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j pouch positives pleeeaassseee!!

Posted , 5 users are following.

brightside2016
brightside2016

had ileostomy for a year - going for j pouch in a few weeks

PLEASE people!! tell me positive things about the J pouch.

I am about to turn 40 and do not want the bag anymore!cheesygrin

1 like, 6 replies

6 Replies

  • Darasdad1
    Darasdad1 brightside2016

    Posted

    I would love to know how you get on. Positives are that you go to the toilet conventionally, you can wear what you want, there's no physically entity attached to your tummy and you don't have to your Rectum removed. Good luck with your operation. Chris G-H
    • brightside2016
      brightside2016 Darasdad1

      Posted

      thanks for your reply, yes they sure are good positives will keep you posted smile
  • rachelle52846
    rachelle52846 brightside2016

    Posted

    Hi Carly

    Good luck hope all goes well for you must be really nerve racking how long has it been having the stoma now ? Two of my friends have had the j pouch and reversal which both have no regrets and live happy life's they go about 7 times per day maybe once at night but in full control and can hold it which is really important please keep us posted and wishing you a speedy recovery xx

    • brightside2016
      brightside2016 rachelle52846

      Posted

      Thanks so much Rachelle thats good to hear. I could live with that again up in the night. I dont sleep properly with it anyway as I am scared of laying on it and it bursting! I have had stoma for a year. I can cope with the empying- it is the visability of it and uncomfortable under my clothes and those belts are rubbish they just slide up or down.biggrin
    • rachelle52846
      rachelle52846 brightside2016

      Posted

      I know there is always pros and cons isn't there but the light is at the end of the tunnel so all good 😉I will be looking into j pouch one day too but my surgeon has asked me to hold off if I want more babies which I don't want to rule out X but I feel you on the bursting I used to love sleeping on my tummy but not long now and you will be doing it !! Speak soon x
  • sheila91262
    sheila91262 brightside2016

    Posted

    Hi, Have you read my posts about my son's successful j pouch which was completed last July? Where are you going for Consultation?

    He is very happy with the pouch and so pleased to go to the toilet in the usual way and have no external bag anymore. The 1st op formed the pouch and removed the rectal stump , incision through previous ileostomy scar. Second op was keyhole through stoma site and attatched the pouch. Surgery was fine, short recovery and hardly any pain. He went to the wonderful John Radcliffe Oxford under Prof Mortenson who do several sorts of pouch and operate all the time so have a specialist team. He went from approx 6 to 8 visits to loo plus one at night at first to now 3 a day and none at night. I think that is better than average but he did practise using rectal muscles before ops and can delay and no accidents.

    I am confused by other comments about rectum as muscles are retained but last part of colon is removed as can be diseased. 

    Good luck, ask any question you like if it helps.

    Sheila. 

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