on this forum the difference probably 10. To 1 of women to men who have been " diagnosed" with ME/CFS ? Isn't it strange that it is the same for thyroid disease 10 women to 1 man suffering some form of thyroid problem ? There are studies going on  about the link between ME/ CFS and thyroid illness the symptoms for the two are very similar . Some forward thinking doctors have been treating ME/ CFS patients with thyroxine , T4 with amazing results . These patients have had all thyroid blood tests come back from the lab NORMAL many times after repeated tests . Doctor skinner is one brave man who went against the blood tests and treat patients sent to him from other practitioners , thought to be suffering from ME or CFS , with thyroid hormones , either T4 or T4+ T3 or NDT . Dr skinner was called in front of the medical board many times for mal practice ( going against blood tests) but hundreds of his patients stood up for him and told how they were desperately ill until dr skinner prescribed thyroid meds , and we're now back to full health.he was given permission to go on treating patents this way although only if they were referred by another GP . Sadly dr skinner has since passed away. I think  this gives room for thought why be content to have a " diagnosis" of an illness there are no specific tests for ? How do we know every other tests have been looked into? Most GP s and endocrinologists will not go past the bloods whereas for many many years before blood tests were used and before the synthetic hormone was ' invented' doctors prescribed natural desiccated thyroid to patients with symptoms of hypothyroidism and if they were cured of the symptoms they stayed on it for life , if not then they were tested for other illnesses. There are too many people suffering the most dibillitating illness because blood tests rule, things must change !!! I appreciate giving a med that blood tests say is not needed has to come into the equation but  all the info and research tells us a low dose of thyroid hormone will not harm anyone and is low cost not a drain on the NHS ! 

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  • Qwase
    Qwase sylvia17461

    Posted

    For one thing, women are more likely to go to a doctor with a condition, that's let's face it, makes us feel INADEQUATE. Surely, that's how it starts, constant pain, constant fatigue, sheer exhaustion and being overwhelmed at EVERY POSSIBLE junction, but how do you T3 and T4 yourself around the people who pace themselves and medicate around the pain and discomfort?

    I don't mean to insult but it sounds like you ate saying all ME is thyroid based, like you say, there are similarities but they ate certainly not one and the same.

    • sylvia17461
      sylvia17461 Qwase

      Posted

      I do not understand why people suffering such dibillitating symptoms such as yourself , will not look at the bigger picture. Surely when you feel so ill day in and day out you would want to take any help  offered ? I am not saying there is no such illness as ME / CFS that is not my intention . What I am trying to get across is, in many cases people told they have got ME/CFS  have not been tested for all other illnesses that could cause similar symptoms. Autoimmune disease, for instance  hashimotos , there are specific tests for this and very unlikely GP s will have requested these tests . Autoimmune thyroiditis ( hashimotos) is according to years of research the biggest cause of hypothyroidism and usually thyroid blood tests will return normal , ( nothing abnormal detected) therefore hypo is dismissed so your suffering goes on , until eventually your thyroid is completely destroyed and if you are lucky your GP will send you for a thyroid ultrasound , which should confirm it along with tests for autoantibodies ! There are of course other problems which would cause similar symptoms, which you may or may not have been tested for, parathoid tumor , pituirity tumor adrenal tumor!!! Some people on this forum will not even have heard of hashimoto disease and the nightmare it can cause . My aim is not to deride or offend any one "diagnosed" with ME/CFS but to give information they may know nothing about! I consider myself to be a caring person who if I can help i will do my best. Sy 
    • Qwase
      Qwase sylvia17461

      Posted

      I guess the biggest problem, at least for some cases, is limited funds. For instance, in the UK, if you're NHS the doctor is unlikely to send you for lots of different tests just to possibly end up at a conclusion he could've quite easily jumped to in the first place. And if you go private, most people have still got to be pretty careful with their money.

      I do agree that if nothing alleviates your symptoms at least sometimes then its time face the music and start looking into different possible causes.

      I apologise profusely for my tone last night, i was overtired. I've been working like a demon all week. A Uni deadline is a week away, the kids are driving me MENTAL, as a result I've been very symptomatic for a few days, and I'm out of pain killers and money!!!!, and I'm very sorry. I shouldn't have taken it out on you. Xx

    • sylvia17461
      sylvia17461 Qwase

      Posted

      Apology accepted but not necessary , this illness ( whatever the cause) feels like you have been hit by a truck at times and the slightest annoyance can provoke a retaliation , be it on you r wife , husband, partner, child or friend . If I may can I quote from dr John Lowe who studied and researched thyroid and fibromyalgia for 20 years together with other specialists and clinicians . He is another brave doctor who went against blood tests. He has treated many many sufferers 'diagnosed with CFS / ME with thyroid replacement drugs and been unindated with thanks for giving them their lives back. Dr Lowe states the first blood tests for hypothyroidism should be antibodies test  peroxidase and anti thyroglobulin tests as the TSH FT4 and FT3 are in his words useless ! If a patient has autoimmune thyroiditis ( hashimoto) ! The tests for TSH T4  T3 will return normal perhaps for years until the thyroid gland has been damaged enough or totally destroyed! The result is a very sick person ! He states some patients already on T4 after diagnosis of hypo may not feel any better because they are one of the people with thyroid hormone resistance , which means they need a higher dose than normally given . I must add dr Lowe has come to these conclusions as fact after diligent research and trials.  If you are keen to do some research on this  go to doctor John Lowe , sadly another brilliant and caring doctor , researcher and consultant now passed on. Sy 
    • Qwase
      Qwase sylvia17461

      Posted

      I have read he's done some brilliant research. Definitely worth looking into. Though ploughing through it seems daunting!!!!!

      I admire those (sufferers) who thoroughly research this condition. I struggle enough with the most basic of what I need to read nowadays!

    • sylvia17461
      sylvia17461 Qwase

      Posted

      I know exactly where you are coming from ( it sounds as tho you have enough on your plate as it is) I was an avid reader until this illness hit me then I found I couldn't remember what I had already read so had to go back over and over eventually gave up and only read articles and magazines. It was the same with knitting which I had been doing since my son was born Aran patterns I new almost by heart I could not do I had to keep pulling it out and starting again another of my pleasures gone. If you are keen to read some of my research I will send it on to you if you have an E mail address       ( you will have to send it private as you aren't allowed to on the forum ) sy 
    • sylvia17461
      sylvia17461 Qwase

      Posted

      Been a long time thought I would look you up see how you are doing . You had a lot on your plate 9 months ago, have things evened out for you, any change in your health issues? Sy 
  • dentalcfs
    dentalcfs sylvia17461

    Posted

    I think this question has point. I have a strong feeling that immune hypersensitivity plays a role in this illness.

    It is known that woman's immune are stronger than men, however it also means overreaction at times. A study found that higher testosterone hormone actually lowers immunological overreactions.

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