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ive finaly got diagnosis treatment 12 months after possitive test

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vicky89033
vicky89033

HI, I have had progressive symptoms for 4 years now and was tested for lymes and co infections last jan i had a possitive result for co infection Anaplasma and today 12 mths after that result finaly got the diagnosis and antibiotic treatment. for everyone who has had dismissive doctors who wont even acknowledge a possitive result dont give up. I have seen every specialist possible from nuero to endocrine at 5 hospitals non could give me a reason for my symptoms they all ignored the possitive anaplasma. Manchester ID ignored the result and symptoms and discharged me sheffield ID wouldnt even see me. I begged my GP for a referal to liverpool ID and they finaly agreed thankfully. over the past 4 years ive been told me it was fibromyalgia, CFS/ME,depression,stress and anxietythey had me even douting my own sanity! 1 GP even said all weve ever found is "that funny bug" this was the co infection. im not 100% sure what anaplasma is and if it is a reason for all my symptoms mainly neuro and possibly an autoimmune problem but at least i feel now that i have a name for what wrong. I got alot of help from my local MP and the PALS service at my local hospital who pushed me not to give up looking for an answer. I would urgh everyone to keep going and even when your faced with ignorance and feel like your going to the doctors saying the same thing over and over again and being a nuisence keep in your mind that one day the right doctor will listen

0 likes, 6 replies

6 Replies

  • Jo-Anne1803
    Jo-Anne1803 vicky89033

    Posted

    Well done Vicky! I remember your story well. It was criminal they weren't listening to even positive results but I know I watched a tv show about Lyme in Ireland recently and it stated the patients there were testing positive for anasplasma more than they were Lyme now so I do think doctors should start including that test as standard now

    What treatment are they giving you?

    Happy for your progress X

    • vicky89033
      vicky89033 Jo-Anne1803

      Posted

      hi jo-anne thanks for your reply. it has been a nightmare getting someone to listen but i have alot of faith in the treatment im now getting at Liverpool. I wish i had seen the TV show about Anaplasma my GP could do with seeing it too! it felt so good telling the GPs that Liverpool have now confermed definatly have this and are treating me. they have given me 10 days higher dose of doxycycline then a strong antibiotic if that doesnt work i go back in 3 weeks
    • Jo-Anne1803
      Jo-Anne1803 vicky89033

      Posted

      Well done fab news. Sad that it takes so much effort to knock down doors. The nhs is making a grave coq up with all this Lyme stuff! You got there though!
  • Ali888
    Ali888 vicky89033

    Posted

    Glad you finally getting treated and found someone who understands. Full respect to you for not giving up, after all those attempts I'm not surprised you started to question your own sanity. I was bit 6wks ago and suffered from CPS and severe depression. I was tested and the results came back negative even after the doctor confirmed it was a bullseye rash that can only be caused by the bacteria. They told me not to worry and it's fine. I took it apon myself to call another doctor and ask for antibiotics. There wasn't a doctor available but a nurse gave me a prescription for 100mg doxycycline 1 a day for 2wks. I'm on my 3rd day and I'm starting to feel a lot better.

    Vicky are you hopeful the antibiotics they have gave you will kill off the infection completely. Will you need more blood tests after your course. I'm going to book another blood test for a few weeks time.

    • vicky89033
      vicky89033 Ali888

      Posted

      hi ali thanks for your reply, ive just replied to your post then saw youve seen mine. good on you for asking another doctor i do think with early treatment you have a very good chance of full recovery. im not to hopeful the short course of antibiotics will work for me but the plan is to use stronger ones if i return to ID and am no better. i think they will have to re test me to see if there is any improvement in my bloods
  • terry62719
    terry62719 vicky89033

    Posted

    Hi Vicky how / eere did you get tested I'm sure ive got lymes but don't know what to do I've got muscle twitching everywhere and electric shocks. Doctors have done basic NHS test and of course negative .. but do you have same symptoms. But my wife tells me when I'm asleep I don't twitch at all is this the same with you ?? My neurologist is referring me to London now but I think they're missing the option of lymes but NHS don't seem to have further lymes testing in there system gggrrr

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