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ive crashed today.

Posted , 4 users are following.

jade43146
jade43146

I had alot to do yesterday tidy up,pick my son up from school then take him to football training,come home make us tea. Both needed a bath then put my son to bed. I wasnt as bad yesterday so i had the energy. Yet this morning i couldnt take my son to school and i had to stay in bed, im still in bed. Wondering where i am going to find the energy to pick my son up from school. To others my day yesterday i didnt do that much. I thought to myself it hisnt alot and i will be ok. Hate being like this and i hate not having the energy for my 7year old. Times like this it takes alot to not get down and to keep going 

4 likes, 13 replies

13 Replies

  • david59662
    david59662 jade43146

    Posted

    Hi Jade,

    Having CFS for 11 months, although for a good 6 months i had a post viral fatigue diagnosis, i have great admiration for you, being able to do what you do. I think you need to be looking at trying things to help. There is LDN, you could also mention the synergy trial to your GP, take documents and ask perhaps to try low dose ritalin to ease fatigue. My GP will give me the ritalin if i want, i have postponed it for now as i can manage my fatigue at present and am working on some suplements i think may be working. I think in the longerm term we should support our body as much as possible. If i were to take ritalin i would also take some kidney tonic herbs like cordyceps. Lord knows i have been so low i would take ANYTHING to give me a boost. Maybe try some rhodiola.

    • jade43146
      jade43146 david59662

      Posted

      Hi david thankyou i do need to start looking into ways to help me because i have a son and he needs me. I wish i had more help but i dont. However his smiling face and cuddles help me get through the bad days even if they are hard. Ive even been on line to get my shopping delivered as i havent the energy anymore. I cant finish my list today though as its to much energy to do it. Trying to find ways to make my life that bit easier so when i do have the energy i can use it for my son x
    • david59662
      david59662 jade43146

      Posted

      Yeah me too with the shopping, used to walk 3 miles, backpack it all and walk home. lol Now it's all online. Unless we find ways to cultivate and eventually increase out energy it's a losing battle with this CFS in my view. We have to be smart about this, we can't 'fight it' the normal way. I tried for about 6 months and got worse.

      I personally if i were you and because it is affordable would try some rhodiola. I've used it for years during my training years and it was very effective, feel my body is used to it a bit so i take other adaptogens now. Big believer in adaptogens, but we have to take them consistently (rhodioa can work quick though one week) for months. Eleuthero is another good one.

  • donna63932
    donna63932 jade43146

    Posted

    Hi. I can understand. Apart from school run i have done nothing. I feel ill. I worry that how hard i push myself is doing me damage and result in hospital. Every day is harder. People demanding. Although my children demand , they get me through the day. I am trying to summon energy for school run again. Taking taxi for a 7 min walk just to cope 😢😢 
    • jade43146
      jade43146 donna63932

      Posted

      Its hard isnt it, im so exhausted today that i dont think i can do the school run but i have to as there isnt anyone else to help me. My legs hurt so much to walk that a 5min walk will take 15mins. I hope your ok and if you have to get a taxi then do that dont walk if its to much for you x
    • donna63932
      donna63932 jade43146

      Posted

      I took taxi to dads, rested , he lives oposite school then walked back slowly and now feel tearful. I cant talk and walk at same time.  Am glad you and i have joined here as we can find advice and support. I wish you  all the best. Message me if you want a sympathetic mum chat. Folks are great on here. 
    • jade43146
      jade43146 donna63932

      Posted

      Im glad we did aswell its helped me alot knowing i can talk to people and they understand what i am going through. Try and rest as much as you can. I know now that i can rest as i have nothing else to do till teatime. Would be great if i could rest all day but i cant. My legs are really hurting after that walk to and back to school and i get out of breath so easy. You can always chat to me when you need to smile x
  • KathS
    KathS jade43146

    Posted

    I don't know how you manage to cope having a 7 year old and CFS.

