Iv just been told I have a pituary tumour measuring 1 cm,

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My consultant wants to leave it and do yearly mri scans to check it, but I feel so ill on a regular basis, they have asked me to do 48 hour urine collection, does anybody have a similar size tumour please advise

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  • Posted

    please tell your consultant how ill you feel. it may be that leaving the tumour is the best option, depending on where it is and what type it is. ask the consultant what they suggest in the meantime so that you don't feel so unwell.

    good luck 

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  • Posted

    I actually have that same size so yes. When you say you feel awful what do you mean? The wait and see approach is pretty common until something gets bothered by it.
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    • Posted

      Hi my main symptoms are tiredness to the point of exhaustion, headaches and my periods have almost stopped due to my hormones playing up, my boobs also get sore and I have no sex drive,
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    • Posted

      i'd suggest mentioning that to the endocrinologist - they might be able to presecribe something to overcome that. are your prolactin levels high? also, suggest you look at the pituitary foundation website. they might have something which 'clicks' with your symptoms. they certainly have stuff aimed at GPs which you could download and take along to support your ideas if needed. Not to show the GP is wrong but becasue this is rare and so they might not have come across it in normal practice.

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