it's a long comedy of I don't know what...

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Two nights ago I can't find medicine for my gut and I know it's in the house. I turn the house upside down and can't find it. Finally I figure out it's in the car, so I head out in the evening to check the car (in my slippers and bathrobe) only to find out it's raining. Naturally I parked the car outside instead of in the garage. I get in the car and start searching. I lean over the armrest to dig in the back seat and I hear this loud "pop". I don't move and think (insert favorite expletive) "omg, I've cracked a rib!"  I trudge back thru the rain (without medicine) into the house, where I have to share the news with husband who is busily packing for a business trip, the one I swore he could go on because "everything was good". So now I tell him, yes, I may have cracked a rib, but still, everything is good. I show him on the internet (multiple sites) that the treatment for a cracked rib is just otc pills or prescription pain pills (which I already have) and there's no need for the hospital because I can breathe just fine, he doesn't leave til morning so if there are changes, blah, blah, blah, I'll call my doc the next day, etc. 

So, no changes, just same pain, so I send him off. I call my doctor's office the next day, late morning and leave a message, They get back to me and say, hold tight, we'll talk to the doc. Eventually they call and the doc says get to the clinic NOW and have this bloodwork and set of xrays done. I'm like "sure, as soon as my daughter and I finish lunch" because she happens to have the day off. She sighs because this is yet another day ruined due to mom's illness. I swear to her it will be quick and it was. we head back home and resume our day (she's painting) when we get a call from my doc freaking out because my d-dimer is off the charts (crp isn't back yet). Get to hospital now, suspected clot. I'm like, what about the cracked rib? Forget the rib!

Well as those of you with children know, there is no NOW. 2 hours later I'm in the hospital emergency room, after packing my daughter for an overnight, making her lunch for the next day because she has dietary issues, and finding a place to dump her for the night. I get to the hospital, park in the wrong place, go into the wrong doors, can't find the emergency part, end up having to go back out, find my car, drive to the emergency front doors and park (I'm blaming gabapentin for this stupidity, though topamax may have had a share of it). They take me right away even though it's busy and I spend the next hour filling out forms and trying to explain why my doc thought it was so important that I come to the emergency room. Eventually, after I've paid (yes, this is America) , they decide to run the same tests plus some more, a CT scan, etc. The only obstacle is that i have no veins. 4 different attempts to find a place to put in an IV fail (IV for CT scan has to be above wrist). They stick one in the hand to get blood for the bloodwork and then give up, telling the doc she'll have to run a different type of CT scan (apparently more expensive and longer). I tell them to keep trying, I'm game, so they send in Troy, who finally finds a vein in my forearm that works. Oh the bruises! meanwhile I finally get my IV and CT scan. More delay (thank goodness I brought a book and embroidery). 

Of course, husband knows nothing of this. I figure, why worry him when there isn't anything to tell him? I'll wait til there's news. I was going to tell him when he called between plane flights but that's when he shared with me that a friend called. One of this best friends from college has been given a diagnosis of malignant brain cancer and has been given a few months to live. Nope, I figure my news can wait.

Eventually the doctors come back in and share with me the news. Apparently I'm suffering from a "chronic PE," one that's been there for who knows how long, but it didn't develop overnight. Prescription is LMWH in mega dose 2x a day, see my GP and hematologist (and I have one because i have Factor V leiden!). They didn't feel I needed to be hospitalized, thank goodness, because I was breathing just fine, ECG was good, etc and everyone wants to save money. Eventually they let me go, and I'm due to see my GP the minute she gets into the office this a.m. Best part, ER thinks I did crack a rib but it's not showing up on the xray (after all that calcium/vit d/magnesium I've been taking too). 

Hilarious note: the entire time I'm in the ER, the nurses blamed Prednisone for everything. No vein? Pred. Fractured rib? Pred. Possible PE? Pred. and Factor V leiden. Now these are all legit, but it was just so comforting to hear someone else say it :D. 

So now I'll probably be on anticoagulants for life, and given the choice between coumadin, a very crappy drug I've already tried and after 6 long months they couldn't get me stable on, or one of the new drugs, which are just that,and there are already lawsuits. Oh the fun. Meanwhile, it's all Prednisone's fault wink. And I have to break the news to husband at some point. The longer I wait, the angrier he'll be that didn't tell him right away, but really, what could he do but worry about nothing? And maybe help me pull of these annoying krazy glued on ECG stickers. I keep finding them all over my body. And by the time he gets home I'm going to be a mass of bruises due to the IV attempts and anticoagulant, thus looking even worse than it all is. *sigh* And here I was trying to be a good corporate wife and letting him go on a business trip, first one since all this crap happened.

