It appears to me!
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Reading members posts It appears once you have been diagnosed with RA you have it for life, there is no getting over it and there is nothing that you can do or take that will remove the pain or return you to your previous life. Please tell me this isn't true, are there any success stories out there - any at all?
0 likes, 14 replies
janis06023 tony09890
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lyn1951 tony09890
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How does our body know to turn off attack mode when the infection is gone, I'm not entirly sure I understand.
I just know that our body has forgotten to turn off the attack mode and has decided that our joints are the enemy.
I have come to the conculsion that diet does have a huge influence, and finding the correct mix of food, medicine is long term going to help us, I know it does for me, but I find it very hard to follow, or I certainly hope so.
I too have had a bad week, regards news with my hips, nothing they are going to do, MRI tells them I have major problems with my lower back, and the problems with the hip have only made it show up earlier than it would have otherwise.
Long term, Dr tells me too avoid back surgery as long as I can stand pain.
Agree with him there, family friend had horror back surgery, that they couldn't undo, have not pretty memories of the cripple he became in his early 60's, still active on two walking sticks into his eighties.
Gail363 lyn1951
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So far I'm only on Methotrexate and my Rheumatologist just called in prednisone to try to aleviate some of the pain,swelling and stiffness in my elbows wrists and hands and will be adding Enbrel soon.
michelle1958 Gail363
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EmFox tony09890
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I'll tell you for sure, there's a few things that suck about getting older but I prefer it to the alternative. But that's not to say that RA is the end as you know it. It's just another turn in life for me.
But if you've read much here you see everyone has different symptoms and treatments. So much so it's a little odd. I'll bet diabetic forums don't have so much variety! They probably all yearn for pancakes and mashed potatoes. Or whatever. Sorry folks.
So I'm 58. I did a lot of construction type work most my life and got a desk job 17 years ago. 2010 I started having terrible wrist and shoulder pain but was sure it wasn't carpal tunnel. 2011 they said it was RA. Did the usual treatment. Pred, Mtx. (Nobody's the same so it doesn't matter what drugs I took)
My abilities to do hard work with my hands was about gone. Did it anyway and paid the price often but not always. Almost gave into acting like I was 78.
Last year started injecting Enbrel and I'm pretty much able to do anything I want. I am 58 but I still do some really physical stuff. Most the time I don't want to but I can. I can go whitewater kayaking without too much stiffness. Install heating units in attics on the side for a few extra bucks even.
But everyone has different triggers and pain tolerances so be patient and work thru your symptoms. Hopefully you'll find a good combination that matches your needs. It could take a while. And ya it sucks. Maybe you're really young and I sound full of crap. But I do have RA and I have very few limitations. I realize this might be short term remission so for now I guess you can called it a success story. Eventually I'll call setbacks new normals.
Good luck
EM
huambach tony09890
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Light tony09890
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It takes a while to get a handle on it and there are many, many options.
I have been relatively pain-free for over a year.
So take heart!
loulou282 tony09890
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jjnz tony09890
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I have done more reading in the last 3 months than I have in my entire life on rheumatoid Arthritis.
I havent been diagnosed officially but I have all the symptoms.
It seems there is a lot of research going on at the moment into the gut biome.
Hundreds of millions of dollars are going into massive projects to map the gut biome in the same way we mapped the human genome.
It seems that people with RA, ME, FM and even parkinsons have distncly less VARIETY of flora in their gut, there is plenty of research on this google microbiome and autoimmune, So variety of gut flora comes from life long exposure to to various bacteria, from your mum ( note that c section children have different health outcomes than natural born) The gut flora in aboriginals and kalhari bushmen is vastly different to ours ( see american gut and the human biome project)
There are now studies that show that swapping microbiome can create different health outcomes.
Google C.Difficile and FMT.
Google FMT and Parkinsons
Google FMT and RA.
You can manage your symptoms a lot with diet, address a leaky gut and candida, address fitness ( yes, I know its hard)
Your gut biome might just be the key to modern medecine.
Note what dogs do when they are sick.
What did hippocraties say about disease.
dont get down Tony, now is a very good time to understand the gut biome and do the best you can with probiotics and a vegetatian ( non inflamitory) diet. ( which affects the gut biome) untill such time as FMT becomes more than an experimental treatment.
Google fecal Microbiota transplant and read up, there could well be a fix for many illnesses around the corner.
Its the only reason I'm positive about the future because I can assure you the last flare I had was enough to make me , well, you know how it goes
Gail363 jjnz
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Light Gail363
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In all events, losing weight is one of the first and best things you can do without medications, because the less weight you carry around the less stress it is on the inflamed joints.
tony09890
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Gail363 tony09890
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tony09890
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