Iv just received a letter after suffering for many years with vatious symptoms

Posted , 5 users are following.

This discussion has been locked due to a period of inactivity. Start a new discussion

My specialist states I have a small pituary growth on my pituary gland and raised prolactin levels does anyone know what treatment for this will be, as I am desperate to feel normal again thanks

0 likes, 7 replies

Report

7 Replies

  • Posted

    Hi Olive. No need too worry, I was diagnosed in 1996 with exactly the same, I was given medication, first bromocriptine then later taken off bromocriptine and put onto cabergoline. Both these drugs shrink the pituitary Tumor and reduce prolactin. I still attend hospital too see an endocrinologist, blood is taken too check prolactin levels, and other hormones. But honestly don't worry about it.

    Report
    • Posted

      Hi thanks for replying, I'm glad they have found what's wrong and can treat it suffered for years with it, was even told at one point I was on early menopause, hopefully will start to feel normal again soon forgot what it feels like x

      Report
    • Posted

      Hi, I was exactly the same went for years going too my GP, saying I didn't feel well headaches from hell, getting blood test and being told nothing was wrong. That is until I change practices, they did a blood test, which came back as ok, my new GP requested hospital tests, I spent two consecutive days on a day ward, having blood taken every hour for eight hours, then an MRI scan, which verified it was a prolactinoma, hence I was put on medication. That was until four years ago when I was told it was inactive, and taken off meds, so far so good.

      Report
  • Posted

    it is really horrid when you know something is not quite right and you don't feel like yourself. but the meds do take effect and as kren said the drugs do work.

    it might take a little while for them to work out which dose / combination etc to give you. 

    but eventually you should feel more like yourself once again.

    good luck and be kind to yourself.

     

    Report
  • Posted

    Do you have acromegaly?  I had debilitating headaches, sleep apnea, carpal tunnel, enlarged jaw and brow, knuckles enlarged, increase in shoe size, little bumps on face, thickened toe nails and various other irritating symptoms. They removed the tumor from my pituitary gland and the headaches and sleep apnea disappeared. I take medication to control the growth hormone and hopefully after surgery, you'll be feeling better also!

    Report
  • Posted

    Hi olive, I totally understand where you are coming from . At 34 just before my birthday my string of weird issues were put together. As a severe asthmatic I am on lots of steroids which can induce diabetes. So the fasting oral glucose tolerance test was a bit high. Then my prolactin was off the charts high. So then they ran a m.r.I and found a 4cm pituatory tumour. Thankfully I'm insured and saw a specialist in Australia within a month. There was no way I would go through the public sector for a brain operation ! We tried drugs to lower the hormones releasing from the tumour which can often be tried first, but they didn't work for me and made me sick. I had three surgeries and the first one I got very sick post o.p. and was intubated in the i.c.u for weeks. All I can say is you must be proactive in your treatment, you must find the best surgeon in this area like I did. Best of luck.

    Report
  • Posted

    Yes, they'll just put you on Cabergoline and it will go away over time most likely.  I'd recomend you start with as low a dose as possible and slowly move up only if you need to.  I call it the magic pill as I feel like it saved me in so many ways.

    Report

Join this discussion or start a new one?

New discussion

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up