And I still can't find the medicine for my gut. It's not in the car. 

7 likes, 27 replies

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  • Posted

    No mention of warfarin for the PE? My husband went for xray and CT scan as a result of a persistent cough and was whipped into A&E and then a ward immediately with 2 acute PEs.  He has been on warfarin ever since which I understood to be the normal treatment, and has a blood test monthly to determine the dose depending on his ING (the efficiency withwhich his blood clots).
    • Posted

      I'm on LMW heparin for the next month or two until they figure out which of the evil drugs to put me on. the debate is between coumadin and predaxa.

      Enoxaparin (LMWH) is standard treatment for a PE or Chronic PE, then they switch people to warfarin or whatever.  Since my PE was apparently not that exciting as far as PEs go, they didn't need to keep me in the hospital (low risk). 

  • Posted

    well I spoke to my husband this morning but  he seemed so upbeat that I couldn't break it to him. Think I'll just wait til he arrives back home. He was so proud of himself having eaten a healthy breakfast (he had a heart attack last fall and has been on a restricted diet-this is his first real business trip and catered event, so he has to make choices all by himself, lol!) that I just couldn't. 

    Saw my doctor this morning and worked out the particulars. also showed her my lovely arms from last night. I have a bad photo which has some of the bruises from one arm-I tried to get all the bruises on one photo that are on the arm but I couldn't do it. 

    My doc isn't completely convinced that I damaged a rib, even though I heard a pop and it hurts like heck and the folks at the ER think I did. *sigh* Whatever. They can battle it out or take bets. My money's on a fracture. Meanwhile I tried to schedule my long delayed bone scan but they can't do it this friday when they had a cancellation because...yes, I've had a CT scan in the past 2 wks (or last night). Of course I tried to get one scheduled two wks ago but someone had my spot (!). It would have been nice to know if I have fragile bones, lol, BEFORE I broke one. But I can't because my GP says there's no way I could have broken a rib doing what I did. Right. The fact that every single drug I take weakens bones apparently means nothing. I have superhuman invincible bones. Then, in the very next breath she suggest that my rheumatologist put me on a bone building drug (!?!). Whatever. I could go crazy keeping up with her-it's like a massive game of ping-pong sometimes.

    so now I've been handed off to both my hematologist and the coagulation clinic. I had a chat with my personal coag person this afternoon and she had no clue. First she thought it was my first clot, so I had to fill her in. She seemed really out of touch. This doesn't bode well for the future wink

     

    • Posted

      And this is in the wonderful world of privatised medicine isn't it? You seem to have drawn a right set of short straws! However - how long have you been on bone-sapping medications? It doesn't go from OK to not OK overnight and low bone density doesn't automatically mean fractures - people with normal bone density break things, people with low bone density don't. There are loads of other worse risk factors which I have waxed lyrical about loads of times.

      In the meantime - don't go skiing, snowboarding, roller skating, parachuting or other similar high risk sports. No high heels. And maybe take the lift if there are too many nasty steps...

    • Posted

      well, let's see... I've been on topamax for about 10 years, H2 blockers and PPIs for at least that long, I have asthma, so i've inhaled steroids for a couple of decades, and used them nasally for a bit longer.  this is just off the top of  my head...i'd have to really think about what I took previously for migraines, etc. Then of course there's the current crop of meds for this GCA, Peripheral Neuropathy and so on.
    • Posted

      And this is the first dexascan? Not really impressive is it?

      And your photy puts a whole new dimension on selfies doesn't it!

    • Posted

      I had one that I paid out of pocket for about 5 years ago that showed some minor bone loss. I took it to my docs and they were less than interested. *sigh* It did spur me to exercise more and pay more attention to my calcium/vit d intake.  Imagine if I didn't, lol.  my "team" of doctors are not working as a "team" wink
    • Posted

      Don't thinkthat these days doctors know what team play is to be honest...
  • Posted

    I really enjoyed your post since I have been through so many similar experiences myself, with stickers everywhere.  After surgery I wasn't allowed to take a shower or bath for a period of time, so I kept finding stickers days later.  I have also been black and blue giving myself tummy shots.  And most of these events were pre-pred.  It took 7 tries once to get an IV in me, but I have a friend who said it took 17 tries and she is not on pred.  
    • Posted

      Don't your nurses take them off? I've never had a sticky left on after an ECG and they even give me cream to help avoid the bright red rash that appears due to being a tad sensitive to the glue...
    • Posted

      omg, 17 tries? That could be me in a few years wink.
    • Posted

      i think the nurses here are too busy. Everyone and their mother came in the ER that evening. Also if you're a bit hairy, they don't want to be the one to pull your hair out-I found this out when my husband had to go in. 

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