1. Community
  2. Brain and nerves
  3. Chronic Fatigue Syndrome

Issues with breathing

Posted , 12 users are following.

donna63932
donna63932

Hi Does anyone have issues with breathing when you are having relapse? When I have a crash (relapse) it feels almost like an effort to breathe. Its hard to describe.  It feels strained but not a struggle ... Probably not making sense ... Sorry 

2 likes, 24 replies

24 Replies

Prev
  • sylvia17461
    sylvia17461 donna63932

    Posted

    In 1995 I had a flu type virus lasted weeks eventually left me with debilitating illness . Foggy brain no concentration pain in muscles and joints thudding heart palpitations headaches air hunger  numbness and tingling in arm and legs inner tremors wooziness etc etc plus horrendous fatigue !!!!! My life , I can only describe as a nightmare !!! I saw many doctors and different specialists and because all my blood tests came back normal I was " diagnosed" with CFS told to buy a book on it and just live with it!!!!!!!! There are no tests for ME/CFS ME as I understand it means swelling of the brain tests were done on sufferers "diagnosed" with this illness and results showed there to be no swelling so it became CFS ! This " diagnosis" makes the illness sound trivial !  10 years on I found a doctor who believed in treating the symptoms not blood tests gave me thyroxine and within weeks I was at least 50/60% better. Now years later I have been diagnosed with an autoimmune disease , hashimotos after having specific tests for antibodies and told this has been my illness from the beginning. I have mentioned this before to Donna, there is no cure only treatment , which. Is thyroxine, I am still not 100% well but my life is not the awful struggle it was . This may not be the answer for everyone but it could be yours !!!!!!
    • KathS
      KathS sylvia17461

      Posted

      Glad that you've found some relief with Thyroxine.  I tried thyroxine a year or two ago as I thought my problem could have been caused by a hormonal deficiency as my symptoms appeared to be similar to an under active thyroid.  It didn't work for me unfortunately but it should be considered by other sufferers.
  • donna63932
    donna63932

    Posted

    Hi seen GP but he said would run specific test later but referring me to cfs clinic which am posting about.  I guess that makes it official. 😣😣😣😣
  • tori7494
    tori7494 donna63932

    Posted

    Hi Donna, I also have breathing problem, it' only happens when I have over do it. Apparently it's part of having CFS, my CFS counciler told me not to worry.x

     

  • sunshinemb
    sunshinemb donna63932

    Posted

    Hi Donna

    It makes a lot of sense!

    A lot of me/cfs patients have problem with low oxygen levels and get breathless! And when feeling really exhausted it takes all your energy to take a breath.  I for one have this problem which gets even worse when I relapse! I get out of breath just walking a few metres!

    The problem is that if oxygen levels are below 94% people can have problems with anxiety and no concentration!

    I found this out most recently when I was in hospital after operation by looking at my chart and on the back it was printed what happens if oxygen levels drop!

    I was given oxygen after operation and oxygen levels went up to 96%(had been 93% prior to surgery and dropped back down to 93% once oxygen was taken away).

    Even though this was shown as an alert on my chart...It was not treated and I was sent home!

    I have since been doing research on the effects of low oxygen levels and  oxygen concentrators.

    I am  going to make appointment with my GP to ask for a breathing assessment once I am fit enough to get to the surgery!

    For the short time I was on oxygen I felt warm inside(I very rarely feel warm) and

    my brain had no fog!  My temperature was recorded as 36degC throughout my stay and it went up to 37degC when I was on the oxygen!smile

     

  • JulieBadger
    JulieBadger donna63932

    Posted

    I've just bought myself a pulse rate / oxygen monitor to put on my finger.  I'm usually between 96-99 oxygen.  However, whenever I go below 95 I'm taking bigger breaths.  Mind you sometimes I am taking bigger breaths when I'm at 98.  Another ME/CFS strange thing?rolleyes
  • Tazgal1426
    Tazgal1426 donna63932

    Posted

    hi Donna I'm president of the Houston chronic fatigue syndrome Association. I recently fired a bunch of doctors and went to a new gastroenterologist and pulmonologist. both of them agreed that it's possible a hiatal hernia or esophageal muscle contraction to cause asthma-like symptoms. in his office he performed 5 tips for asthma showing I did not have asthma. He ordered a methacholine test that I'm getting results for tomorrow. This will tell if it's. This will tell if

  • Tazgal1426
    Tazgal1426 donna63932

    Posted

    Sorry my phone shut down LOL. The methacholine test tells if asthma or more testing. I suggest everyone look at their doctor's current technology and how long you've been going to them. Old pulmonologist only performed blow in tube test. Doctors seem to get lackadaisical with chronic illness. I say this from experience and doctors trying to kill me LOL. Anyone can contact me about symptoms for any chronic illness via Houston cfids Association on Facebook or junglejane1426@net Hope everyone has a great holiday season and New Year

Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.