Issues that required removal of Nevro HF10?

Well Robert, they claimed "Over-stimulated" with me many times over the two years I had it implanted in me. Leads dislodged themselves at least twice (with clear documentation) -

I was Re-programmed many times ..... they always tell you (Nevro Reps) you must wait 48-72 hours before switching any Programming, Ha, ha, ha ...... I told them I feel what I say, and I don't have to wait 48-72 hrs to tell you what I'm feeling. They decided I must be OVERLY Sensitive, I was questioned how long before I felt relief from taking an Oral pain med, I said: "I feel it working within fifteen minutes" and it was a half tablet of pain medicine. (Then the Nevro Rep said: "You should be glad; you are only on a Peds level dosing".)My response: "Like I was "NOT" on ANY narcotic until the Nevro Implant was placed in me. My pain had been controlled with Ibuprofen - I was a chronic pain patient, but not nearly the level for which I have read on many of you. No pain is fun, but my heart does go out to so many of you that have had a much higher pain issue than I had. But now with the implant being gone for about a year now (I'm VERY Thankful) -- (Unfortunately, it left me with residual problems (left from having had the implant) -- fine if it helps some, I truly was NOT in the category to have had a Pain MD to even implant one into me, without any clear instructions... They Never give you all NEEDED Information. (I truly believe he wanted to make more $$$ than he could get for little steroid procedures: Believe what you need for yourself; this has been my regrettable journey. I hope someone can at least alert themselves to see this has not had "enough" positive claims. But we all "Live & Hopefully Learn" sometimes the hardest of hard ways: (I have had two lumbar fusions and one cervical fusion; none have been a cake walk, I still can walk; even tho slowly and gingerly, thank goodness without a walker and without assistance from a cane. When I had the implant I could only get around with a walker OR cane - none were needed BEFORE Implant & after Implant removed, I have regained strength enough to ambulate without a walker or cane. The Implant MADE me Disabled !!! People Be Ware - everything is not for everyone and they don't seem to reveal ALL the needed information)

Robert, I don't know if you were looking for answers and if I was able to shed at least a little light. And is that considering removal 3/20/2019 or did this get to me late (?) Whatever, let me know of your journey... Looks like we live somewhat close to one another, if you do indeed live in Dallas; I don't like traveling in Dallas traffic, ours is still too much for me out of Dallas, this entire DFW area is so congested!!!

Many Blessings for Improved Health, with decreased chronic pain,

And YES, I am happy that I had my Implant REMOVED! Still have pain, but not the Over Stimulation or shocks from the wires of implant and "I FIRED ALL my Previous MD's" and have a "NEW TEAM of MD's" - that I am happier with !!

CAR in TX (but not Dallas)

(03/19/2019)

thank you for sharing your story! I want mine out and I want a whole new team of doctors!

I also had the Nervo implant in in 2019. I would have never done it but when you're in that much pain you'll try anything. I think the whole thing is a scam. It never once helped me or anyone I'd talked to. It was actually making me feel worse, overstimulated! I really hate that my pain dr put me through this, but I'm positive he got a nice vacation out of the deal, seriously. They put me through hell fro 9 months and then I made them take it out.I hurtso bad that I'd be in bed for 3 years. Why try to put a bandaid on something that can be fixed????

I finally found some new fabulous drs in Dallasat the Carrell Clinic and had a spinal fusion in June of 2020 and have not had any pain since! ZERO PAIN MY FRIEND!

Kelley

Dallas, TX

LOTS of PROBLEMS !!!

Please contact me

My doctor just suggested the HF10 and I was looking for anyone that can tell me the good as well as the bad of this device. I had shingles a year ago and I have had several back injections for the pain that I have been left with due to the nerve damage in my left thigh as well as the burning sensation that I constantly have in my left knee.  I have also just been told that I have a degenerative L4 and L5 which causes intense pain in my lower back, I can only stand for about 10 minutes before I am in extreme pain.  I have been getting back injection as well as taking Percocet for the pain which does nothing except make me feel strange.  I also take 300 mg of Lyric and 40mg of Baclofen which makes me extremely tired.  I am looking for anyone that has had the HF10 that can tell me their experience with this device and if it has really worked for them.

thanks in advance for your honest opinion,

Teresa

GA  

Please I typed in a whole page and I think I accidently hit a key that erased --please let me know I will try to re-create another day I really would like you to hear my story. It should help you in your decision

Riley,

When you get some time, please re-create your message to me as it appears to have been erased.  I am very interested in hearing your experiences as I am having a difficult time trying to make my decision on if this HF10 is a good option for me.

thanks,

Teresa 

GA

Sorry I didn't get to re-create paragraph  for  you today. I am planning to write in a Word Document Format & copy and paste so if the computer gets hungry again (or I accidentally) press a wrong key --I won't have to spend as much time re-creating. I am  compromised physically in sitting for long periods of time but I will get you information that I think would be good for YOU to investigate. I know I wish I had. I just very recently discovered this site.

