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Hi, I’m a 48 year old female with TN and a first time blogger! I was diagnosed about 8 years ago. When I first had TN the attacks were not very frequent. Unfortunately 8 years down the line this current episode has been constant for 2 years. I have been told the attacks get more frequent and more painful so please, if you are new to TN, make sure you are under a good Consultant. GPs are RUBBISH. We are 1:200,000 so most GPs don't know a thing about TN! I have tried all meds under the sun, some of which worked (especially Tegretol) but then I quickly realised I was allergic to the best of them! Currently I take Phenytoin which gives me some relief, but a dose higher than 250mg a day makes me very toxic. Please ensure you have regular blood tests and know what your levels should be! Last March they added Lamotrigine to the equation, so I now take 8 tablets a day. Very soon after adding Lamotrigine I suffered memory loss and confusion amongst other things and was diagnosed folate deficient and then treated (more tablets). With the addition of Lamotrigine the pain got better. However, why oh why does medication sometimes seem to NOT work?? I’m having for the last few weeks what I call my ‘medium’ pains and can just about function, but it makes you so miserable especially as I have a 10 year old son to care for. I also work full time and hate to be off work. It is a pain that no one can see (unless you're on your knees screaming). I have found no magic cure unfortunately apart from don't talk, don't cry and brush your teeth after the attack has just started (bite down on the brush if it is too much). As the meds are obviously unsuitable for me I have asked for microvascular decompression (MVD). This I have at Kings, London in May. I CANNOT WAIT. Marie
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