ive finaly got diagnosis treatment 12 months after possitive test
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HI, I have had progressive symptoms for 4 years now and was tested for lymes and co infections last jan i had a possitive result for co infection Anaplasma and today 12 mths after that result finaly got the diagnosis and antibiotic treatment. for everyone who has had dismissive doctors who wont even acknowledge a possitive result dont give up. I have seen every specialist possible from nuero to endocrine at 5 hospitals non could give me a reason for my symptoms they all ignored the possitive anaplasma. Manchester ID ignored the result and symptoms and discharged me sheffield ID wouldnt even see me. I begged my GP for a referal to liverpool ID and they finaly agreed thankfully. over the past 4 years ive been told me it was fibromyalgia, CFS/ME,depression,stress and anxiety they had me even douting my own sanity! 1 GP even said all weve ever found is "that funny bug" this was the co infection. im not 100% sure what anaplasma is and if it is a reason for all my symptoms mainly neuro and possibly an autoimmune problem but at least i feel now that i have a name for what wrong. I got alot of help from my local MP and the PALS service at my local hospital who pushed me not to give up looking for an answer. I would urgh everyone to keep going and even when your faced with ignorance and feel like your going to the doctors saying the same thing over and over again and being a nuisence keep in your mind that one day the right doctor will listen
0 likes, 6 replies
Jo-Anne1803 vicky89033
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Well done Vicky! I remember your story well. It was criminal they weren't listening to even positive results but I know I watched a tv show about Lyme in Ireland recently and it stated the patients there were testing positive for anasplasma more than they were Lyme now so I do think doctors should start including that test as standard now
What treatment are they giving you?
Happy for your progress X
vicky89033 Jo-Anne1803
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Jo-Anne1803 vicky89033
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Ali888 vicky89033
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Glad you finally getting treated and found someone who understands. Full respect to you for not giving up, after all those attempts I'm not surprised you started to question your own sanity. I was bit 6wks ago and suffered from CPS and severe depression. I was tested and the results came back negative even after the doctor confirmed it was a bullseye rash that can only be caused by the bacteria. They told me not to worry and it's fine. I took it apon myself to call another doctor and ask for antibiotics. There wasn't a doctor available but a nurse gave me a prescription for 100mg doxycycline 1 a day for 2wks. I'm on my 3rd day and I'm starting to feel a lot better.
Vicky are you hopeful the antibiotics they have gave you will kill off the infection completely. Will you need more blood tests after your course. I'm going to book another blood test for a few weeks time.
vicky89033 Ali888
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terry62719 vicky89033
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Hi Vicky how / eere did you get tested I'm sure ive got lymes but don't know what to do I've got muscle twitching everywhere and electric shocks. Doctors have done basic NHS test and of course negative .. but do you have same symptoms. But my wife tells me when I'm asleep I don't twitch at all is this the same with you ?? My neurologist is referring me to London now but I think they're missing the option of lymes but NHS don't seem to have further lymes testing in there system gggrrr