    I am retired at 72 and have nothing so energetic to have to do, but I feel so exhausted even thinking about doing ironing, cleaning etc.  In fact one of my daughters does my cleaning, because with the back pain, I can only do bits at a time.  

    It seems daft and stupid, but by 'normal' bedtime, I'm too exhausted to get up off the settee, clear the supper things, lock up, see to the cat and go to bed so it gets 3.00am by the time I've summoned up the energy!  I don't get up until noon, and not even then if my husband doesn't come and get me out of bed.  I could easily go back to sleep after lunch, and often do.  If not then, it's nap time just before tea or just after.  In fact, if left alone, I think I could sleep all day and all night!  On the odd occasion I have done!

    I very rarely have 'good' days although I do go out, but only if absolutely necessary.  I do work on the computer for my local church and the MU, but this requires so much mental energy I'm seriously thinking of giving it all up.

    What a horrible life! 😥

    • jade43146
      jade43146 KathS

      Posted

      Hello kath sorry i havent replyed to your message till now. Im really sorry that you have it hard with cfs and i feel for you not having the energy every single day it must be very hard. Is there anything that you could just try and do? Just the littlest things that make it abit more bearable like sitting in the garden watching the birds,watching the sun go down, a little walk out in the fresh air. Nothing to much but i think the little things like this could give you some pleasure in dealing with cfs

      I find it very difficult with my son and i have found that even on my bad days a sit in the garden rather than my bed makes me feel like i arnt missing out on the world.

      My son uses up every ounce of my energy but we have to try and help ourselves by doing the littlest things that make us feel human again.

      I hope i have been some help and i hope you can do some of the things i have mentioned. X

    • KathS
      KathS jade43146

      Posted

      Hi Jade, thanks for your reply x

      I don't have a garden as such, just a few tubs in the yard, but in summer it can be nice sitting out for a short time as long as it's not too hot.  I can't sit out in the hot weather we've had this summer for more than 5 minutes.  When the weather is a bit cooler, such as at dusk, is better for me, or if it's under 20 degrees C during the day.

      I have too much pain in my back to even walk round the block.  I've had various X-rays, physio, and 3 types of injections in my spine which haven't helped at all.  I'm now on morphine tablets + morphine liquid as an extra dose(s) in between,  but I really should try to do a little more than I am.

      I just wish there was a miracle cure for all of us, but I don't suppose there ever will be.  Not in my lifetime, anyway!

      I dare say you give your son much love and many hugs, as these are more beneficial emotionally than any number of walks or physical games which you may not be able to do very often.  Please give him a hug from me too.  😘

    • jade43146
      jade43146 KathS

      Posted

      I will do and thankyou. my son is my world and i want to be there for him as much as i can. Maybe i dont do the other things other mums can do with there son like play at the park or play fight ect but he does get lots of love and i tell him everyday how special and loved he is

      That to me is more important i think

      I hope that you can try doing something little to give you a pick me up,maybe a hobby that you could do in your home. Baking or sewing

      U must be in alot of pain with your back and i hope you will be ok soon x

    • KathS
      KathS jade43146

      Posted

      I do have a sort-of hobby.

      I do a lot of work on the computer for my local church which I enjoy in small doses.  Also I'm branch secretary for our Mothers' Union branch and also the MU deanery rep for Indoor Members!  I was a Technical Secretary & Librarian for a Civil Engineering company in my working life which I really enjoyed.

      Actually, I'm thinking of giving some of them up as they seem to be getting too much for me now.  I will keep some of them on though, the ones which I only need to deal with as and when something needs updating and one of which is only fully re-done every 5 years, and I hope I'm feeling better by then?!  

      Others are either weekly or monthly and I don't always have the mental energy to cope with them now without such a massive effort.  These are the ones I'm thinking of packing in.

      You are doing everything you are able for your son and I'm sure he loves you back too.  When he's older, he will remember all the love you are giving him now which is much more important than anything else.

      Keep it up and best wishes for your health in the future. xx

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