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I have no idea what is going on. I am 35, I have undifferentiated connective tissue disease and non autoimmune hyperthyroidism caused by a toxic nodule. It's under pretty good control. The last couple of years I've been experiencing increasing tremors and twitching in mainly my face and my thumb and middle finger, tingling and numbness in my hands and feet, it often feels like heavy bands around my wrists and ankles, involuntary jerks like shoulder shrugs at random, and unsteadiness.
I had a nerve conduction study in my hands but it was fine. The hands and feet numbness episodes often last all day, the most recent one though I had painful tingling in my right hand and a patch of complete numbness. It stayed for hours. My tremors are jerky, normally in my hands, left worse than right by far, intermittent and induced by exertion, like using shears to garden for a few minutes. Usually Only present when flexing muscles.
. Some days my whole body feels jerky, like I can't make smooth movements unless I really concentrate. Like moving my head up an down will be stuttery and jerky. I seem to have issues in my legs, if I try to lift them from lying down, it's very difficult and I get tremors in my thighs immediately. I was also recently diagnosed with atrial flutter/fibrillation. My endo says the tremors and such are not thyroid related, my rheumy says they aren't autoimmune related, my new movement specialist says they are probably dystonic tremor but I'm in a waiting list for a brain mri. I take cbd which helps somewhat. But I'm scared what it could be this time and I don't like how it's progressing. I'm just looking for ideas.
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