Ive had this for years

Posted , 5 users are following.

I'm 16 years old, I've had these reaccuring boils since I was probably 11 or so. I've always been scared to show anyone because it embarrassing, you know? They've gotten so much worse, I have scarring all in my inner thigh and it's terrible, I now have some on my armpits and they hurt the worst. I also have them on my buttock area. This has made me so self conscious, I feel like I don't relate to anyone, I was recently googling my symptoms and come to the conclusion it is HS. I still have never been to the doctor or told my parents about any of this. We have the worse doctors around here so anything I come in about my doctor tell me to loose weight(bc I am overweight) and I'll be cured. I'm just nervous I'll be misdiagnosed or I'll be really embarrassed to even go because they might question why I waited so long to tell them. Everyone is so supportive here so I decided to comment

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6 Replies

  • Posted

    Hi , 

    sorry to hear your so nervous about seeing a dr if they're that bad can't you get another one , I'm 63 and have bad hs , really it is embarrassing but believe me your drs will have seen everything so just think of sumthing nice and take a deep breath and go see them. If you don't you'll never get the right treatment or care. It'll be tough I've had lots of ops n two children but nothing as bad as having to show them this all over my inner groin and buttock. I'm now being referred for humira treatment , please try and go see someone at your age it's not nice and you should be enjoying life not be dragged down by this x 

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  • Posted

    Sounds like you have HS. I understand how you feel and what you're going through, but remember you are not alone. You  really need to see a Dermatologist so he/she can diagnose and start treating you.  Stop being afraid of a doctor or what he'll say ( that's their  job and they are there to diagnose, help and treat you). Start by telling your parents about your symptoms. Some things you could begin with is to; ...... Write down your symptoms....Write down a history of when it began and progressed...... Wear loose clothing to easily show your symptoms to the doctor...... You could take some pictures of the abscesses....  All this will help your doctor. You really need to do this as soon as you can, because the sooner you get treatment is best.

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  • Posted

    Go to a dermatologist. Get help. Tell them you think you have HS. Be brave. 
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  • Posted

    Yeah I know it's great on here! I've gotten some really good advice on what to do. When I went to my dermatologist, they asked me if I've been gaining a lot of weight recently (I said yes) only because it makes the boils more painful and pops up for longer. She also told me that sugar plays a major role in HS when it comes to scarring and pain. It's been I think three days, and so far it's really working! The real test is when I get my period because my testosterone levels fluctuate and it causes the boils to come back. I'm also using a topical gel which seems to be working, but I don't know where to get that if you can't get a prescription. It took me a while to tell my parents too but when i did, they were really supportive about it and got me the help and advice i needed. If you don't want to go then look up "HS diet". People mostly say the diet's like the palio diet. So yeah, if you decide not to tell your parents or go to the dermatologist, try doing the HS diet because it's really working for me! Nothing has popped up and I dont have pain anymore.

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  • Posted

    Dear eve, again so sorry you are dealing with this! brown had some great advice and I would like to add a bit more if it is ok.

    1- try an elimination diet (ask your dr or look on line with your parents)

        many people's triggers are caused by food i.e. dairy, nightshades (tomatoes),gluten

    2-keep a journal of what you eat and when you flare

    3-also notate if you flare after exercise or stress

    4- (a repeat) take pictures!

    Sometimes it is easier to show pictures because it feels less embarrassing plus if the abscess has broke open you have evidence.

    Please keep strong and lean on your family and friends and insist your Dr check it out and read up on it. That is what I did and I was correct. My Dr had never even heard of it. I had previously been tested for MRSA 5 times because it resembles it. Usually with HS your test will come back negative.

    NEVER try to pop them yourself because it can spread infection!!! There is no cure but figuring out your triggers do help.

    Wishing you strength and pain free days! Reach out to all of if you ever need more info or support anytime smile

     

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