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  3. Fibromyalgia Syndrome

Jerking arms and legs?

Posted , 12 users are following.

caroline271
caroline271

Does anyone here have strange feelings in their muscles or jerking and twitching muscles? Today I can feel the muscles across my back together with my arms and lower legs pulsating and vibrating. Also since August my muscles have been twitching and jerking. My neuro is puzzled and although I can cope with pain and stiffness I really don't like these feelings.

1 like, 38 replies

38 Replies

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  • Rainbow-Bright
    Rainbow-Bright caroline271

    Posted

    I take 25mg of Pregabalin for the jerking, twitching, Spasming when I go to bed.

    I originally started taking it a few years ago to calm my nerve ends down in my foot after a bad ankle break which left me with CRPS. It was only when I was doing some research on the tablets, that I found out they worked well for people with Fibromyalgia.....Bonus!  On a bad day though I will take extra when needed.

    They do really help, and give me the gentle relief which is needed.

    • christine26761
      christine26761 Rainbow-Bright

      Posted

      Must look that med up, it sounds just like amitriptyline, which I've been on for 16 years..never been increased either..just one at bedtime...:-) xx
  • Angela0987
    Angela0987 caroline271

    Posted

    Caroline did you ever get a diagnosis? I have the same issue plus some...
  • gill50535
    gill50535 caroline271

    Edited

    Hi caroline, i'm so reassured after reading all these responses, i thought it was just me, twitches,(visable) body judders & jerks, cramps and dropping things. pins and needles every where even my tougue.. these fibro symptoms are just plain odd..

    i'm taking 20mg amitriptyline at night with co-codamol as needed and i'm also on 40mg of propranolol for anxiety. i also read about the pregabalin but wont take it because of the weight gain. i'm still trying to lose the 2 stone i put on from being on mirtazapine for 8 months. sad  i am alo taking vit d 20,000iu a week but the rest of my vit levels are normal.

    I think it's something we just have to get used to but it is odd to see a limb fly off in a different direction for no reason.. 

    xxxxx

  • chris11339
    chris11339 caroline271

    Posted

    for 2 days I have had the twitching at the side of my knee it's so annoying.

    there are times when I've felt a vibration and actually thought it was my mobile in my pocket on vibrate.

    I am having a very bad time started yesterday morning when I got up and only gettin worse I have work in the morning I pray I manage as I feel ime off sick lots but I know my own body and know when it's just going to collapse into a flare and it's coming 😈😈

  • pamela48171
    pamela48171 caroline271

    Posted

    Yes, I suffer from twitching and jerking. Even trying to type this has my fingers typing letters and I keep having to go back because of it. Try light stretching of your body just lightly reaching g up to the ceiling and down to the floor helps me sometimes. I have been in restaurants and my fork will go flying. It's frustrating. But the more you try to ignore the, the less it will bother you. Just another crazy symptom of fibro. Good luck 
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