Jacuzzi?

Hi Pauli

Was very interested in your post. . I've just been diagnosed with rheumatoid arthritis in both ankles, and at the moment it is ruining my life  . .can't walk hardly anywhere, pain at night, agony in the morning. . .I hadn't heard about this op . . . .would love to hear more about how it had been for you. . . . Had a knee replacement in January, and to begin wkle pain was something to do with that, but unfortunately not!ith thought the an

Sorry about that, . . the cursor jumps and I didn't realise it had written gibberish . .i mean that I thought the ankl pain was to do with the knee op, but has nothing to do with it.

 

Hi martinarvelo 

I was diagnosed with psoriatic athritis eighteen years ago it affect mainly hands,, feet ,,and back ..I am lucky it missed my back ...about a year after being diagnosed I started getting a lot of pain in my ankle a bit like a bad spraint ankle very dificult to walk any distance after trying to sort it with insoles ..then jag into the ankle joint ..then it was decided to fues it ...it's called a triple athrodiesis they put three screws into the joint clean out the damaged cartlige fill that with bone craft ..all done when you are sleeping then set it into a plaster cast for three months at the end of the three months the ankle fuesed you can move you foot up and down no side movement you can't circle your feet anymore but after a time ..up to twelve months were your ankle settles down and you get used to walking on it ..you will be able to do most things you could do before run ..play football ..but without pain ...because by fuesing the ankle bones there is no bone rubbing against another bone .. It is truly remarkable no pain in your ankle ..you get your life back ...I hope this helps 

thanks a lot!  Mine has only started three months ago, but already walking is very painful, and no pleasure at all . . and stairs are agony. . . Some changes in the shape of the ankle too . .still at the diagnosis stage, magnetic resonance next week, but  specialist thinks it's rheumatoid arthritis. . . I imagine it will be a while before they would consider this op for me, but pain killers and anti inflammatories have tno effect whatsoever, and it really does ruin life!  I hadn't actually heard of this procedure, so it is definitely something to look into with my orthopaedic surgeon, who has alreayd sorted out two shoulders, a knee and a finger for me!!!  thanks so much for the info . .  (running and football have been out of life for many years but I would love to be able to walk freely again!  After six months getting over the knee replacement, this came as a bit of a shock . . 

 

Hi again martinarvelo I am in scotland glasgow it was a Mr Kumar from glasgow royal infirmary who operated on both my ankles..before op I would wear a brace called a Bauerfeind malleoloc ankle brace brilliant kept me going for a couple of years I wore a the brace every three months I got it from my athritic clinic I go to every six months sooner if I am in pain .. This operation is a standard op for ankle athritis your orthopiedic doctor should know about it ...Mr kumar is one of the best surgeons for this type of procedure if I can help further I will good luck 

Many thanks . .I'm a long way away in Tenerife.  My surgeon is mainly a hip and knee expert, but I'm sure he would either do this op himself, or advise me on a good choice. . but probably very early to be thinking along those lines yet!  Is the ankle brace very uncomfortable to wear?  it doesn't sound a lot of fun, but if it helps with the pain and makes me more mobile it would be great. . . 

 

Going sideways a bit. Have you tried cutting out certain foods like tomatoes` potatoes, peppers. They all belong to the deadly nightshade family, the list is a bit longer (google for the rest),  dairy and red meat can also be contributors to pain as well.  I am not a faddy eater, but have found sticking to a  list of "to be avoided at all costs"and "avoid if possible" has made life a lot easier

It's certainly something to think about!  wow, tough, potatoes . . and dairy. they are hard to do without!!  But if it helps with the pain, it would certainly be worth looking into it. thanks for the idea.  do you have rheumatoid arthritis? This is all a bit new to me!

 

Yes it is comfortable andy Murray the tennis player wear them ..you can put shoes or trainers on with brace on check it out in website Google the name ..tell your surgeon to look up mr kumar I am sure he would corespond with him he is very helpful and has always got student doc in clinic as well as that he goes into doc training university ..and passes on his knowledge it wouldn't do any harm ..and may I say as well the sooner you get diagnosed the better less damage to joints while on the proper meds ...I am now on etanercept an anti tnt drug no pain from my athritis since I went on it apart from the pain I got when bone touch bone like the ankle ..you should look up this drug it may sort your athritis pain in other parts of your body ..I get it free on nhs it would cost 10.000 a year otherwise I jag my self once a week with a pen style jab...methotrexate and salfisalizone made me like a zombie after five hours you just get very tired don't let them put you on them hope this helps 

Thanks for the info . . I'm just wonderng if I shall be able to take the drugs, as I believe they lower the immune system . .and that sounds dangerous for the knee replacement!  But I'm sure my surgeon will be able to sort me out a bit. . . 

Not rheumatoid, had knee cap removed, before knee replacements, so always had joint issues.  Investigated pain triggers.  Main one for me was the much loved tomato.  Deliberately ate them; pain increase.  Did blind tests (well friends & family did) as well. Definitely not "all in the mind". Others like msg are a no no.  Foods like blueberries, soya, fish are on the menu. I'll dig up the website in the morning and post for you.  It's worth trying. You can still eat (un) healthily if so desired ;-)

Yes you can take this drug once the wounds have healed and stitches are out I had a full knee replacement two years ago ..get on the bike best exercise ..take care 

That's really interesting about food - heard about foods associated with allergies but not triggering pain

I cannot find the website, it was a time ago, so most probably faded away. The worst thing for me to eat/drink was tomato, my favourite drink tomato & tabasco, Deliberatley drinking brought the pain on in less than 30 mins. Others I have found out by trial and error:potato, eggplant (aubergine), peppers but NOT sweet potato. The avoid if possible was dairy, wheat, barley, rye and sugar. and reduce ones intake of :tea, coffee, red meat, biscuits, cakes, pork, oranges, grapefruit, lemon, rhubarb, plums, cheese, peanuts, this is more personal, everyone reacts differently.  The good stuff blackberries, blueberries and cherries (the juice is very good for painful joints), organic fruit and veg, non acidic fruit, oats and oily fish.

Please remember, this works for me.  It might not work for you, though I wholeheartedly believe you'll notice a difference by leaving out the toms, pots and peppers.  Good luck

Many thanks!  I do love my food, but not if it's going to cause me pain! I'm always eating tomatoes!  Maybe I should stop . . .  My daughter and grandson are both gluten intolerant, and dairy, so I am used to  catering for odd diets!

 

try it, may be different for you.  It may be another food, it only takes a couple of hours to know if something is causing you pain.  Stop eating them for a day or 2, then start again.  No point giving up something if it is NOT causing you pain.  I love my food, tend to eat the odd "no no" food and the odd tomato soup.  Yes I pay, as I do know the consequences (does that make me a masochist)