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Ive recently been diagnosed with RA at 19years old and was just wondering what your CCP levels are

Posted , 8 users are following.

ebonyrose1996
ebonyrose1996

Hi im 19 years old and was just wondering what your ccp levels are at. Mine came back at 200> and am just a bit worried. I am also just eonfering what age everyones been diagnosed. Thanks x

0 likes, 19 replies

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  • pieter
    pieter ebonyrose1996

    Posted

    Hi Ebonyrose1996

    I was diagnoised when i was 23/24 (2003)  my ccp antibody is 220, RF 80 and ana neg. I am classed as In remission with palindromic in nature RA.

  • Martin1968
    Martin1968 ebonyrose1996

    Posted

    Diagnosed at about 50, at 19 that's really crap, I don't actually know my ccp level I presume it goes up and down like the inflammation markers pv and crp which in my case are rising.
    • Jayne7831
      Jayne7831 Martin1968

      Posted

      My ex rheumy who I had little faith  in told me ccp used mainly for dx.  Never took another one so he did not use it for medication plan
  • Buckeyes
    Buckeyes ebonyrose1996

    Posted

    I was diagnosed a year ago at age 66.  I am on a biologic and my ccp is down to 132.  That is considered to be a high positive.  That's way down from 945 on my first rheumatologist visit! If that is what they checked at that time.  I know when I was first tested at my family doctor the number was 685 and by the time I made it to the rheumatologist it had climbed!  I don't know if that is the test they were taking but I think so.

    i am sorry you have this so young!  Don't despair.  Mine is being controlled on just the biologic and hopefully toys will too!

    Good luck to you!

    • ebonyrose1996
      ebonyrose1996 Buckeyes

      Posted

      Thank you for your reply!! I think just talking to people with the same condition has helped me understand alot. I am also sorry you have it.

      Thanks again, and take care.

    • Buckeyes
      Buckeyes ebonyrose1996

      Posted

      Thank you!  I am so glad I stumbled on this site!  It's a great place to vent and listen to others in the same boat!  I count myself lucky to not have the horrible pain others have!  Hang in there!
    • Buckeyes
      Buckeyes

      Posted

      I recently looked up my old numbers and I was mistaken on the ccp.  My rheumatoid factor was 686 and when I got to rheumy is had climbed to 945!  Not sure what ccp was!  I guess that indicates ra for sure!
  • RAyogi
    RAyogi ebonyrose1996

    Posted

    diagnosed at 23, just a few weeks ago. Don't know my CCP, I try not to worry about those things too much, because everyone is different and I'll drive myself crazy looking at levels and analyzing myself.  
    • ebonyrose1996
      ebonyrose1996 RAyogi

      Posted

      Yes you're quite smart for trying not to worry about your levels. I was sereo-negative but my blood tests have shown my Rf have become positive. Guess im just confused what everything means. Thanks for your reply.

      Take care

  • gemma83759
    gemma83759 ebonyrose1996

    Posted

    Hi I was 35 when first diagnosed. I don't know my numbers. I don't need to as I know when I'm in a flare or if ra generally playing up. I don't think the numbers for some of the tests always corroborate with the amount of pain you're in or how much inflammation you have!! Crap to be diagnosed at 19, there's loads of treatments available to us now so just a matter of finding the right one for you without it affecting your lifestyle.
    • ebonyrose1996
      ebonyrose1996 gemma83759

      Posted

      Thankyou for your reply. I believe you are right about the pain. My shoulders hurt so much abd only people with this condition will ever understand. How do you cope with your everyday life? Im glad i have others to talk to because my parents dont really understand.

      Thanks again

    • Buckeyes
      Buckeyes ebonyrose1996

      Posted

      Yes. Was diagnosed last January and recently found out my husband has never looked it up to find out what it is!  That really hurt!  See if your parents will do some research so they can better understand what we go through!  This site might be a suggestion!

      Good luck!

    • ebonyrose1996
      ebonyrose1996 Buckeyes

      Posted

      Yes i know the feeling. Having someone you care about and would do anything for not show there care can hurt alot. I know my parents could do alot more to understand my position. They dont really go out of there way to try and understand, they just ask me what everything means. Which is fine but alot of the time i dont know what things mean and i dont know what medication i should be on and i guess thats where i really rely on there help.

      Im sorry your husband never looked into our condition. It really does help knowing what others are going through.

      Take care

    • Buckeyes
      Buckeyes ebonyrose1996

      Posted

      Have your parents ever gone to any appointments with you?  Some of the Meds can be really scary!  Maybe your rheumy can enlighten them as to your condition!

      you take care too and keep the faith!

    • ebonyrose1996
      ebonyrose1996 Buckeyes

      Posted

      No they dont come. They havent really come to anything whether it be for school, sport or health. It would be good if they did. Ill have to just talk to my doctor at my next rheumy appointment and ask him 50 billion questions.

      Thats what theyre there for i guess.

      Thankyou, its good just talking to people with the same condition.

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