Posted , 5 users are following.
My specialist states I have a small pituary growth on my pituary gland and raised prolactin levels does anyone know what treatment for this will be, as I am desperate to feel normal again thanks
0 likes, 7 replies
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kren Olive156
Posted
Hi Olive. No need too worry, I was diagnosed in 1996 with exactly the same, I was given medication, first bromocriptine then later taken off bromocriptine and put onto cabergoline. Both these drugs shrink the pituitary Tumor and reduce prolactin. I still attend hospital too see an endocrinologist, blood is taken too check prolactin levels, and other hormones. But honestly don't worry about it.
Olive156 kren
Posted
Hi thanks for replying, I'm glad they have found what's wrong and can treat it suffered for years with it, was even told at one point I was on early menopause, hopefully will start to feel normal again soon forgot what it feels like x
kren Olive156
Posted
Hi, I was exactly the same went for years going too my GP, saying I didn't feel well headaches from hell, getting blood test and being told nothing was wrong. That is until I change practices, they did a blood test, which came back as ok, my new GP requested hospital tests, I spent two consecutive days on a day ward, having blood taken every hour for eight hours, then an MRI scan, which verified it was a prolactinoma, hence I was put on medication. That was until four years ago when I was told it was inactive, and taken off meds, so far so good.
dambudzo Olive156
Posted
it is really horrid when you know something is not quite right and you don't feel like yourself. but the meds do take effect and as kren said the drugs do work.
it might take a little while for them to work out which dose / combination etc to give you.
but eventually you should feel more like yourself once again.
good luck and be kind to yourself.
cherrylann24684 Olive156
Posted
Do you have acromegaly? I had debilitating headaches, sleep apnea, carpal tunnel, enlarged jaw and brow, knuckles enlarged, increase in shoe size, little bumps on face, thickened toe nails and various other irritating symptoms. They removed the tumor from my pituitary gland and the headaches and sleep apnea disappeared. I take medication to control the growth hormone and hopefully after surgery, you'll be feeling better also!
sonia19421 Olive156
Posted
Hi olive, I totally understand where you are coming from . At 34 just before my birthday my string of weird issues were put together. As a severe asthmatic I am on lots of steroids which can induce diabetes. So the fasting oral glucose tolerance test was a bit high. Then my prolactin was off the charts high. So then they ran a m.r.I and found a 4cm pituatory tumour. Thankfully I'm insured and saw a specialist in Australia within a month. There was no way I would go through the public sector for a brain operation ! We tried drugs to lower the hormones releasing from the tumour which can often be tried first, but they didn't work for me and made me sick. I had three surgeries and the first one I got very sick post o.p. and was intubated in the i.c.u for weeks. All I can say is you must be proactive in your treatment, you must find the best surgeon in this area like I did. Best of luck.
BFF Olive156
Posted
Yes, they'll just put you on Cabergoline and it will go away over time most likely. I'd recomend you start with as low a dose as possible and slowly move up only if you need to. I call it the magic pill as I feel like it saved me in so many ways.