Thanks,,

CAR in TX 

Have not had time to re-create yet but I will send a few notes:

Before HF10:

-Ability to ambulate "without assistive devices"

-Ability to do own Self Care, bathing, etc

-Ability to walk 1/2 - 1 mile

-Ability to ride recumbent exercise bike 5-40 min 3-5 times per week

-MEDS: Ibuprofen 800mg three times per day; at night Tylenol maybe or not, Ambien 5-10mg every night

AFTER HF10:

-Most always need cane or walker to walk

-Ability to do own Self Care, bathing, etc

 -Not able to walk to mail box (down side walk, short distance without cane or walker)

-Not able to ride recumbent exercise bike without excruciating pain

-MEDS:  Ibuprofen 800mg three times per day, Tramadol 50mg 1-3 times per day OR

Tylenol #3 two-5 times per day, also muscle relaxer 2-4 times per day, Ambien 5-10mg every night

Wires attached to battery pack moved twice (that was recorded, could have been more ?)

Doctor signs off of case mostly and turns you over to NEVRO Reps. If NEVRO Rep says can't answer-- that's it's an MD question (?)   If u get to see him good luck ... it could be three weeks or if he sees you he could throw his arms up and say. "I just don't know what we will be able to do with you"  I told him he should send me for imaging, "A,P and Laterals for placement of wires to implant."

NEVRO Rep was across hall and he summoned her and asked her what she thought. Rep said: "You need to do what your patient said". (IMAGINE  THAT...) (I was right for the second time.) 

To Summarize next chapter: I had to seek out another MD, NO Way to ever go to the MD that placed Implant in me -- The MD that removed Implant said: the Implant was giving me the problems I was having. The Implant was moving all about me, the wires were causing shocks throughout my entire back, and NO ONE was Listening... to the patient.

My story has more but all I can write at this sitting.

You have to make your own decisions --I just wish I had been given more info before having Implant and I had looked for information like I'm finding here but I just recently came upon this site.

Best Wishes, And I'm sure you can tell which way I VOTE! There were other horrific happenings along the way ... Let me hear from you ...

CAR in TX

 

hi

my doctor wants me to get the implant, any information you can give me good or bad would be gratly appreciate. 

thanks 

kim

GRRR May I first say- WHY DO PEOPLE REPLY TO TWO YEAR OLD OR OLDER 100 POST or LONGER THREADS?????  You can't find the current conversation and the original poster is not coming back to answer your question......It boggles my mind and happens over and over on here.  There is I believe a thousand plus 5 year old thread they still have going with a current mini conversation on page 7 or so. Be brave, start your OWN discussion!  I have a Nevro for my neck. I got it around last Thanksgiving.  My trial went great as it covered both my neck pain and my arm neuropathy pain. I was deciding whether to go with the Nevro or to stick with St. Jude which I had in my lower back.  I was at that time really p****d at St. Jude, they had sold my on their non-rechargeable battery as having a life of 5-7 years. Mine lasted 8 months before the button went on for "needs replacing".Of course the reps laid the blame squarely on me, the patient, I used it to much- ie I had it turned up higher than any other patient in the entire United States of America.  And yes, that is a quote. So, that pretty much swayed me to Nevro.  I am truly sorry for that decision made in the heat of anger.  Nevro is basically non-programmable, it pretends to be by having a P1, P2 and P3 printed on the handset that I have come to believe are all the same.  By not having a tingle mode you can never really tell if the Nevro is on, or is working. St. Jude can be turned to tingle, you can adjust the areas that are covered and then they put it back into burst mode and you no longer feel it.  With Nevro the only way you know it is working is if you turn it off for a day and see if you have pain.  I have also found that while I can turn up the St. Jude when I pull a back muscle or get a muscle cramp and by day's end that pain will be gone, turning up the Nevro when my neck bothers me does nada, in fact, it may make the pain worse.  I have had my leads confirmed for placement. I have had the reps "go through programming" even though I am quite sure that Nevro is either just an on or off thing, there is no programming. You either get the 10,000 Hz or you don't, perhaps they play with the cycles.  I don't know. I am not impressed.  It is eight months now.  I got CRPS in March in my right leg which meant a lot  of cane walking.  The cane wasn't the right height for awhile, which aggravated the left neck. The Nevro. as usual is useless. My PM doc told me to turn it off for a month.  He's going to think about disconnecting the leads and connecting them to something else. I have a theory, You are either a Nevro responder or you aren't. I can't explain me fully- I did respond in the trial.  I never did with the permanent set up. Now I respond great to St. Jude Burst and I always like outside TENS units. So, you have to be open to trying things. Don't presume that one thing didn't work nothing like it will.  However, letting reps talk you into stuff  is a NO NO, they are not doctors, they are in it for the bucks, no doubt about it. 

Lynn

Thank you , didn't realize it was a two year old post. Now I see it.

Please NOTE my entry just a short while ago 6/26/2018

I couldn’t agree with you more. I hope you find some relief. I am having mine taken out as soon as Nevro and my doctor can get their act together , it’s been a nightmare for me.